Left side of my face has muscle weakness

[ohtobehealthy]

I didnt think my symptom list could get much longer! but here it goes... something I noticed also my left side of my face has muscle weakness. My eye on that side isnt droopy when you look at it but in pictures its droopy from the flash I guess. I noticed on that side that I also can't wink easily nor can I raise my eye brow or curl my lip on that side. Its really annoying...

And for the past few days my skin hurts to the touch. Its sore, everywhere to touch especially my cheeks. It almost hurt to wash my face last night.. and then the skin my stomach and arms and thighs... my neck and feet and head doesnt hurt though. I can barely apply pressure on the skin and its just sore... its happened before making it hard for my husband to even touch me. I tell him "ouch.. my skin hurts" wtf is that?! ughhhh.. and that is pretty much his reaction too.

[Samantha]

Sounds like maybe a nerve dysfunction............ Have you ever seen a nerve specialist sorry not sure of the title for a nerve specialist

[ohtobehealthy]

could be.. i may go that route next. I have this nagging feeling in the back of my mind that this is all perhaps Genetic or inherited. The woman on my maternal side have always been sickly, got epilepsy out of no where had alot of stomach problems.. things like that. We all also have the eye droop. While yes it could have been inherited as a physical trait.. the odd thing about this is the men on the maternal side DO NOT have the one eye droop. hmmmm.... I will keep digging for now.

[Samantha]

Good idea dig up the family history in the hopes something pops up that could help  Do you mention the family history when you see Doctors ? they might pay more attention and not brush you off so lightly .....

[ohtobehealthy]

I had never brought up my family history previously .. and honestly never thought how everything could be related until now. Sooo now I am leaning towards seeing a geneticist.
These are similiar symptoms I share with my maternal side: muscle weakness, epileptic type episodes like auras, fatigue, facial muscle weakness to one side of face, the inability to whistle, difficulty with swallowing, Gastro intestinal discomfort with bloating and distended stomach, hyper sensitivity to light and sound, joint pain and blurred vision and scolilosis.

My grandmother completely lost her sense of smell when she was in her 40's and began to fall alot, also diagnosed with epilepsy of some form in her 70's plus all the symptoms above.. my mother has also all the symptoms above but she has difficulty breathing and has asthma type attacks and heart palpitations and arrythmias.

My mom doesnt want to listen to me.. she thinks all her symptoms come from stress.. as she thinks that for me too. She told me the other day that her boyfreind doesn't like us to talk about medical stuff anymore because "I make her think she has things" wtf!?
So this is really all up to me right now. My persistance WILL presevere. I HOPE. I hope this time.. is the right time. Its been so many years. I understand that whatever I have is not likely life threatening however if I could IMPROVE the qaulity of my life that would be so wonderful.. and if I could help it and know what I could possibly be giving to my children genetically.. all the more wonderful too.

[Samantha]

I think this is a fantastic idea to follow through with  you never know what could happen and knowing what your medical condition is (a name ) might help you on your life path. Maybe even finding ways to eliminate different symptoms.

So I would go full steam ahead with making an appointment with a geneticist.

The only thing that may put a stop to things...........you don't have names for your families health problems, just stories of past family history (on the female side) so that might be an issue. I guess all you can do is try, explain what has occured with the female line (symptoms etc) and see what the geneticist has to say.

There is no harm what soever in trying this avenue 

[kattsqueen]

it sounds very much like hypo-hyperkalemia partial paralysis to me. check out their web sight and see if it rings true for you also. I diagnosed myself with the help of the internet google and ask and my ability to hyperfocus to find my answers (diagnosed with add inattentive)
list of other diagnosis
chronic fatique disorder
fibromyalgia
chronic cervical strain
ankylosing spondylosis
stiffman syndrome
hypothymia
causalgia
generalised anxiety disorder

curiously when i was treated with amphetamines 10 years ago the mental symptoms as well as the pain symptoms improved. i was unable to continue the treatment due to extreme spiking of blood pressure and malignant hyperthermia.. still no diagnosis. every little quirk about me (even my appearance are related to this syndrome and have improved significantly with the use of something as simple as potassium supplements..(specifically andersen tawil syndrome!) Now i just have to convince my doctor to give me a referral to the muscular dystrophy association clinic as they are funded to treat and research this rare disorder!!

katts