My illness

My illness (Read 1142 times)

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Mellor

August 18, 2009, 11:26:56 AM

Newbie

Posts: 2

Hello All,
My name is Steve and i would like to share my long term undiagnosed illness issue.
I am 43 years old and have been suffering this problem on and off for many years, of which it has really escalated in the last few years.
The main symptoms are recurrent mouth ulcers and infections.
It generally starts off with a rash on my arm or tenderness on my face and temple or a stomach upset, then the mouth ulcers set in (sometimes up to 5-10 mouth ulcers), tenderness and pain on the bridge of my mouth, massive headaches, sore muscles & joints and terrible fatigue.
I usually get this about 4-5 times a year and it usually lasts about a month on each occasion.
During the year i also have a lot of similar problems but the duration is a lot less.
This all means that i am generally unwell for over 6 months a year and therefore have no quality of life.
I have had every blood test possible, food allergy tests, and seen GP's, infectious diseases specialists, chinese herbalists, naturopaths, homeopaths etc etc for very little result.
The only thing that has given me any respite have been colonic irrigations albeit brief.
If anyone out there suffers similar symptoms or has any suggestions i would love to hear from them.
Regards Steve

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Samantha

August 18, 2009, 06:08:34 PM

Group: Administrator
VIP Member

Gender:

Posts: 920

I Will Be Diagnosed !

to the forum Steve

Sorry if this has been covered over the years but ............... I'm going to ask a hundred and one questions just in case something helps

Have the ulcers ever been biopsied ?
Do you wear dentures/falses ?
Have you ever been tested for Shingles ?

I'll try my best to research for you too, if something pops up I'll let you know
Huge Hug

Sammy

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Mellor

August 18, 2009, 10:25:48 PM

Newbie

Posts: 2

Hi Samantha and thanks for the reply and welcome,

First to answer your questions

1 Yes i have had the ulcers swabbed which came back clean.
2 No i do not wear dentures...Have a full set of teeth, go to the dentist twice a year
3 I do believe i have been tested for Shingles but will check that out again thanks.

It is not so much the mouth ulcers, it is the sickness and unwell feeling associated with all this..The headaches, painful mouth infections, stomach upsets, swollen neck glands, sore muscles, aching joints, terrible fatigue, loss of weight etc etc

The other thing i never mentioned is that i lead a healthy lifestyle with an adequate diet.
I have never smoked, rarely drink alcohol, eat a lot of fruit & Veg, and my weight of 73kg is in proportion of my height which is 177cm.
Every chance i can, i walk, play golf, do push ups and swim..Problem is when i get sick i have not got the energy to do these things.

The only positive diagnosis i have ever received is 'fibromyalgia', but when i went to see the specialist for this she could not explain the other symptoms i have also :confused005
Regards Steve

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Keilia

September 23, 2009, 01:44:25 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

Steve,

Have you ever been tested for Bechet's Disease?

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~Keilia~

Samantha

September 24, 2009, 06:48:49 AM

Group: Administrator
VIP Member

Gender:

Posts: 920

I Will Be Diagnosed !

Symptoms sure do sound like this could fit Steve's undiagnosed health problems, good Find Keilia Big Grin

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ohtobehealthy

September 26, 2009, 03:19:10 AM

Sr. Member

Gender:

Posts: 263

Behcet's disease was the first thing that came to my mind as well.... hope you get everything figured out soon!

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**Kristin**

First Struck with Anorexia on and off for about 6 years beginning in 1993. 1995 Diagnosed with GERD, IBS, Anxiety. 2006 Diagnosed with CFS, 2009 Diagnosed with Sleep Apnea and Circadian Rhythm Disorder and Hypoglycemia. 2011 Diagnosed with Vitamin D Deficiency and Hyponatremia. But... why?! I think I am one step closer to that answer ON my own. Your are your own advocate for your health! No one can tell you how you can or can't feel!

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