 Went to Saratoga today to see S.J's PA. Stopped at hospital to get medical records, ended up in auto accident, which delayed my arrival for the appt. by ten minutes, PA refused to see me, talked to me in waiting room in front of every one, said she wasn't ready to deal with foot drop, I would have to see Doc. I said that's what I came for in the first place. She said but the neurological took over and then I had a spasm and that ended it. The movement disorder appt. might not happen, which is fine with me, because they have seen me before. I asked if I could ask him a question and she said no. I said he usually came into appts. when I saw her and she denied it. I now have an appt. with him the very end of October. I am so disappointed. I have been waiting for months to see him. Who the hell cares if you're in pain these days? I was sent for my foot - that's been the pain. I think I'll go back on the lortabs and forget the world. He offered me hope he would look into this without prejudice. I have had it with doctors. I'll see the one in Boston to see if he can help my foot. Have to see the urologist. That's it. My frustration is with these doctors who say IAIYH and have no good reason to say that. The last guy said it had to be all in my head because he had never seen anything like it before. That's smart! My psychiatrist said that no one but a psychiatrist should give such a dx! I have about six or seven docs around the Northeast who have done that without such a degree. I'd like to sue them all for the harm they do, especially to women. I feel I know what it is but I don't believe these doctors know or have seen it before because it is so rare. That's where the problem comes. Instead of investigating what is causing me to spasm, they just chalk it up to conversion disorder. They don't even know me. Get this - one sign it's somatization disorder is the inability of the patient to accept that dx! They gotcha coming and going! On another forum I wrote about SFN and a guy responded that he had been dx by exclusion. He wasn't told IAIYH. I was and then I had to have two skin biopsies to prove that's what I have. Even with that the doctor was reluctant to admit it much less do anything to help me. Meanwhile it has progressed and there is no cure and, right now, no treatment for the pain for me. While I'm on a roll, I also don't like being told I'm anxious when I am not. I had a MRI of both breasts and during the test I heard my heart beat in my right ear. It did its usual abnormal rhythm thing and I drifted off to a better place until I was abruptly brought back as my heart was beating so fast I couldn't count it. When the test was done, my heart hurt and I was dizzy. They stuck me in a wheelchair and put me in the waiting room for a while. Finally someone came and said they thought I was looking some better and gave me the key to the locker room so I could get dressed. I got home and called the cardiologist's office. They said to go to the ER - been there, done that, no way. They said to call back in an hour. By then I was asleep and pretty well spent the next two days and nights sleeping. When I called for test results I asked the surgeon about my experience in the tube and she told me I needed to be seen by the cardiologist. That was a week after the test and on a Friday. I got in the following Monday. He started out by describing his own experience with MRIs and concluded I must have been anxious. I was not anxious - didn't have a jitter in the world. Now I have to have a repeat in six months and I may be anxious, not about the test, but what will my heart do this time!
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