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If anyone can offer an insight or ideas or treatment. I'm DESPERATE. Thanks.
I have chronically experienced motion sickness, nausea, lightheaded, eye pressure (which makes me feel sick) for years, and it has become increasingly worse over the last 2 years and most recently becoming unbearable. I have a "funky feeling" at all times in my head, I guess similar to a fog. As I begin each day the symptoms are present and become completely unbearable as the day progresses. The eye pressure when focusing wouldn't bother me if the rest of the symptoms were not accompanying. I have never suffered from headaches/migraines. I don't lose my balance and can walk fine. I do not experience any fatigue.
I have restricted all of my activity due to the feelings I have had. I can no longer mountain bike, play basketball or go to the gym which I used to do on a daily basis
Everything in my head is very sensitive and the following is a list that brings on this "funky feeling" I have described:
Watching TV, reading, or just moving my head, eyes and body- even the slightest amount.
Any type of eye movement whether it's looking at people, driving a vehicle, or trying to look around a room.
These symptoms are present even while being motionless.
Carrying on/listening to conversations intensifies these feelings
Walking and carrying on everyday life activities only makes things worse and at times I need to sit down and stop everything due to the effects it is having on me.
I occasionally see flashes out of the corner of my eyes- some black, some white and some blue.
Speaking makes me feel more sick and lightheaded and adds a sort of pressure to my head, which is very hard to describe.
I have recently visited Johns Hopkins and saw a few neurologists who ruled out everything neurological with testing and various MRI's of the brain and Vestibular work.
I have seen ENT's and have had no luck there, but some sinusitis that was treatable without surgery.
I have seen a few Ophthalmologists and they can't find anything with the eyes.
I've had MRA's done to check the blood flow in brain and everything is fine.
I've had blood work drawn and everything is OK there.
I saw an allergist recently just to rule things out, pretty much knowing that an allergy wouldn't cause my chronic symptoms and she completely agreed. No crazy allergies, anyway.
I saw an orthopedic surgeon the other day because I wanted him to look at some MRI's I had done of my neck in case I had ligament damage or a pinched nerve. He didn't see anything wrong and said the symptoms I have wouldn't be related. I have no neck pain.
I had the MRI's of the neck done because I saw a unique Chiropractor who SAID she found ligament damage in my neck on an x-ray that also showed my upper vertebrae completely out of place. She thought that if she could keep my atlas in place that my symptoms may subside. They never did. She tried for months to keep my vertebrae in place by using a crazy machine, a gun type configuration that compresses air and shifts the atlas in place. It would hold for a few weeks or months and then it would shift out of place. I couldn't feel anything whether the atlas shifted or not and I wasn't feeling any better when it would hold for a long stretch, so I stopped going to her.
I had Lyme's disease testing and, even though hard to detect, the Dr. didn't think I had it or was related.
I did have a car accident around 11 years ago, in which I did hit my head on impact. I started feeling funky 6 months later and have not been the same since. These symptoms have come and gone over the years, although never have gone away completely, and at times have lasted for longer periods; the last 2 years have been the worst ever. I've never had the motion sickness prior to 2 years ago. Do you think the accident may have something to do with this?
Currently I take blood pressure medication, 10 mg of Lisiniprol, 450mg of Wellbutrin to help me cope, 1 mg of Valium when needed and 100 mg of Seroquel to help me sleep.
Doctors have tried multiple anti-depressant combinations in case of some sort of imbalance, but nothing has appeared to make a change.
I am DESPERATE for help. I currently can not live a normal life and feel as though living each day has now become a task that is overwhelming me completely. I'm not crazy, I'm not bringing this on myself and I'm not making it worse.
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