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February 08, 2012, 04:57:13 PM
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My illness story....  (Read 1169 times)

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Posts: 40


Hello

I am 22,new here and I want to firstly great you all... Huge Hug

I wanted also to say that I have been examined recently and my organ functions are very good,also most blood values, except for leucocytes ( a bit elevated, about 11000 which is "normal" in my case and always in that range.)

My story begins very early with very unspecific things which don`t make pains but are a bit strange,so I think that it is rather some kind of birth defect in my case.

I recognized very early that the fingers of my right hand looked  different from that of my left (nobody in my family has this too),especially the fingernails look a bit different and skin is also thickened on my fingers in general.
my fingernails themselves are fastly growing,irregular and sometimes easily braking.
They have kind of purplish colour and underneath them i often have so-called nail roots which heal very badly and the tips of my fingers aré also redder than the rest of the fingers. Confused
My knee wounds from child days has also developed scars and strange knee pigmentation until today ,although they were always healing normal when I was a child.

I had also a tooth defect, which means that there were 2 adult teeth missing, they just didn`t grow out.

I have always been a bit dark reddish at my cheeks and my face always hade a slightly strange pigmentation,but it has never been very conspicious and I have a bit too much hair at the forehead-ear region,also at the arms and legs.

There weren`t any other problems with the skin but since summer two years ago i recognized a strange allergy in springtime and summer but I didn`t find out against what i am allergic.

It is not a bad skin disease and rather mild,but there are tiny pustules on the back of the hands, on the arms and sometimes on the feet which itch and also burn a little bit.
usually they heal after days, but this summer i recognized that they are some pigmented scars from the rashes.They are not big and not many but I find it strange although,also my skin got dry by the time.

Since childhood I suffer from chronic mental problems like ADHD-like symptoms,anxieties and sometimes I also live a bit in my own world
I have also been plagued by obscure neurotic disturbances,sometimes I have obscure interests but I always knew that I was different (What isn`t the case in general with someone mentally ill and not diagnosed).

Today I also have problems with motivation,coming out of my "world",depression,mania,mild derealisation,childish behaviour and sometimes even mild psychotic thoughts.

Sometimes deep depression comes over me very quickly and withouth reason, lasting only few hours and I also get frustrated very easily,this year hot summer days made my head depressed and melancholic.
I often feel like a slave of my head but my problems,especially with depressions and troubles concentrating have also a physical feeling ,like blockades in my head or tiredness.

I have always had many nightmares or totally obscurre dreams and often troubles with insomnia,it is better for me going to sleep very late early in the morning and sleeping long.

Since I have gotten my period  I get my menstruation only every six weeks,sometimes it failed completely for two months and doctors couldn`t find an explanation but hormonal troubles.
I have also bad PMS with personality changes,hysteria,sometimes ther is also a strange burning pain in my bile or pelvic bone pain,moderate nausea but without vomiting accompanied by tachycardia (but with normal diastolic and systolic pressure) and feeling hypoglycemic easily,excessive food cravings,obstipation and sometimes bad migraine days.

This happens to me between one and two weeks before the period starts and then the endometrial pain only lasts the first two days of my period like in "normal women".
My menstrual bleeding amount itself is normal.

For more than three years I sometimes to often felt hypoglycemic generally, when not eating for 3 to 4 hours.I got dizziness,mild nausea,a feeling of weakness and hunger which led me to develop a panic disorder for more than a year.

There is also another kind of dizziness which doesn`t affect the cardiac system but only the brain and nervous system, it is like getting confused,getting slightly respiratory problems and difficulties with swallowing,muscle weakness and sometimes also kind of short absence, being lost in daydreams or a the feeling that everything is so intense

I am very lucky that my problems have never gotten really worse, although I have sometimes felt like dying when hypoglycemic (but amazingly the blood sugar turned out to be 80 to 100 in such situations).

Hypoglycemic feelings and/or tachycardia are the two conditions which make me panic,also my normal pulse rate is often between 90 and 110 (which I luckily don`t feel most of the time) Smile


I have been checked for diabetes,addisons and cushing disease,thyroid disorders,hemochromatosis,liver and kidney diseases,neurological disorders and even gout.
All with negative results.

Doctors often said it is all psychosomatic but I don`t believe that my head is tricking every physical symptom, because I have no really bad emotionally situations or traumatas experienced.

As I said I am glad that my symptoms are by far not the worst and I have never been to hospital e.g for my pulse rate, but I sometimes have the unpleasant feeling and a little fear that one day some serious illness may execarbate... aggressive

Thanks for reading and posts   Wink


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Jr. Member
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Posts: 40


I also wanted to add that there are also no weight problems in my case,I am rather a tiny person (5..4 feet "small", 52-53 kg ), although sometimes eating a lot of small portions through the day (can`t eat too much loads of food because stomach is easily full).
Weight changes are also rare and low and I am neither over- nor underweight.

And often I have strange experiences before falling asleep,I get short pseudohalluzinations which are in my head,short-wake up nightmares or sleep-wake confusions before falling asleep.

And of my many blood tests I hav done the last years, two had erythrozytes in lower to middle numbers within the reference values.

Bacteria or viruses also weren`t found.


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Sr. Member
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Gender: Female
Posts: 339

When all else fails, play dead!


I don't know...I really don't.
I also have these peculiarities, I put them down to life. I graze during my days, I sometimes have had problems motivating myself to do things, it takes ages to get to sleep, and when I did I woke up from REM 2 or 3 times a night,  my knees and elbows still have purple 'battle-scars', and I could change from massive amounts of energy to none in a matter of seconds.

It may be a sign that something in your life is out of whack, it could also just be life. These symptoms are generalised, too general to diagnose. Enjoy your differences! Life'd be incredibly boring if we were all the same!


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Jr. Member
**

Posts: 40


Hello New

Thank you for your post!  Smile

This scars from sleeping I also have many often and sometimes my skin begins to each and develop pustules there, but they are not as strange as these many allergies I have gotten the past few years.

When  preparing to sleep I also sometimes wake up and it feels like getting no air to breathe, but I know that this problem is common also in others.

You may be thinking that it is all in my head, but I don`t believe there is a psychosomatic explanation for everything I feel and experience!

I know that my problems are not as worse as yours but I don`t consider these hypoglycemic feelings and the neurological problem I have gotten as
normal and it is bad for me too.

And you should always be cautious if you have many things changing on your body especially when it happens over shorter periods, many cancers in early stages have been negligected (although I don`t believe in having cancer), there are also things like lupus eryhtematodus which begins slowly.



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Jr. Member
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Posts: 40


I wanted to write "itch" instead of "each" in the upper section.

Sorry for my tiping  Wink


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Group: Administrator
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Gender: Female
Posts: 921

I Will Be Diagnosed !


 welcome to the Forum

Wow you have a large list of symptoms  Sad which would be very hard to diagnosis  Cry
Out of all these (sorry might be hard to pick ) but which one/s bother you the most  Question I'm not sure what tests/procedures you've had but maybe look at each symptom separately... I wouldn't know where to begin Trancy I'm stumped for ideas on how to help

I'm glad you found our forum though and maybe someone will be able to give more clues into all these symptoms
 Huge Hug
Sammy


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Jr. Member
**

Posts: 40


Hello Samantha!!

Thank you for your nice welcome!  Huge Hug

I will read your story more precise soon, but at the moment I am a bit tired... Smile


Yes there are many symptoms but luckily they weren`t be too serious by now....

The most bad things are the hypoglycemic/cardiac/neurologic-like  problems, pains aren`t chronic and more moderate than unbearable.

I think that the idea with the list is a good one, I will do it soon and probably I do some pictures of fingers,parts of my skin in here.

I have just read another story in here with similar problems at the fingers.

Yours
trancy   Smile


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Sr. Member
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Gender: Female
Posts: 263


Welcome Trancy

You sound like me.. well the hypoglycemia/cardiac/anxiety stuff..

I too am 5'4'' and always had a problem gaining weight, have had a ton of stomach issues and my stomach and throat feels full very fast. I cant eat big meals because of that and hypoglycemia. I get "episodes" I like to call them.. where I feel EXTREMELY weak, nausea, increased pulse rate, heart beating out of my chest... yet... i feel sooo tired like I need to sleep because I am so weak EVEN when I eat. I can eat a larger meal and an hour later feel completely out of it, confused, slow motor skills like everything is going in slow motion yet my heart is beating so fast.

Many doctors told me it was also anxiety or psyhcosomatic.. I tell them I wish it was anxiety then maybe I could wake up more when this happens . All my blood work has been good .. some things off here and there.. I do believe my luecocyts have been elevated too on a few occasions.

I have been to a nuerologist that ran tons of tests including an EEG where there were a few abnormalities however she didnt really feel i had epilepsy yet but me on anti seizure meds anyways. Those were awful. I also didnt feel that was the whole story...

Now I was tested too for addison's cushings and thyroid which were negative ... I had elevated cortisol but was told it was from "stress"..you said you were tested for these too.. did you go see an endocrinologist for these or just a family doc??? I would suggest seeing a endocrinologist if you have not...how was your growth rate as a child??? do you tend to be tired and lethargic all the time even after sufficient sleep???  



I am tired even after sleeping 8 hours and always super tired in the afternoons yet can't sleep at night for nothing!



Welcome to the forum btw! hope you find answers soon.. we are all looking for them here so your not alone! hang in there!




 to


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**Kristin**

First Struck with Anorexia on and off for about 6 years beginning in 1993. 1995 Diagnosed with GERD, IBS, Anxiety. 2006 Diagnosed with CFS, 2009 Diagnosed with Sleep Apnea and Circadian Rhythm Disorder and Hypoglycemia. 2011 Diagnosed with Vitamin D Deficiency and Hyponatremia. But... why?! I think I am one step closer to that answer ON my own. Your are your own advocate for your health! No one can tell you how you can or can't feel!
   

Sr. Member
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Gender: Female
Posts: 263


ugh yah forgot to copy and paste stuff so that post got messed up.. what I wanted to say at the end there is welcome to the board! there are many here that understand what you are going through! keep your head up!


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**Kristin**

First Struck with Anorexia on and off for about 6 years beginning in 1993. 1995 Diagnosed with GERD, IBS, Anxiety. 2006 Diagnosed with CFS, 2009 Diagnosed with Sleep Apnea and Circadian Rhythm Disorder and Hypoglycemia. 2011 Diagnosed with Vitamin D Deficiency and Hyponatremia. But... why?! I think I am one step closer to that answer ON my own. Your are your own advocate for your health! No one can tell you how you can or can't feel!
   

Jr. Member
**

Posts: 40


Hello Kristin

How are you today? Hope you are fine.   Huge Hug

I was also a bit small at my birth, 47 centrimeters and 2750 g (sorry for the European formulas but I don`t know the values in feet)

I came only 10 days earlier, but that was not pathological and I was also a total healthy baby, the pregnancy was also not complicated and I came very fast.

As a child I was also healthy most of the time although I was a little bit (but not extreme) underweight, but sometimes I had problems with obstipation and the chronic psychological things like lack of concentration (although being talented at school),strange ideas,...

Til the age of 12,13 I was normal to slightly over the average height, then I stopped growing at the age of 13, one year after I have gotten my period.

After years then my other problems came...




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