Pituitary Gland Tumor

[zophistreet]

Hello....although I am not a undiagnosed person (my mother is), I have read Samantha's? story and felt I need to register and sign-up, and possibly help her........???

I'm from Nashville, TN. "HOWDY YA'LL"!!!

For the past year my mother has been experiencing pain under her right breast, swelling, and pain. She had has numberous procedures performed, blood test, MRI's, cat scans, x-rays, etc: name it, and she has had it! Right now she is on 100mgs. of Lyrica which is helping, and helps her get thru the day for the most part in a bearable state...

Anyways.......from everything I have read, and seen on the net and TV, while attempting to help my Mom find her diagnosis I came across a TV program on the health channel on Undiagnosed Cases......

The lady on the program had suffered for 14 years with pain and weight gain. She was walking with a cane.
She is now 37 years old, and is a attorney on the East coast here in the States.

She had gone to several different kinds of doctors, endo, gastro, neuro, name it and she had been there, all test would come back normal and they would try and tell her to adjust her caloric intake, and she would lose the weight, and the pain she was experiencing was just a secondary due to her weight gain.

At age 23, the lady started experiencing painful menstral cycles, and slow weight gain.
All of her weight gain thru-out the entire 14 years had been around her mid-section, upper back and lower face.
Slowly she no longer had menstrual cycles, and she thought she was pregnant, went to doctor and doc said no.
Anyways, this went on for 14 years, trying to find the cause of her problem, she then went to a doctor in New Jersey??? (I think) he ran a battery of tests, and ordered up a MRI with dye of her Pituitary Gland.

 Lord and behold, she had a tumor, she was operated on, and as the program showed her 3 months later, she was pain free, and about 50 pounds lighter. She was so happy to have her life back.  She looked GREAT!!

With all this being said, I am not a doctor.  I just read Samantha's story on-line about a week or so ago, and felt compelled to register here at her site and possibly "shed" some light on her ailment.
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My Moms swelling is right under her right breast, lower right rib area, and spands around under her right arm, and sometimes works it way toward her back. It seems to get worse during the late afternoon hours. She at that point, if hurting and swelling is bad, just lays on the sofa, with her ice pak, and tries to numb away the pain for a little relief. I got her some ACTIV-ON roll on pain reliever, she rolls it on her ribs, and she says it actually helps.
4 Specialist has told her "4" different things about what is wrong with her. NO 2 doctors have agreed with what is wrong with her.

I told my Mom about this lady I had seen on the Health Channel. Mom has not experienced any weight gain, but, she said she did want to run it by her doctor.

My sister 2 weeks ago, had a MRI done on her, and found she had a tumor on her Pituitary Gland.  She is awaiting the doctor to call and set her surgery up.

There are several different types of tumors and each one has its own unique signature of symptoms.

I hope this rant may help someone with their diagnosis or pain management!!

Regards,
Jack  




 

[Samantha]

Welcome Jack

Thanks for signing up and sharing your story, I hope it helps someone out there suffering from an undiagnosed illness. Unfortunately I've already had an MRI of the brain (not with dye though) and my pituitary was normal. I guess I could ask for another with dye but don't like my chances 

I'm so so happy to hear your mum finally has a diagnoses, I can just imagine how she is feeling right now after such a long time undiagnosed. I wish her and your sister the very best for the new year, this is wonderful years. 

Sammy
xxx

[zophistreet]

Hey Samantha..................

 My Mom still hasn't actually had a diagnosis........4 doctors gave her 4 different diagnosis.
But the Lyrica she is taking does help the symptoms. But she still doesn't know what truly is causing her inflammation and pain. No ONE doctor has actually said this IS what IS wrong with you. They say they "think" this is what is causing your pain.....

 My sister had to have "2" MRI's the first (without dye) showed "nothing" abnormal with her pituitary gland, the second they injected the dye into her IV, and there it was a very small tumor pressing on her optic nerve. Doc said it was a benign slow growing tumor.

 The Show I was talking about on the Health channel with the 37 year old lady, had several MRI's.  But "this" particular doctor she finally met up with couldn't believe  after looking thru her records, that were as thick as a phone book, that no one had given her a MRI with dye after all these years.  He did, and found her diagnosis, and remedy!!

Glad to be here......bless you all, and what you all are enduring!!!  I sometimes think I am more PISSED at my Moms doctors than she is.........

 Take care........... :coolsmiley

[Samantha]

Your mum is so very lucky to have such a caring understanding son. She's the mum and has to apprear strong and tough, but I bet she is on ocassions feeling pretty awful and having you help would be a god send
 

I've started watching some of this series too, and while I think we'd all love to have more tests  (MRI with dye, another CT scan or something) it's very hard to convince doctors to approve because they simply don't believe anything is wrong with us....