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Hi. I'm a 41 year old male in Canada and I also suffer from weird symptoms that have yet alluded all of my physicians. I have been investigating this for over a year and am baffled that I cannot find one other person with the same/similar symptoms. I can't be the only one?
Current Symptoms: Achy sore legs (feels like I have run a 5 mile marathon - all the time) and really sore muscles/tendons in my upper buttock area. In addition I have periodic right facial nerve burning and also in my right arm. Bad fatigue and lack of energy are a huge issue for me as well. I go through episodes where my symptoms are worse and during those times I am also nauseous and feel generally unwell. The buttock pain seems to be the worst. For a two month period I had to sit on a donut cushion and ice my backside constantly. I thought I was going to go out of my mind from pain. My quality of life is almost non existent. I do have (very few) remissions and get a day or sometimes a week where the symptoms are almost gone.
Symptom History:
In 2006 a two week episode of the symptoms occurred. (Achy legs, sore buttock area and extreme fatigue/malaise) I was in Mumbai India on business and was hospitalized, pumped full of Anti Malaria meds and antibiotics and made a full recovery. 6 months later I had another "attack" and was sick for two weeks then fully recovered on my own. In India no doctor could provide a diagnosis.
8 months go by and I'm back in Canada and get another attack - down for two weeks and fully recovered on my own. Over a year and a half goes by and I am playing a crazy, insane game of tennis and I woke up the next morning with these mystery symptoms in full bloom. This time they do not go away, the stay and get worse. Achy Legs/buttock area, malaise/fatigue, and these waves of weakness where I thought I would pass out. Oddly these waves would come on three or sometimes ten times a day and would have the blackest mood affect on me. As soon as the wave passed...the dark mood would lift as well. On one day burning nerve pain shot up my torso into my face and up my back into my skull. I was so frightened and was sure that I was going to die. I could not walk drive or even really take care of myself.
That stage was a year ago, I am much better now comparatively speaking...but still suffer from the current symptoms I mention above - which are debilitating enough.
I have seen a rheumatologist twice, 3 neurologists, 1 Tropical disease specialist, 1 internist and every holitic/natural option there is out there. In addition I have had every blood test they can think of and have had an MRI of my head, spine and pelvic area. Heavy metal testing, Dna, Anti dna and all of the neuro tests that they could think of.
I have had three ELISA Lymes tests all negative. Sent my blood to Igenex for a Western Blot for Lymes and they sent back very bizarre results that I now need to go back to Infectious disease to interpretation.
So, that is my story and my life at the moment. Anyone have similar symptoms or ideas?
Thanks for reading.
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