How do you not just give up?

How do you not just give up? (Read 5206 times)

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Keilia

October 02, 2009, 05:34:42 AM

Formerly Undiagnosed
Sr. Member

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Posts: 455

Told You It Was Not All In My Head!

I try, at times, also. Not right now because of the m migraine - but a lot of times I do try. Thankfully my husband - while he can't understand what I am going through - does understand what kind of pain I am in. I only wish the rest of my family did.

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~Keilia~

New28

October 02, 2009, 08:38:25 AM

Sr. Member

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Posts: 339

When all else fails, play dead!

We may not all understand all of your pain, but we do understand bits, and the rest? I think we're open minded enough to want to hear about the pain and to not judge you for it.

Trust me, I know migraine pain, makes you want to curl up in the dark and cry. You deserve a hug and a big kiss for being anywhere near the computer, and for being online you deserve a party which we'd happily throw for you, but noise becomes painful with a migraine...so, let's party! QUIETLY!

Dance

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Keilia

October 02, 2009, 01:37:17 PM

Formerly Undiagnosed
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Posts: 455

Told You It Was Not All In My Head!

Hehehe =)

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~Keilia~

Keilia

October 02, 2009, 02:35:06 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

Oh, and I know you guys do understand - that's why I am so very grateful for all of you. Your support helps keep me going.

My parents and siblings don't, and yeah that b ohers me. They call me a hypochondriac and a baby. I do not wish them pain or illness, but I do wish they could understand....

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~Keilia~

Keilia

October 03, 2009, 03:28:24 AM

Formerly Undiagnosed
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Posts: 455

Told You It Was Not All In My Head!

Today was very bad. Went to see my general surgeon who is supposed to be doing reconstructive surgery to get rid of the boils. He refused. Then I went to the ER for my migraine (I am on day 7 and NONE of the pain relivers, OTC or prescription, have helped) and they refused to help me. I am so angry I am almost speechless. Tomorrow I have a dr appt, and I am going to refuse to leave until someone helps me at LEAST with the pain and the boils.

If Dr Romanick on Oct 12 wont help me, I feel like giving up.

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~Keilia~

New28

October 03, 2009, 07:23:26 AM

Sr. Member

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Posts: 339

When all else fails, play dead!

Don't you DARE give up Keilia! Giving up makes you a loser, persistence is the key. Losers are the people who don't even try.

You're right, stick in there until you get help. Doing your own thing isn't easy...It eats away your finances (I get nothing to help with costs because there's no prescribing doctor), my family insists I'm insane, my EMT sister won't even talk to me and the medical profession won't come near me because they're scared I'll sue them.

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Keilia

October 03, 2009, 04:24:48 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

The entire medical profession here insists Im a drug addict. As if I need their 30-second highs to get my jollies. If I wanted to be high I would smoke more pot - after all, I can do that LEGALLY and wouldnt have to go through all this BS. Today the doctor told me its not a migraine if it lasts longer than 3 days. Um, yes it is. Its called a status migraine. Then he said "You have too many things wrong with you, you need to see a shrink". Well gee, ya think? I HAVE been seeing a shrink since 2004, and my depression is under control. I tried to tell him it was auto-immune per my positive ANA test and he told me that wasnt reliable enough since I had neg ANA tests IN THE PAST. I was just shocked - I know more than this guy and all I have is a high school diploma. They gave me a shot of toradol for my migraine that he swears isnt a migraine - and it did NOTHING of course. I belong in the freaking hospital. I am so, so angry and so, so worn out. I do not know what to do anymore.

I still see Dr Romanick on Oct 12, so I am going to give her a chance. She specializes in hard to figure out medical cases - so we shall see.

I do not want to give up. Not at all. I just dont know what to do anymore. It seems that just because it is not an EASY diagnosis that I must be faking or lying or something.

I am going to go cry, maybe that will help.

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~Keilia~

Jenny

October 03, 2009, 06:38:33 PM

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Posts: 125

It makes me so f-ing mad how doctors are ignoring you like this!!
Keilia, are there any other hospitals that you can go to? Maybe somewhere that doesn't neglect their patients?

I know there's 3 different major hospitals in my city that I can go to..

We know you're not a drug addict, so those doctors can go to hell.
Don't let them have the last word, go find doctors who WILL listen!
Huge Hug

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Keilia

October 03, 2009, 07:06:31 PM

Formerly Undiagnosed
Sr. Member

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Posts: 455

Told You It Was Not All In My Head!

Im going to go to Swedish Hospital in Seattle in couple of hours if it doers not get any better. I am now vomiting like crazy even though I took Zofran to stop it. I have NEVER had a migraine this bad before.

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~Keilia~

Keilia

October 03, 2009, 08:41:23 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

Ended up calling the doc back to ask about side effects of toradol. He said now it IS a migraine and to go to the ER if it isnt better by 5. I am so sick of the crap. I will be going, but hell if I know if they are going to eveen treat me. aggressive

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~Keilia~

Keilia

October 04, 2009, 01:13:21 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

So, I did not wake up til 9 last night, so since the ER was going to be packed I did not go. I am about to go now. I am going to try Swedish Hospital in Seattle. They have a neuroscience institute at one of the locations. I hate having to drive a half hour to go to an ER, but I will NOT go to this local one ever again, short of a heart attack or car accident.

I'll post more when I can. Love you guys!

K Huge Hug

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~Keilia~

Jenny

October 04, 2009, 04:01:00 PM

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Posts: 125

Good luck hon! I hope the new hospital treats you better!
The 30 min drive will pay off in the end, I know it
Tell us how it goes when you get back!
Huge Hug

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ohtobehealthy

October 04, 2009, 04:45:24 PM

Sr. Member

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Posts: 263

Good luck Keilia. Let us know what happens. I went to the nueroscience center there and saw Lilly Jung. She was really good. The hospital itself too is very nice. I hope they treat you better! I didn't get many new answers when I went but she was the only one that had suggested it had something to do with my pituatary gland which in the end it may be. Hang in there!! Huge Hug

I will be thinking of you...

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**Kristin**

First Struck with Anorexia on and off for about 6 years beginning in 1993. 1995 Diagnosed with GERD, IBS, Anxiety. 2006 Diagnosed with CFS, 2009 Diagnosed with Sleep Apnea and Circadian Rhythm Disorder and Hypoglycemia. 2011 Diagnosed with Vitamin D Deficiency and Hyponatremia. But... why?! I think I am one step closer to that answer ON my own. Your are your own advocate for your health! No one can tell you how you can or can't feel!

Keilia

October 04, 2009, 06:47:34 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

Thanks, Y'all =)

It took several tries with multiple injections but it broke my migraine!!!! And they were so very sweet to me - I didnt even feel the IV going in, and I am a notoriously "Hard stick" - my veins in my arms are very sclerosed, they spasm a lot, and they collapse a lot. So Ken, my nurse, got it on the first try and I didnt even feel it at all. They kept me in a quiet room, and kept it dark. From now on anytime I need an ER but it's not immediate life threatening, I will be going there.

Got a copy of my blood tests, which I will post in the appropriate place - my sed rate is VERY VERY VERY high. They gave me some steroid while I was there that made my body feel like it was burning up from the inside out. Thankfully that lasted very short though.

Turns out my migraine - this one anyway - was from anxiety.

Huge Hug

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~Keilia~

Jenny

October 04, 2009, 07:18:46 PM

Full Member

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Posts: 125

Yay! That's fantastic, Keilia!
I'm glad your mirgranes finally gone :)

This might be a stupid question, but what do you mean by sed rate? sedation rate?

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