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Hello anyone reading this i just joined, and have been, like many of you doing the frustrating rounds of doctors and specialists to no avail. I am perfect on paper! each time i am tested for something the doctor will deliver the news expecting me to be happy and relieved that nothing has shown up. But instead i am heartbroken. My symptoms have been very vague and intermittent since i was a teenager. Some doctors said it was polycystis ovary syndrome, some said it was not. When i had my 2nd daughter 2 years ago thing took a turn for the worse. 6 months after giving birth i still felt wrong in my abdomen like things had not healed properly. since then my symptoms have presented as follows.
- Massive swelling of knees and weakness in legs (not relieved by physiotherapy)
-VERY bad lower adbominal pain and swelling of inguinal nodes, paticularly on my right side (nothing but swollen lymph nodes, and very slightly enlarged ovaries showing on ultrasound)
-Bad pain in all joints in my body (negative to rhematoid factor)
-Throbbing and swelling of limbs as though there is TOO MUCH BLOOD in them
-pain in lung area
-intermittent Nausea (no gastrointestinal bugs)
-severe fatigue
-persistant sore throat and constant swelling of lymph nodes in neck
-crazy menstral periods and infertility (although i am definetely not trying to concieve)
-lately i've been very foggy headed, forgetting everything, feeling confused about simple things.
-failing immune system, for six months i have been attacked by every cold and virus i have come into contact with, and my body does not seem to have the energy to fight these without antibiotics. The longest i've had without a cold or virus is one week!
Although i have a family history of autoimmune disease doctors have not taken any of my symptoms seriously whatsoever. They've said my problems are caused because i am a tired, stressed out, underweight mum. In fact my bad health has MADE me tired and stressed out, and i have ALWAYS been a tiny person, actually i have put on 6 kilo's. I need help as my family is suffering, my marriage is suffering and my work is suffering. I feel like i've become a burden on those around me. I am trying not to be a victim i take vitamins, immunoglobulin supplements, chinese herbs, i have a very healthy diet, do not smoke drink or do drugs, and have accupuncture once a week. I should be the healthiest person in the world.
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just because doctors give up on you does not mean you should give up on yourself!!
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