New Flare Up

[Keilia]

Well a new flare up started. This seems to be the worst one yet. My fever keeps spiking to 105. (f). My throat is killing me, thank god for robitussin. This is right in line with the possible diagnosis of still's disease. Ugh =(

[Keilia]

It's Pneumonia! AGAIN! Not in the hospital yet though!

[ohtobehealthy]

oh no !!!  not again Keilia... I hope that it doesnt get you too down this time and you can recover quickly! 

[Keilia]

Its a wierd pneumonia. No idea how I caught it. Instead of being in one or two lobes, its small absecess all over my lungs. Saw family doc today. Am on very strong antibiotics, and oxy for the pain. As long as I stay doped up, I'm ok. My oxygen is still good! My fever however keeps jumping up to 104-105.  That could be the stills, the pneumonia, or both. So, we shall see. If I end up back in the hospital, and if I dont have internet acess, I will have hubby post again .

Doc is rightly so, concerned about WHY I would be getting pneumonia AGAIN, and neither time did it come from any other respiratory condition. So, Rheumy and family doc are monitoring me closely. Its so refreshing to finally have doctors who CARE!!!!!

Some of my milder but annoying symptoms are disappearing - or I dont notice anymore, not sure which. But other than the pneumonia, I am feeling somewhat better. I am now able to clean house every day, whereas before I was stuck in bed 24/7.

 

[ohtobehealthy]

That is very nice to have doctors that care.
Being that my endo had really no bedside manner I could tell that he felt I was telling the truth that stuff was not in my head. So he said to me. "Sometimes things do fall through the cracks.. so since you have the blood sugar issues we are going to put you on a strict diet for 6 months, I want you to come back to see me then... you may notice a huge difference... if not then we will start from square one again for you"  or something like that. I am sure those werent his EXACT words but... close enough.

I am planning on calling Dr. R tomorrow.... I am so glad though you are not stuck in bed all the time anymore. That is definately an improvement! but eeek try to keep that fever down.. thats horrid! take care of you! I am very happy that a diagnosis maybe coming to you soon... you are on your way to the care you ever so need and deserve and that makes me so happy for you! I am hoping that 2010 will be a better year... for us all. 

[Keilia]

Oh HUG Kristin!!!! I am so glad your Endo believes you. That is half the battle!!

2010 will be better for all of us. My new years resolution, other than losing weight, is to be diagnosed.
 

[Amberr]

Hope you are getting better,  . I think you share the same resolution as a lot of us on here, to be diagnosed, hope you are not doing to badly and the Dr's a listening, i often wonder whether Dr's were actually born with ears and hearts it could be debatable :P You are all right it makes the world of difference when you actually have a health care team that care about you, after all they are what stand between us and the life we all despratly want!
x

[Keilia]

eh, had round 3 of pneumonia again..prob gall bladder out soon...got some medical MJ so I am good for a few weeks now. SOOOO good to be able to function! Ordered a tempurpedic mattress so hopefully that will hep with the worst of the hip and back pain.

[New28]

Oh Keilia...the hip pain is the pits isn't it!

[Keilia]

The hip is the worst of all. The MMJ helps it, so I have been grocery shopping 2 weeks in a row now - which is quite an improvement!

[New28]

I'll say, you're definately on the up Keilia!

[Keilia]

Doc put me on Planequil....I think thats how you spell it....that plus the medical pot has made me SOOOOOOOOO much better!