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New to the site, can anyone help?  (Read 1193 times)

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Me and my dog


Hey everyone. I've been having problems for little less than a year now, and was curious if anyone has experienced similiar problems, or maybe has any insight, advice anything. I'm not sure what else to do.
My name is Cait. I'm a 21 yr old female. I suppose all of this started out as migraines. I've had them since I was in my early teens, and theyve never gone away. Theyre very frequent and very severe, often dibilitating. I've learned to live with them, I guess. Just pop and advil everytime I feel one come on, and 8/10 times it does the trick. And mind you, I don't know if any of this is linked I'm just listing the series of events here.

  Last October (2009) I had gone to a concert, drank quite a bit of beer, not to the point of sloppy-drunkness, but I had a nice buzz, and I did eat a big meal before I drank. The next morning, I ate some breakfast, and went outside for a ciggarette. All the sudden I was walking, but I was sort of zombie-like, slipping out of consciousness and could feel my legs wobbling like they were going to give. I guess at that point I hit the ground face first, I only remembering pulling myself out of it, and as I was slowly regaining consciousness I could feel my arms shaking. I remember telling myself to open my eyes and get off the ground, but I couldn't. It was like I lost all control of my motor skills. I finally was able to get up went to the hospital thinking I had a seizure, long story short they did a cat scan of brain, ekg, chest xray and found nothing. Didnt do an EEG (should have) but I didnt. I had been fine after that so I let it go. In early march of this year I was at a friend's house, felt a bad migraine coming on and took 2 aleve. About an hour later I was driving back to my house and all the sudden this strange sensation swept over me. My heart started pounding to the point I actually thought it might explode, I felt like I was gasping for air, I got this tingling sensation in my whole face and in my palms, my nose felt like it was burning like if you get water in it, and felt almost dizzy, sort of. I pulled over and had someone get me. Needless to say, I havent driven since. Ever since that 'episode' it did something to my eyes, my vision hasnt been the same since. I always feel off-balance, but not to the point of falling. Sometimes I will bump into things, other times I trip over my own feet. I get this horrible feeling in my chest like its caving it, often at night. I occaisonally get these attacks now ever since that first one. (I have never had anxiety attacks before this) but I am mostly concerned with my eyes. It almost feels as though there is film over them? Like my vision is very blotchy and sometimes things appear to be moving when theyre not. The visual hallucinations are more frequent, sometimes even without migraines now, like a flicker of light out of the corner of my eye, or halos around lights. I occasionally get blurred and double vision when I am up late (as I cant seem to sleep at night anymore). I went to my dr, he said ALL of this was caused by depression. Which I cant seem to believe. He put me on 40mg propranolol, than 80mg which I am currently on. It helps with the severity of the migraines but not the frequency. I than saw an ENT dr thinking I could have vertigo. He says no and puts me on an allergy medicine! Finally my primary dr orders me an MRI w/o contrast. They said they MAY have found what appears to be an infection in the brain, but cant be sure. Well thats what the radiologist who viewed the results said. The dr handling me said no, but she gave me these antibiotics just on the off chance. And 25mg meclizine. Well its been a week and not only have I not felt any better, but in fact I'm feeling worse. My eyes are worse with this 'scribbly' sensation like theyre moving all around. Like googly eyes sort of. I get eye pain,  My neck gets stiff and often hurts for no reason out of the blue, if I'm laying down sometimes I will get this random cramp in my thigh. And its now been over 3 months that I havent driven and cant do anything. I have become a zombie. I'm forgetting things easily, Im losing perception of time and all around feel as though I am going crazy. Please if this sounds remotely fimiliar to anyone, help. I should be out having fun with my friends, and instead I am spending all my time in a bed. Its miserable and the DRs do not take me seriously. Im not sure what else I can do it feels hopeless. And I'm not sure if this matters, but when I play that video game rock band and than turn away from it, it makes everything look like the screen, like that motion it does, almost like a lava lamp. Elevators do the same thing, when I get off them, I still feel like I'm jerking upward as if I was still on it. I'd appreciate any help or advice or anything I can get, as I have come to a dead end. Cry Thanks so much in advance.


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Group: Administrator
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I Will Be Diagnosed !


 welcome to the forum Cait

First thought that popped into my head was perhaps you've had your drink spiked ?? and this could be causing all these symptoms.....wild guess but you never know   Confused
Did you have an MRI of the head ? and are you currently seeing a specialist ?

I don't know if I'll be much help.............If I think of anything else I'll be sure to post
 Huge Hug
Samantha



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Posts: 5


This does sound quite frightening, especially to be w/o a diagnosis, leaving you thinking that you're going crazy.  My problem is much more mundane, just some sort of undiagnosed muscle/neck/back problem, so although I've had the problem much longer, I don't think it's nearly as scary as your problem. 

This ailment does not seem familiar to me, so I can't really be much help...but I can think of a few things to suggest:  Think about ALL the medications, OTC and RX, that you'd taken before this started, ESPECIALLY if there were any new medications.  Also, be sure to come clean to the dr about any drugs that you may have taken (although I don't know of many drugs that don't hit you until you wake up the next day), there could have been some sort of reaction.  I will say that when I play Guitar Hero for a long time, I also still see the scrolling screen when I look away, but not for very long.  And it seems like the more tired you are, the longer you see the scrolling screen, so that might be related to your inability to sleep.   

If you're pretty sure your symptoms are something, get a 2nd opinion if your main dr says no, like w/ the vertigo, maybe get a 2nd opinion before discarding that diagnosis (if you can afford it- I know how expensive all this dr shopping can be).

Also, I'm a little concerned about the stiff neck thing.  That can be meningitis, which is very very serious, and it's most common in your age group, especially if you've been around a college campus.  I would think your dr would have thought to test for that, but I would specifically ask to be tested for that, b/c it can end in amputations and/or death.   

Aside from that, I'd say just keep a detailed log of all your symptoms and keep researching it on your own while still working with your doctor.  And keep your chin up...try to pray and have faith that you will be all right.  I wish you all the best. 


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on a quest for health


I think if you had menningitis you would be dead by now. I watched an episode of mystery diagnosis last night and this woman had symptoms almost identical to yours. Not trying to freak you out but it turned out to be a brain tumor. If i were you i would be getting more scans on my head and several opinions on those scans. I have suffered depression and also anxiety attacks. In my experience it is NOTHING like what you are describing. I hope you find some resolution soon to your problems as they seem severe scary and debilitating.   


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just because doctors give up on you does not mean you should give up on yourself!!
   

doctors please diagnose
Newbie
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Gender: Female
Posts: 2

undiagnosed lady


I have the same symptoms that you are having and i have a benign brian cyst so yeah you shouls seek a neurologist
and see what they have to say and you might be having simple partial seisurez because our symptoms are soo alike and that what my doc told me  i was at my 20th bithday party drinking and after that i start having the same symptoms as you


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MIss peaches
   
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