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 October 05, 2009, 10:40:04 AM
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Formerly Undiagnosed
Sr. Member
Gender: 
Posts: 455
Told You It Was Not All In My Head!
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Headache came back after two hours. UGH it hurts bad! *cry* I have no idea why it was never brought up before. I have been begging that doc to look at it for MONTHS. I knew it was high when I had pneumonia, but I was told it was cause of the pneumonia. Yes, it is dangerous - not the SED rate itself (I don't think) but the inflammation it is measuring is very dangerous, Depending on where it is, (and its obviously partially in my brains) it can cause strokes, heart attacks, blood clots... I do not know why they still wont check my c-reactive protein which would be VERY helpful in diagnosis as well. They also already know that my ANA is positive, but no one will tell me the pattern - which is very helpful in a diagnosis. I know physicians are reluctant to hand out autoimmune diagnosis cause they can cause issues with insurance - but the longer I am not treated and the longer they act like I am an idiot, the sicker and more angry I become, which doesn't help at all. I am calling my doc back this morning as soon as his office opens. Even though I started the Prednisone and re started the butalbitol as instructed per the ER doc, I am in SUCH pain. And sitting here taking barbituates long term is a VERY bad idea. Even though they do not make me high or low in the LEAST, they are supposedly addictive. I am already very addicted to ciggies, so I do not need another addiction. Also, with a high sed rate, even though I am only 34, with this headache they SHOULD be checking me for giant cell (temporal) arteritis. That condition is NORMALLY only in older people, but it also happens, usually to women, who have autoimmune conditions.     
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~Keilia~
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October 05, 2009, 10:56:28 AM
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Formerly Undiagnosed
Sr. Member
Gender:
Posts: 455
Told You It Was Not All In My Head!
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Oh, and yeah, my doc does have a HUGE ego!~ It is insane! I swear, if I mention what omething is -- even from a previous diagnosis by a different doctor - even a different doc in his own practice - he gets very upset and insists it is not what it is. I mean come on? Like he tried to tell me this was NOT IN ANY WAY POSSIBLE a migraine since it lasted longer than 72 hours...while I agree that it *might* be something more serious, it is a WELL established fact that migraines can and do last longer than 72 hours. It's called a status migraine. But of course I am just a Mom, I am not a doctor, and my other doc in that practice (who wasnt there for me to see, but it just as difficult to deal with anyway) had also diagnosed it as a migraine just a couple days before. <pulls hair out>
Oct 12 is fast approaching! A week from today, YAY! I am scared to get my hopes up for the new doc - but she is supposedly the best, and handles hard to diagnose conditions - so I have high hopes, whether I want them or not.
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~Keilia~
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October 12, 2009, 08:35:49 PM
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Formerly Undiagnosed
Sr. Member
Gender:
Posts: 455
Told You It Was Not All In My Head!
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Had a GREAT doctor visit! Apparently my reflexes are far stronger than they should be. I dunno what that means, though. She also told me what the red mottling on my palms is, but I can't remember the name of it right now. She is testing my thyroid and liver, but is "pretty sure" I have Undifferentiated Connective Tissue Disorder - meaning I have symptoms of several autoimmune diseases but it is not yet morphed into one disease. I may have a diagnosis....I can only hope..... Oh, and I do NOT NOT NOT have fibromyalgia, and she ws not pleased I was diagnosed with it. She specializes in Fibro and says when docs use it as a trash can diagnoosis it makes diagnosing others with it more difficult. I had ZERO of the pain pressure points associated with it. So, they took every bodily fluid tthey could, and I am at home now. Crossing my fingers and praying for a diagnosis. Her nurse practicioner says that Dr Rominick is a very good diagnostiician and that if anyone can find out whats wrong with me that she can. 
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~Keilia~
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