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February 07, 2012, 08:06:30 AM
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trying not to be discouraged  (Read 1089 times)

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Gender: Female
Posts: 263


So since this summer I have been seeing the endocrinologist. We got a few abnormalities but the only way to get any diagnosis' we needed to do more procedures and testing. I did the glucose tolerance test showing reactive hypoglycemia as I knew allready. I got a blood work up for antibodies for thyriod problems.. that was normal. The metabolic panel of course.. normal... and then last week I got the insulin tolerance test which would show if I had a growth hormone defiency or problems with my cortisol... well I went to my appt today and THOSE CAME OUT NORMAL.  Cry aggressive *sigh* so...  I guess from here... I am to drastically change my diet since blood glucose levels can effect the entire body and well being. So I go to a dietician and start this new diet and stay on that for 6 months and then return the the endo in June. He said it could be the difference or maybe we could go back and retest some other things in 6 months but he first wants to help alleviate the blood sugar issues and who knows maybe I will feel better? so I guess it was not a total waste. I have been officially finally diagnosed with Reactive Hypoglycemia with possible pre diabetes. with the endo...   
So i dont know where to go to now.. I have been officially to 4 different GI docs who have done test after to test to diagnose me with GERD and IBS, I have been diagnosed with sleep apnea from my family doctor and a sleep study, reactive hypoglycemia with the endo, I have been to 2 nuerologists, ruled out MS and many others, had a few abnormal readings during EEG. Been tested for Lupus, lyme disease, been to a cardiologist, had a few EKGs, 24 hr heart monitor, all normal... So.. I guess what that leaves is a Rhuemy. I have not called Doctor Rominick yet, but I think I will tomorrow. I am having headaches in the same place over and over again. I thought the jaw pain was from the fact i needed a root canal but after the root canal   I am still having the jaw pain with headache and muscle tendernes.     Trying not to get too down and out, atleast something was found. I do have blood sugar issues..but why?


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**Kristin**

First Struck with Anorexia on and off for about 6 years beginning in 1993. 1995 Diagnosed with GERD, IBS, Anxiety. 2006 Diagnosed with CFS, 2009 Diagnosed with Sleep Apnea and Circadian Rhythm Disorder and Hypoglycemia. 2011 Diagnosed with Vitamin D Deficiency and Hyponatremia. But... why?! I think I am one step closer to that answer ON my own. Your are your own advocate for your health! No one can tell you how you can or can't feel!
   

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Gender: Female
Posts: 263


as i have thought more than once.. I thought for sure that we were on to "something" that I was getting somewhere but.. nope. The firmiliar dissapointment yet again. Its funny too because I honestly didnt get too upset when he said the results were normal.. its what I expected honestly.

My nuero from swedish had said she wanted me to get a full work up with an endo and after that if everything was normal to come back and we would start with me staying in the hospital for 2 or 3 days all hooked up to all sorts of wires to read brain waves for epilepsy etc... and go from there or I could see a Rhuemy.. I have not yet and have strange symptoms of headaches with inflammation of muscles.. hmmph. I go back to my pcp tomorrow , he has been giving me injections of vitamin b12.. still tired all the time though. Will discuss I guess where we go next.. because I am lost...


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**Kristin**

First Struck with Anorexia on and off for about 6 years beginning in 1993. 1995 Diagnosed with GERD, IBS, Anxiety. 2006 Diagnosed with CFS, 2009 Diagnosed with Sleep Apnea and Circadian Rhythm Disorder and Hypoglycemia. 2011 Diagnosed with Vitamin D Deficiency and Hyponatremia. But... why?! I think I am one step closer to that answer ON my own. Your are your own advocate for your health! No one can tell you how you can or can't feel!
   

Formerly Undiagnosed
Sr. Member
****

Gender: Female
Posts: 455

Told You It Was Not All In My Head!


Kristin -

When you see a Rheumy, see Dr. R whose info I gave you. She is ~incredible~ as are her nurse practicioners.

 Huge Hug Huge Hug Huge Hug


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~Keilia~
   
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