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May 22, 2012, 10:52:00 AM
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Another story of not being diagnosed  (Read 357 times)
Newbie
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Posts: 1


Hi all, first I would like to thank Samantha for setting this up. Over the past two months I have worked up a huge amount of frustration and no way to relieve this. Over two months ago I started with stomach pains and by now it has turned into a full blown illness. I am not able to eat without the danger of throwing up, the only way to prevent this is to lie down after eating plus taking anti nausea medication beforehand. I have lost 9 kilo's and I wasn't overweight at the beginning. After these weeks I have added some other symptoms to my collection: blurry vision, feigning, insane stomach and abdomen cramps, headache attacks, itchy rash and of course the weight loss.

A 10 day hospital admittance with loads of tests didn't clear anything, as well as visiting the hospital before and after that. My family doctor is not taking me serious at all and tries to write it off as personal (psychical) problems. Tomorrow we're up for another visit to yet another hospital.

The reason I am frustrated is not even the illness itself, but it's the effect it has on myself and the people around me. My lovely husband is walking on his toes and not saying what he feels or thinks because he doesn't want to burden me. The result was that when I came home from the hospital I found him throwing up and crying his eyes out, out of relieve that the hospital didn't find a terminal disease.

I can't curl up in a corner and cry, that's not me. But I am on the spare energy by now and it's hard to keep smiling. I am so, so afraid that when I stop smiling I'll collapse which is a very scary thought. The only one that I have showed my real feelings and emotions to so far is my little sister. I live in a different country than my family which means I can only speak to them over the phone or skype. In general this is not a problem but right now... argh.

I am getting ready to apologize again to anyone reading this, sorry to burden you, but I guess I shouldn't apologize for once and just let it out. Thank you for reading this, thank you for listening.

Love, a frustrated Cylana


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Newbie
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Gender: Female
Posts: 4


I'm sorry you're having to go through so much pain  Cry
Doctors should just do their jobs properly! Why would a patient be going to hte doctor asking for their help if they werent ill? Why would anyone choose to live this way?! It makes me angry when doctors just assume things that really arent true.
I have no answers for you. But I hear what you are going through. I have been ill for a long time now and know how absolutely horrible it is.
Just try and keep hopeful.
They will find something and you will get better
xx

 Huge Hug


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Group: Administrator
VIP Member
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Gender: Female
Posts: 920

I Will Be Diagnosed !


 welcome to the forum Cylana

I'm glad you found us  Smile all I can say is PLEASE DON"T GIVE UP, go to another Doctor if you can afford to and keep asking for help. Don't feel the need to apologize we all understand how hard it can be when you're in pain
 Huge Hug

Please keep us posted


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Jr. Member
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Posts: 13


Cylana,

I agree with Samantha, if you are not receiving help from your current doctors then it's time to move on. I have gone through several primary care doctors and specialists, and I fear I may have to go through several more to find the answers I need, but despite how your current doctors may be treating your IT IS THEIR JOB TO HELP YOU and the minute I feel I am no longer receiving help, I find someone who seems more willing to do the job they are supposed to be doing.

Just keep telling yourself that there are answers out there. The fact that you haven't found them yet shows a lack on the part of the medical community and is no fault of yours.

Maya


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Newbie
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Posts: 3


Hi- Have you heard of cyclic vomiting syndrome? Hard to diagnose & meds only available in Canada.


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