Living With an Undiagnosed Illness

Medical History
Irritable Bowel Syndrome

IBS
Irritable bowel syndrome IBS is a syndrome, meaning a group of symptoms. The most common symptoms of IBS are abdominal pain or discomfort often reported as cramping, bloating, gas, diarrhea, and or constipation. IBS affects the colon, or large bowel, which is the part of the digestive tract that stores stool. IBS is not a disease. It�s a functional disorder, meaning that the bowel doesn�t work, or function, correctly.
Endometriosis

Endometriosis Symptoms Endometriosis is a common medical condition characterized by growth beyond or outside the uterus of tissue resembling endometrium, the tissue that normally lines the uterus. In endometriosis, the endometrium (from endo, inside, and metra, womb ) is found to be growing outside the uterus, most commonly in the pelvis.
Costochondritis

Also called Tietze's Syndrome
Costochondritis is a form of inflammation of the cartilage where ribs attach to the breastbone.
Costochondritis
Pain caused by Costochondritis may mimic that of a heart attack or other heart condition.
Adenomyosis

Endometriosis of the Uterus
Adenomyosis is the growth of uterine tissue from one particular layer of the uterus (the endometrial glands) into the wrong layer (the muscle layer, called the myometrium). It is a benign condition, but it can enlarge the uterus presenting as a growth.
Neuropathic Pain

Neuralgia
Neuropathic pain is a complex, chronic pain state that usually is accompanied by tissue injury. With neuropathic pain, the nerve fibers themselves may be damaged, dysfunctional or injured. These damaged nerve fibers send incorrect signals to other pain centers. The impact of nerve fiber injury includes a change in nerve function both at the site of injury and areas around the injury. Symptoms may include shooting and burning pain, tingling and numbness or electrical pain.
Sphincter of Oddi Dysfunction

(SOD)
Sphincter of oddi is situated in the upper intestine, or duodenum, at the site where the pancreatic and bile ducts enter. Normally, this sphincter functions as a one-way valve to allow bile and pancreatic secretions to enter the bowel, while preventing the contents of the bowel from backing up into these ducts.
Sphincter of oddi
When the sphincter malfunctions, it becomes overly tight and does not allow adequate drainage of the pancreatic and bile ducts. The result is a pressure build-up in the ducts, leading to recurrent episodes of pancreatitis or biliary pain mimicking gallstone disease.
Splenic Flexure Syndrome

Muscle Spasms of the Colon
Splenic flexure syndrome refers to the trapping of gas at the splenic flexure causing distension and bloating. Pain can be felt up under the left ribs. When the pain is really bad, it can enter the left armpit.
Anal Sphincter Dysfunction
Significant Cause of Constipation

Anal Sphincter Dysfunction can result from nerve damage as well as from lacerations of the sphincter. Tears are an important risk factor for long-term anal sphincter dysfunction.

Pelvic Floor Dysfunction
Predominantly Affecting Females

Pelvic floor dysfunction, or obstructed defecation, results when the external anal sphincter and/or puborectalis muscles do not relax appropriately when defecation is initiated. People with pelvic floor dysfunction strain excessively in a feeble attempt to eliminate stool from the rectum.

undiagnosed

Mystery Diagnosis
 
Living With an Undiagnosed Illness

Gastroenterologist

Appointment with Third Gastroenterologist

The third Gastroenterologist was terrific, the first time I recall ever having a thorough psychical examination. This time someone thought to look at my spine and ribs!. He definitely thought this was a non Gastroenterologist issue, and I needed to have x-rays on my rib cage.

The x-ray was negative aaarrrggggggg how frustrating.

Gastroenterologist

When I returned to the Gastroenterologist for results, even though the x-ray was negative he still thought from the psychical exam that it was spine or rib related and recommended I find another Doctor (GP) to look into this area, as no one had even thought about the spine, I didn't either, I thought something inside my stomach was annoying the rib cage, making it very tender and sore to touch.  

Back To My Doctor

I came out of that appointment very enthused, why didn't I think about that, and very happy the third Gastroenterologist picked this up. Even though I had no faith in my very first Doctor, she was always willing to refer me for anything I asked, so I ventured back with the report from the third Gastroenterologist regarding the rib/spine potential problem. After all these Doctors, specialist etc I didn't want to relay all this info to another so stuck with my first Doctor, she knew the background info, and I really couldn't face telling the whole story over and over again.

Test Results
I was referred for a CT scan, not long to wait for this test, but you will never guess what....... the results were again NEGATIVE, arrrrrgggggg so frustrated. The Doctor just shook her head and said I really don't know what is causing the pain. I was just so upset, how can the test be negative when you can see this odd lump under my rib, my stomach is the size of a pregnant women and I'm in so much pain, why why can't they pick something up. Over the coming months, I stayed home alot, I slept alot, and yes I was depressed to some degree I don't deny that, but 90%  was FRUSTRATION, ANGER, ANNOYANCE, and some more ANGER.  

Alternative Treatments

I made an appointment with a Herbalist, perhaps he could help me.

The Story Continues ....... If you would like to continue reading: Herbalist

Medical Procedures
Colonic Transit Study
CT Scan /Abdominal / Pelvis
MRI / Chest / Spine
X-Ray Lungs
Colonoscopy
Gastroscopy
Sigmoidscopy
Bone Scan
Bone Scan
Hida Scan
Barium Meal
Laparoscopy x 3
Abdominal Ultrasound
Pelvic Ultrasound
Abdominal Wall Ultrasound
Infrared Imaging
Infrared Imaging
Cholecystectomy
Intravenous Pyelogram (IVP)
undiagnosed illness

This website is therapeutic.. A place for me to vent and express my feelings. When problems bother you in real life your always advised to talk about it but with an undiagnosed illness your often told just live with it and carry on with your life. Easier said then done.

undiagnosed

Undiagnosed Forum

undiagnosed symptoms

Thank you to all members of the forum for your continued support, encouragement and guidance.

Mystery Diagnosis

undiagnosed illness forums

Just over 5 years now and Im still undiagnosed. I'm extremely exhausted.

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