family and i can no longer handle this...REALLY bad past few days

family and i can no longer handle this...REALLY bad past few days (Read 1137 times)

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slmercer

October 14, 2010, 10:27:16 PM

Jr. Member

Gender:

Posts: 13

I really can't take this anymore. I basically am not capable of doing much and since the drs haven't been able to come up with a concrete diagnosis and none of the meds. i have been on have helped much my dad just thinks I'm being lazy! before all this started I played varsity basketball, went to school ( took honors classes)and worked part time! I AM NOT LAZY! Who would CHOOSE to live like this? Who would CHOOSE to give up college scholarships and CHOOSE to get lost all the time so they can't drive anymore? Who would CHOOSE to forget where they're walking, slur their speech, and look like an idiot because of it? On one hand I feel bad for my mom and dad because they have had to put up with it for so long, but on the other hand I don't feel bad because I really can't help it. I've tried my best to get help. I've been to the hospital for 3 admissions, gotten ECT ( 3 IVs and anesthesia three times a week), taken all the medications as prescribed, gone to daily 4 hr. therapy sessions for 4 months,and even tried working full time! WHAT MORE CAN I DO?! if its making them feel so bad imagine how its making ME feel! Why can't they look at it like that? I already feel bad enough for having to drop almost all my friendships and boyfriend and then my dad has to tell me things like, " you're ruining your mother and i's relationship!" and my mom will say things like, " look at your poor father driving around in a car that has back windows that won't roll up." well i'm sorry i got sick! I'd like to see you try to manage going 24 hrs. in my body! Last night it got so bad my dad threw the remains of his already eaten chicken at me! The good news is a neurologist who studies memory, cognitive and behavioral problems is interested in my case. The trip is going to be expensive though since we live in NC and hes all the way at Massachusetts General Hospital. Also, and I'm sure you've all experienced this, it takes FOREVER for files to get transferred and arrangements to be made. I'm still hanging in there though! Sorry for all the ranting!

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~*slmercer*~

Keilia

October 15, 2010, 03:52:55 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

Hi Slmercer,

I am so sorry you are going through this. I have been there, most if not all of us have. It is bad enough to be sick, but to have your family doubt you...is horrible =(
Huge Hug

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~Keilia~

slmercer

October 15, 2010, 01:28:50 PM

Jr. Member

Gender:

Posts: 13

yea its terrible to be sick his long, and have no one listen to you or believe what you're saying. All they say now is, " we have to follow what the drs. say." Well look how far the drs. have gotten me in 15 months Confused

and its even wose to have your best friend say " i think its all in your head." Of all people you would think your best friend could see the sudden change in you.

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~*slmercer*~

Keilia

October 16, 2010, 09:57:41 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

"It's all in your head" seriously grates on my last nerve. I have been hearing that since I was 6. Turns out, what I have is very likely responsible for me not being able to hold me urine when I was a kid. I mean like 2nd grade and still wetting my pants kind of thing. BUT, I find that making a joke to people tends to make them stop. Now that I know my brain is not staying put in my skull, I tell them that I am just so smart there is not enough room in my head. Or I also say, if it were all in my head then there wouldn't be a problem now would there be? hehe. But yeah we do understand. **HUG**

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~Keilia~

slmercer

October 18, 2010, 03:03:56 AM

Jr. Member

Gender:

Posts: 13

yea i know what you mean by it getting on your last nerve. I can't stand it when i overhear people saying " i've never heard of anything like that happening before! shes just procrastinating!" and wow i'm surprised people said that pants wetting at that age was in your head! If anything that should be a sure sign that something is going on! Yes, making a joke about it has gotten me out of quite a few awkward situations :) i'm glad i'm not the only one going through something like this!

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~*slmercer*~

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