Multiple Sclerosis, AOSD, AS, HS, Chiari Malformation, And Jaundice

Multiple Sclerosis, AOSD, AS, HS, Chiari Malformation, And Jaundice (Read 4492 times)

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Keilia

October 30, 2010, 02:33:28 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

Yup. I agree. Fully. I am not quite sure what I am going to do about the past docs - and I had a LOT of MRI's done. And I have been suffering for 4 years now when I could have been better LONG ago.

And yes you can be infuriated. So am I. Huge Hug

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~Keilia~

Samantha

October 31, 2010, 04:11:54 AM

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I Will Be Diagnosed !

I don't know about in the USA Keila but here in Australia there are not many qualified to read MRI/CT/Ultrasound etc.........therefore alot of important Medical info is missed, sorry I know it doesn't help your case Sad

but way too many rely on machine reports instead of Medical knowledge (too many interested in making money and not in it for the right reasons)

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Keilia

November 02, 2010, 12:52:50 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

We have radiologists EVERYWHERE.And they are medical doctors, too So it should not have been missed when I have had over 20 MRI's from Sept 2006 to now. Huge Hug

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~Keilia~

Samantha

November 29, 2010, 02:18:13 AM

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Posts: 920

I Will Be Diagnosed !

Think positive for the future and try not to dwell on past Doctors

I know it's hard but the stress and anger it brings is no good for your health now......
You've got good Doctors now by the sounds of it so let us pray they help your pain

Huge Hug

Sammy

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Keilia

December 01, 2010, 12:09:01 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

You are so right Samantha =) The past cannot be changed, and I make my own future. My docs now are incredible....=)
Huge Hug

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~Keilia~

Samantha

December 11, 2010, 04:00:57 AM

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Posts: 920

I Will Be Diagnosed !

wow incredible hey Big Grin

that's the best news I've heard Keila wish I could find an incredible one too

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Keilia

December 15, 2010, 05:20:50 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

I wish you could too! Lord knows we have all put up with some doozeys!

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~Keilia~

Keilia

February 02, 2011, 02:19:36 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

2nd HS surgery coming up Feb 15. Cleaning up 3 incisions that healed all messed up because of infection. Also getting rid of a few new HS lesions that have popped up. It will not be nearly as extensive as the first one was though, and hopefully not nearly as painful.
Huge Hug

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~Keilia~

New28

February 03, 2011, 09:16:29 AM

Sr. Member

Gender:

Posts: 339

When all else fails, play dead!

Infections are so annoying aren't they? New lesions...better then what you did have honey. I am so jealous, you're gonna be fine!

It's not gonna be so bad, at least this time you know what you're in for and can mentally prepare for it.

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Samantha

February 08, 2011, 07:10:31 AM

Group: Administrator
VIP Member

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Posts: 920

I Will Be Diagnosed !

Going to be a little longer before full recovery Keilia but Im thinking end of 2011 will see you feeling a lot better (I pray anyway

) thanks for the update
Huge Hug

Sammy

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ohtobehealthy

February 16, 2011, 08:26:57 PM

Sr. Member

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Posts: 263

Sammy! Keilia ! New! its been tooooo long. I have missed you so!! :D Kelilia !! oh my dear... i am so sorry all that you are going through but I am very happy you finally got a diagnosis. We need it. So we don't feel crazy... and you are not crazy for sure! i hope things start to get better for you! ! Huge Hug

Kristin

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**Kristin**

First Struck with Anorexia on and off for about 6 years beginning in 1993. 1995 Diagnosed with GERD, IBS, Anxiety. 2006 Diagnosed with CFS, 2009 Diagnosed with Sleep Apnea and Circadian Rhythm Disorder and Hypoglycemia. 2011 Diagnosed with Vitamin D Deficiency and Hyponatremia. But... why?! I think I am one step closer to that answer ON my own. Your are your own advocate for your health! No one can tell you how you can or can't feel!

Keilia

March 02, 2011, 07:05:47 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

I was just thinking about all of you =)

I hope all are doing well. This surgery has actually been worse to recover - I am in so much pain, it is agony. Open infected incisions SUCK.

But this is part of the process of recovery, so I will be alright =)

Love to you all =)

K
Huge Hug

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~Keilia~

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