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May 22, 2012, 10:08:21 AM
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worsening/continuing symptom!  (Read 1373 times)

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Gender: Female
Posts: 13


15 months ago before this all stared i was very fit and worked out at least an hour every other day and played basketball on my schools varsity team. When playing on the team i had trouble after every time I would finish running suicide drills. My lower stomach area and lower back would get a stabbing pain and i would be doubled over in a bathroom stall crying trying to hide it from the rest of the team.I honestly felt like i was in labor or something. It was EXTREMELY painful. The type of pain that makes you consider sitting in the ER waiting room for hours. I went to my internist thinking it was a cyst. She pressed down on my ovaries and said i would be " screaming in pain" if it were a cyst. She referred me to a physiatrist saying that, " sometimes pain in this area is actually caused by a back injury." X-rays were taken and the physiatrist said i had " 2 lumbar fractures. One of them is old and healed on its own." She gave me a back brace that i had to wear 24/7, a bone stimulator machine to use 3 times a day and referred me to a physical therapist. I went to physical therapy for three months. The stretches never caused my back to be sore and i could bend back as far as i wanted without pain. This always lead me to think that it wasn't my back..but of course i trusted the drs. After being released from physical therapy i went back to my physiatrist and she said i should be able to exercise lightly again. I was excited to go back to the gym and after jogging about half a mile on the treadmill the stabbing pain came back and i had to hobble to the locker room and call my mom to pick me up, there was no way i could have driven in that much pain. At that point i just had to quit working out. It wasn't worth only being able to workout 10 mins and then having to sit in the locker room doubled over for 25 mins. My mom had a discount car to see a well trained chiropractor who takes before and after xrays. He took x-rays that day and called me about an hour after i had left. He said he reviewed my x-rays and THERE WAS NO SIGN OF ANY FRACTURES! He asked me to bring the x-rays my physiatrist had taken so he could compare them. The previous x-rays confirmed his suspicion! He also showed me the written report. I was SO angry... it read, " patient has possible fractures" on my first visit. My second visit ( about three weeks later, while i was still in physical therapy) read " patient has no sign of fractures." Lately i have just been ignoring these symptoms since they are exercise induced and i have other more severe symptoms, but today my dad commented on how much weight i'd gained...so i attempted to use the eliptical at the gym, and guess what happened? the pain came back. I barely made it to the locker room this time..so tomorrow im going to the gyn to see what she says, even though I've already had an ultrasound of my ovaries from when i was hospitalized.Maybe its something else going on in that area? I HATE not being able to work out.. i hate gaining weight. i used to have anorexia so its really hard to not be able to fit into my clothes. I just keep telling myself you can always work off the weight after you get better, but how can i do that when they STILL don't know whats going on after a yr. and a half? oh and not to mention how frustrating it is to waste money on unneeded physical therapy and renting a bone stimulator! aggressive


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~*slmercer*~
   

Group: Administrator
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Gender: Female
Posts: 920

I Will Be Diagnosed !


Have the Doctors ever mentioned seeing a  Neurologist?  Question just a thought I know the one I seen was fantastic (didn't track down my undiagnosed pain) but did eliminate alot which I found very helpful

Praying things get better for you
 Huge Hug
Sammy


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Jr. Member
**

Gender: Female
Posts: 13


thanks for the suggestion :) i have seen 2 neurologists, one was pretty good and listened to me. He said he wasn't sure what was going on and didn't really have much advice on what to do, but he has agreed to refer me to the chiari institute in NY though for a possible chiari malformation diagnosis. It should take about a month for the nurses to go over the paperwork and talk to the drs. to see if they think it will be beneficial for me to make an appointment.So we'll see, in the meantime im kind of in "limbo" waiting to see what will happen next. I tried to get into Massachusets General before i learned about the chiari institute( he also agreed to refer me there too) but they have been very slow to respond to his calls and our emails, so i guess ill find out soon where im going next Confused


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~*slmercer*~
   

Group: Administrator
VIP Member
**********

Gender: Female
Posts: 920

I Will Be Diagnosed !


Fingers crossed you get in quick  Smile maybe keep calling until they understand how urgent this is for you  Confused
I'll be thinking of you
 Huge Hug

Sammy


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