Living With an Undiagnosed Illness
My Medical Conditions
Excruciating Pain
Sphincter of Oddi
Found during a Hida Scan. Sphincter of oddi is situated in the upper intestine, or duodenum, at the site where the pancreatic and bile ducts enter. Normally, this sphincter functions as a one-way valve to allow bile and pancreatic secretions to enter the bowel, while preventing the contents of the bowel from backing up into these ducts.

When the sphincter malfunctions, it becomes overly tight and does not allow adequate drainage of the pancreatic and bile ducts. The result is a pressure build-up in the ducts, leading to recurrent episodes of pancreatitis or biliary pain mimicking gallstone disease.

Irritable Bowel Syndrome
Bad Stomach
Most people have Irritable Bowel Syndrome !
Endometriosis
Endometriosis Symptoms
2 Surgeries so far on my Endometriosis. Last surgery showed Endo has completely gone. Gyno said my Pelvis was crystal clear.
Costochondritis
Very Painful
Costochondritis is a form of inflammation of the cartilage where ribs attach to the breastbone. Pain caused by Costochondritis may mimic that of a heart attack or other heart condition.
Adenomyosis
Benign Condition
Adenomyosis is the growth of uterine tissue from one particular layer of the uterus (the endometrial glands) into the wrong layer (the muscle layer, called the myometrium). It is a benign condition, but it can enlarge the uterus presenting as a growth.
Splenic Flexure Syndrome
Very Painful
Splenic flexure syndrome refers to the trapping of gas at the splenic flexure causing distension and bloating.
Anal Sphincter Dysfunction
Constipation
I suffer extreme bouts of Constipation. Daily doses of Movicol and Normacol.
Neuropathic Pain
Damaged Nerves
Neuropathic pain is a complex, chronic pain state that usually is accompanied by tissue injury. With neuropathic pain, the nerve fibers themselves may be damaged, dysfunctional or injured. These damaged nerve fibers send incorrect signals to other pain centers. The impact of nerve fiber injury includes a change in nerve function both at the site of injury and areas around the injury. Symptoms may include shooting and burning pain, tingling and numbness or electrical pain.
Pelvic Floor Dysfunction
Cause of Constipation
Pelvic floor dysfunction, or obstructed defecation, results when the external anal sphincter and/or puborectalis muscles do not relax appropriately when defecation is initiated. People with pelvic floor dysfunction strain excessively in a feeble attempt to eliminate stool from the rectum.


Undiagnosed Illness
 
How it all Started

In November 2005 I started getting very painful (electric shock is the best way I can describe it) pains in my vagina. I thought perhaps because of my weight gain (now I was not overly heavy) I'm 5.7 ft and at that stage was 80kg, so according to the BMI (body mass index) still within normal range..

Anyway relatives and friends had mentioned, when they gained weight, they also experienced more period pain, so I put in down to the weight gain. Over a two month period my stomach ballooned in size, and not just a fat stomach either, my fiancée and family also commented on the odd shape and size. I still continued to have normal periods, always lasting 5 days, but they steadily became heavier.

After nagging from my fiancée (we have been together 10 years) so he knows about my aches and pains, normal one's anyway. He convinced me to see a doctor. After 2 months of stomach growth and electric shock pains I ventured off to see my doctor (the first of many to come).

First Doctor Visit

The first doctor (General GP) ran some blood tests, I had an internal exam, and an ultrasound. I mentioned to the doctor that I felt like I was pregnant, and after several pregnancy test's showing negatives I still wasn't convinced. We both thought maybe it was still possible, after all some women don't test positive to a pregnancy test until in the later stages, and sometimes not at all. Also I have read about women still having their periods and actually being pregnant. My sister continued to have her normal period when pregnant with her first child, and her periods continued for at least 3 months.

So the ultrasound confirmed not pregnant, but I had some fluid in my Pouch of Douglas. When the test results arrived you can imagine my family and fiancée's reaction. What the bloody hell is "Pouch of Douglas". Over the years I have become rather knowledgeable with Medical jargon, technical terms used for our body parts that I had never heard of.

So I continue to see the this Doctor for a few months, not getting anywhere, blood results came back all normal, ultrasound nothing to worry about, apparently women can have fluid in their pouch of Douglas and it's no major concern. I continue to get a little bigger in the stomach (the only other parts of my body I put on weight are my breasts, which starting leaking a white milky substance, (I thought it was milk) and no complaints about getting bigger boobs!.

Work Started To Suffer
My work started to suffer, I deal with the public (medical profession) and it was hard to deal with customers when the pain hit. I was always in a constant state of pain/discomfort, I felt alot of pressure in my stomach, especially under my left rib cage, every so often (usually every 15 minutes at least) the electric shock type pains in my vagina would hit. The pressure under my left rib cage just got worse and worse, it was so tender I could barely touch it (and still to this day it remains the same).

After having no luck with this Doctor, who also admitted being baffled by my illness and wanting me to take Anti Depressants (apparently to help me sleep) referred me onto a gastroenterologist. Thinking the stomach bloating may be a bowel problem.

The Story Continues ....... If you would like to continue reading:

read my story

Please visit my Undiagnosed Illness Forum where I hope those who suffer, or have suffered continue to share their stories. If you have any suggestion's or comments I would love to hear from you.


Don't forget to and check back often for updates

Medical Tests So Far
I've had some of these procedures more then once
Ultrasound
CT Scan
MRI
X-Ray
Colonoscopy
Gastroscopy
Sigmoidscopy
Hida Scan
Barium Meal
Laparoscopy
Ultrasound

I know alot of people can relate. I hope you all have close families because they really do make a difference.

Exhausted From Pain

It's been 3 years and 4 months, and yep still undiagnosed. I'm extremely exhausted.

Exhausted
 
Journal

This website is meant to be therapeutic.. A place for me to vent and express my feelings. Somedays I find it frustrating because it brings back memories when doctor's gave up, saying it was all in my head, nothing wrong with me, yet I pushed on with different doctor's and GUESS WHAT ? they found more medical conditions!

Pain....Pain...Pain....Pain.....

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