First of all, thank you for this website. I just had the idea but you beet me to it  Here's my story... 6/5 - eyes rolled into back of my head, lost ability to use left and right arm, left side of face fell, spent three days in hospital and was discharged with "atypical migraine" 6/8 - saw GP, still couldn't walk/talk well and couldn't use left hand. Found out that chest echo showed bicuspid aortic valve and three leaky heart valves, with pulmonary hypertension, referred to neuro, cardiologist, and pulmonary hypertension specialist 6/18 - Trans esophogeal echo confirmed bicuspid aortic valve with mild leakage but cardiologist didn't think it was severe enough to cause the problems I had, suspected TIA but found no hole in my heart to explain 6/19 - Neurologist ordered EEG to check for seizure activity 6/25 - went to PH specialist, my oxygen sats fell from 99 to 80 after 30 seconds of walking at a leisurely pace, was given oxygen tank for remainder of test and the sats didn't go above 88. Pulmonologist suspected PH and ordered a right heart cath to confirm, a CT and VQ scan to see if I had a pulmonary embolism and prescribed oxygen to wear constantly 6/30 - tests negative for pulmonary embolism 7/7 - tests negative for pulmonary hypertension Have sleep study ordered for tomorrow night and a brain and kidney scan to see if another area of my body is blocking oxygenated blood flow. Very tired and still have mild lingering stroke symptoms. If anyone has any ideas/insight it would be greatly appreciated. Thanks for listening!
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