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September 02, 2010, 08:04:54 PM
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Author Topic: Moved GP appt from june 10th to today  (Read 398 times)
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ohtobehealthy
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« on: June 03, 2009, 05:55:40 PM »

Hey guys I was supposed to bring my new GP all my tests and records etc on June 10th... I went ahead and rescheduled that for today. I decided it was best with everything that is going on right now, with the hernia and then the mucus I keep finding in my stool and then yesterday parts of my stool were a salmon pink color, I dont know what that is all about but I need a colonoscopy soon and then my job is breathing down my neck to take a leave of absence to take care of myself.. so I need to talk to him about all of that too it was just easier to get this done with sooner rather than later. I hope it goes well.. I am going in to work late after the appt. I also typed out my full outline of symptoms I have had since I was a baby and then I have my families history on it as well. I hope he will do as he says and really read all of it and read in between the lines he does seem to care but then again my last doctor seemed to care too when I first  started seeing her. I am trying to stay optimistic here though. I am hoping he will be the one to finally crack the case so to speak. I dont want to feel like this anymore..... *sigh* wish me luck...

**Kristin**

Undiagnosed now since birth, born a "floppy baby" with poor feeding and swallowing. Diagnosed with IBS, GERD and Anorexia due to both in 1993. Diagnosed with Anxiety 1995. CFS 2008. Hypoglycemia and Sleep Apnea 2009. Still looking for the reasons... why?

Author Topic: Moved GP appt from june 10th to today (Read 398 times)
ohtobehealthy
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« Reply #1 on: June 04, 2009, 06:01:03 AM »

Well I went and the doctor always spends all the time with me that I need, hence why he is not the most punctual doctor but that is ok. So today I gave him my whole history and outline of my story and symptoms, doctors I have seen, labs and procedures that had been done, and my family history. He would like to send me out to Minnesota to the Mayo clinic out there for a week or two. He said insurance would cover this I would just need to find the money for the flight and a place to stay. He says that when he can't figure out what is ailing a patient with many complications he has been able to send them there and they have been able to find the answers they need, aka... a diagnosis. I want to do this ... but I cant right now. I would be able to do this perhaps late fall. I am going to try for it anyways and my husband is very supportive and all for it. They would need copies of all my entire medical files from when I was young and then they go from there.. I most likely will do this if answers are not found here in the next 5 or 6 months.

He then was pretty concerned about the sudden mucus in my stool and had assumed I had a colonoscopy before.. I told him I had but it was nearly 10 years ago.. and he says "well guess what your getting done!?"  lol...He told me also I could have IBD (inflammatory bowel disease) which is completely different from IBS and can cause the mucus i guess. so that is now been scheduled for June 18th at 9am but that is subject to change.   My hubby will be in Louisiana at this time for training. He is gonna try to get out of it but I doubt he will be able to.. so most likely I will be rescheduling for July. In which I should find out tomorrow for sure.  The sleep study is still on for June the 10th... Then I go to see a surgeon on the 16th of june to discuss my hernia surgery which will also most likely be scheduled for July.  I have a busy few months ahead of me... I hope something is found but if not.. I will look forward to possibly visiting the mayo clinic for a week or two. There just maybe hope out there! well there is a glimmer of hope anyways!

**Kristin**

Undiagnosed now since birth, born a "floppy baby" with poor feeding and swallowing. Diagnosed with IBS, GERD and Anorexia due to both in 1993. Diagnosed with Anxiety 1995. CFS 2008. Hypoglycemia and Sleep Apnea 2009. Still looking for the reasons... why?

Author Topic: Moved GP appt from june 10th to today (Read 398 times)
Samantha
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« Reply #2 on: June 05, 2009, 08:19:52 PM »

This is really good Kristin, having plans and options  Big Grin the Mayo Clinic sounds like the best deal so far, so try your hardest to get in.
I agree with your Doctor on the colonscopy...need one asap


 Huge Hug
Sammy



Author Topic: Moved GP appt from june 10th to today (Read 398 times)
ohtobehealthy
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« Reply #3 on: June 05, 2009, 10:00:35 PM »

I was given some hope here... I hope to get to the mayo clinic hopefully october. I wasnt able to keep my appt for the colonoscopy on june 18th. No one home to drive me or take of me etc. So the soonest after that was July 21st at 9:45 am. I hope soon after that to have my hernia surgery. bahh I despise surgery and anesthesia. oh well..

**Kristin**

Undiagnosed now since birth, born a "floppy baby" with poor feeding and swallowing. Diagnosed with IBS, GERD and Anorexia due to both in 1993. Diagnosed with Anxiety 1995. CFS 2008. Hypoglycemia and Sleep Apnea 2009. Still looking for the reasons... why?

Author Topic: Moved GP appt from june 10th to today (Read 398 times)
New28
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« Reply #4 on: June 28, 2009, 06:52:29 AM »

Surgery is the pits...you're told to take it easy...Nobody gets it, NOTHING's easy! To take it easy you need a flock of servants and you'll be bedridden, life isn't like that!!
Here, home help SUX! You pay about $6 an hour, they don't appear any more often then once a week. They were paid to appear after my daughter was born(the hospital staff wouldn't release her to me after what my mum told them).
The woman who showed up every week for a month spent most of the time she should've been working on drinking cups of tea and talking while I cleaned. I told the council I wanted a new worker. This new worker 'did' the carpets in the lounge room and both bedrooms, but when I went and looked, nothing had changed. Her second week, she came 45mins late and left 30mins early, but I was required to pay for the full 1 1/2hour. I called the council and asked them to stop sending workers.
My grandma had to have a lung operation, they 'required' home help for her. She said she had exactly the same experiences I had. She told my mother, who believed every word she said, but when I'd told my mum 6 months before, she told me I was a whining baby.

I don't get local anaesthesia. I have been given the stuff, but I can feel everything that it's supposed to numb.
Knock out anaesthesia isn't fun either. Screwing with my balance is dangerous, even though I'm still not walking far!

Author Topic: Moved GP appt from june 10th to today (Read 398 times)
Cathie
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« Reply #5 on: June 29, 2009, 09:09:45 AM »


I don't get local anaesthesia. I have been given the stuff, but I can feel everything that it's supposed to numb.
Knock out anaesthesia isn't fun either. Screwing with my balance is dangerous, even though I'm still not walking far!

Sorry New, I love getting knocked out. Best lot of sleep i ever get, i always feel better than ever when i wake up - for a while anyway.

Author Topic: Moved GP appt from june 10th to today (Read 398 times)
ohtobehealthy
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« Reply #6 on: June 30, 2009, 03:04:39 AM »

ughhh I hate general anesthesia!! I cry everytime before its given.. lol it goes from sobs, the whimpers to sighs then I fall a sleep and wake up wondering "when are you guys gonna do this allready" only to find out that they are done. heh.  Wink

For me though its mostly because I developed a horrible phobia during the year I was taking my first perscribed antidepressant, paxil. I have a phobia of vomitting. *sigh* never had it till I took freaking paxil for anxiety and depression and that only made things worse... and gave me a phobia to boot.  I have gone to lots of counseling for this because the meds don't work for phobias. Soooo I have done alot better than I used to but I still have a hard time with anything that causes a side affect of nausea and vomitting. Even to this day.... like 10 years later. boo. The surgeons I have seen thus far have been understanding and given me antinausea meds .. the strong stuff like emend and zofran. The kind the chemo patients use but is also used for general surgeries. Ok enough babbling about my poor me lil story of my main and only psych problem I still deal with today.

**Kristin**

Undiagnosed now since birth, born a "floppy baby" with poor feeding and swallowing. Diagnosed with IBS, GERD and Anorexia due to both in 1993. Diagnosed with Anxiety 1995. CFS 2008. Hypoglycemia and Sleep Apnea 2009. Still looking for the reasons... why?
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