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May 22, 2012, 10:32:29 AM
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Trying to find the energy to even tell my story  (Read 689 times)
Newbie
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Posts: 3


Have you ever had the day where you are thankful for a forum such as this but do not even have the energy to go through your story again. 

So many doctors... so many tests, so little answers. 

Seven sinus surgeries or various types, 5-10 sinus infections per year, allergy shots for years with no help, joint pain, coughing, asthma, meds, meds, meds, diagnoses given and then taken away.

You have fibromyalgia, no you don't
WHy don't you go see a therapist and a psychiatrist.  (I am you dumb---)
You have Sjogrens... no you don't
You have allergic Fungal Sinustis and your allergies are so severe they are causing the other symptoms - well... maybe we are wrong

Allergic to Codiene
Systemically Steroid Resistant


OUt of sick leave, all that is left is short term disability since I have not been in this job for a year.  But also convinced that the trailer I work in is moldy, so I am only getting sicker.

Today is a rough day.  Narcotics are the other way I am upright.... if you want to call it that.

Newbie, here... thankful for you all.


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Group: Administrator
VIP Member
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Gender: Female
Posts: 920

I Will Be Diagnosed !


 welcome to the forum


Im so sorry for really late reply, I have no time for online activities these days with a toddler to care for and dealing with my own pain. I will reply more indepth when I get a chance, Im glad you found us and hopefully someone can help you find answers too.

 Huge Hug
Samantha



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Newbie
*

Posts: 3


THanks Samantha.

We can now add
We think you know what is wrong with you... you might have Churg Strauss - oops... no you don't.
So now... they want me to head to a rheumatologist again.

High Sed rate, High IgE, High CRP... all else is normal.  Uh huh!

We plug on... just like the little engine that could.

 Confused


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Group: Administrator
VIP Member
**********

Gender: Female
Posts: 920

I Will Be Diagnosed !


"We plug on... just like the little engine that could."
We sure do that's all that keeps us going, a little ray of hope  Smile.

 Huge Hug
Samantha


THanks Samantha.

We can now add
We think you know what is wrong with you... you might have Churg Strauss - oops... no you don't.
So now... they want me to head to a rheumatologist again.

High Sed rate, High IgE, High CRP... all else is normal.  Uh huh!

We plug on... just like the little engine that could.

 Confused



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