Undiagnosed Illness - Waiting For Bowel Resection

My Medical Conditions

Excruciating Pain
Sphincter of Oddi
Found during a Hida Scan. Sphincter of oddi is situated in the upper intestine, or duodenum, at the site where the pancreatic and bile ducts enter. Normally, this sphincter functions as a one-way valve to allow bile and pancreatic secretions to enter the bowel, while preventing the contents of the bowel from backing up into these ducts.

When the sphincter malfunctions, it becomes overly tight and does not allow adequate drainage of the pancreatic and bile ducts. The result is a pressure build-up in the ducts, leading to recurrent episodes of pancreatitis or biliary pain mimicking gallstone disease.

Irritable Bowel Syndrome
Bad Stomach
Most people have Irritable Bowel Syndrome !

Endometriosis
Endometriosis Symptoms
2 Surgeries so far on my Endometriosis. Last surgery showed Endo has completely gone. Gyno said my Pelvis was crystal clear.

Costochondritis
Very Painful
Costochondritis is a form of inflammation of the cartilage where ribs attach to the breastbone. Pain caused by Costochondritis may mimic that of a heart attack or other heart condition.

Adenomyosis
Benign Condition
Adenomyosis is the growth of uterine tissue from one particular layer of the uterus (the endometrial glands) into the wrong layer (the muscle layer, called the myometrium). It is a benign condition, but it can enlarge the uterus presenting as a growth.

Splenic Flexure Syndrome
Very Painful
Splenic flexure syndrome refers to the trapping of gas at the splenic flexure causing distension and bloating.

Anal Sphincter Dysfunction
Constipation
I suffer extreme bouts of Constipation. Daily doses of Movicol and Normacol.

Neuropathic Pain
Damaged Nerves
Neuropathic pain is a complex, chronic pain state that usually is accompanied by tissue injury. With neuropathic pain, the nerve fibers themselves may be damaged, dysfunctional or injured. These damaged nerve fibers send incorrect signals to other pain centers. The impact of nerve fiber injury includes a change in nerve function both at the site of injury and areas around the injury. Symptoms may include shooting and burning pain, tingling and numbness or electrical pain.

Pelvic Floor Dysfunction
Cause of Constipation
Pelvic floor dysfunction, or obstructed defecation, results when the external anal sphincter and/or puborectalis muscles do not relax appropriately when defecation is initiated. People with pelvic floor dysfunction strain excessively in a feeble attempt to eliminate stool from the rectum.

Undiagnosed Illness

Undiagnosed Illness

Waiting For Bowel Resection

While waiting for the operation for bowel resection I kept in contact with the surgeon who performed my gallbladder operation. He would call on occasions to see how I was doing. He could see my distended stomach, and the lump on the left hand side and was concerned. He said my new Doctor would be really helpful, just give it a bit more time.

Bowel ReSection

When I told him about my pending bowel resection operation and the two surgeons involved he was not impressed, they all knew one another. He said this was a rather extreme measure to take, and did I fully comprehend what it all meant. I just wanted to get rid of this pain and willing to do anything.

Doctor's Conflict

We chatted about previous findings, the fact the gyno who did my first laparoscopy didn't follow up with why the adhesions had formed in the first place, the fact I had already had a colonoscopy and for the most part that was all ok. He said there are numerous tests, procedures that could be performed before such drastic measures of bowel re-section were performed and I should really think this out. The fact no one had been able to help me so far, and the fact no one else had mentioned other procedures I was going ahead with the bowel resection.

When the surgeon who performed my gallbladder operation called a few weeks later to see what I had decided he was extremely concerned. I said I had exhausted all measures, no one has mentioned these other tests, so what am I meant to do?

He called a few times and in the end, despite the code of ethics, said the surgeon who is to perform the bowel resection and the gyno operating on the edno were unprofessional and just after money, the operation was just an extravaganza. He worked in the same hospital with them and I should not go through with it, they just want the money they are not at all interested in finding out what is causing all my health concerns.

My mind was racing, what if he was right?. What if I end up with a permanent coloscopy bag, or my bowel suffers more problems due to this surgery. In the end I thought I would chop off my leg to rid this pain once and for all, so I went through with the operation.

Time For The Bowel Resection

The Story Continues ....... If you would like to continue reading:

read my story

I hope you visit my Undiagnosed Illness Forum If you have any suggestion's or comments I would love to hear from you.

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Medical Tests So Far

I've had some of these procedures more then once

Ultrasound

CT Scan

MRI

X-Ray

Colonoscopy

Gastroscopy

Sigmoidscopy

Hida Scan

Barium Meal

Laparoscopy

Ultrasound

I know alot of people can relate. I hope you all have close families because they really do make a difference.

Exhausted From Pain

It's been 3 years and 4 months, and yep still undiagnosed. I'm extremely exhausted.

Exhausted

Journal

This website is meant to be therapeutic.. A place for me to vent and express my feelings. Somedays I find it frustrating because it brings back memories when doctor's gave up, saying it was all in my head, nothing wrong with me, yet I pushed on with different doctor's and GUESS WHAT ? they found more medical conditions!

Pain....Pain...Pain....Pain.....