|
|
 August 04, 2009, 09:34:36 PM
|
Newbie
Posts: 5
|
Wow id just like to say brilliant site i hope u dont mind me posting my story i have been ill for just about 1 year in which my life has been cut in 2 and no one at all seems to be able to help me. I am a 26 year old male who had his whole life in front of him engaged for nearly 2 years i went back to college to re-educate and was very socaily active
Sorry if this is a bit long
It started back in early october 2008 i was out on a night out with some friends and stupidly did some cociane ( through the nose). The next day i woke up and i felt pretty ill but i put that down to what i did the night before. The next day i woke up and i felt really spaced out like everything was a dream and things i did during the day felt like they happend weeks ago.
This carried on for a couple days and then i was over my friends house and the spaced out feeling became heavier which led me to have a panic attack I went home and slept but the next day the spaced out feeling was still really heavy so i went to my GP and he did some blood tests to check my heart because of the panic attack but they all came back normal. My Gp advised that the spaced out feeling would go. Over the next couple of weeks my health deteriated i was getting really bad headaches, ear ache, dizzy, lightheaded, nausas, pressure in my head, fatigue and a weird swooshing feeling in my head when i was laid down on one side. I went back to the Drs a couple of times over this period and eventually he sent me to have an MRI. This came back within normal limits but it was noted i had a partial empty sella which i was advised was a normal variant. I was advised it could be a viral ear infection and to give it some time.
Over the period of a couple weeks my ear ache subsided but i was getting some tingling and numbness around my nose and forehead. This was a constant pulsating feeling that got worse when it was touched.
I went back to my GP who refered me to the neroulogist. He looked at my MRI and sent me for the some nerve testing ( i cant remember what these were called but they shined lights in my eye and had noises in my ear and some electrodes on my face) all of these came back normal.
During this time i started having muscle jerks in my arms legs and neck as well as muscles spasms in my stomach and arms. The nerolougist sent me for another MRI this time on my head and neck. This came back fine also. On his nerou exam he did notice something in my eyes and asked me to get reffered to and eye specialist.
At this time some of my syptoms resolved but other ones came. I was getting a weird popping noise in my left ear and my nose was also making a poping sound mainly when i was laid down and then stood up but would happen randomly through out the day. So my GP sent me to an ENT. The ENT put a camera up my nose but said he couldnt find a reason for this.
After seeing the eye specialist he advised i had myelinated nerve fibres but again this was a normal variant.
Over the period i was have a lot of stomach problems nausea, diarhea, bloating, acid and excess gas and wind. But this would come and go.
My doctor has done lots and lots of blood tests and all of them have come back fine and my GP has been very througher . This pretty much brings us up to date. After getting a bit anxious that nothing was being found i turned to the internet and discovered lymes disease. I went to LLMD who did some work and sent some blood tests over to America but these came back fine he put me on some antibiotics to see if this would help but i have just come off them without feeling any effect. I was on them for about 1 month and a half.
Over the period of the 10 months The tingling in my head and nose has improved ( it isnt permentant anymore but does start up when i touch the area or my hair touches it) The tingling has spread down on the my left wrist.
My other current symptoms are still the nose and ear clicking. The muscle jerks are now mainly in my leg, im still very spaced out and this has not gotten any better. My stomach has gotten better but it does come and go and im still fatigued. Iv also started to get this burning feeling that kinda shoots down my nose and down my throat. Im also getting a virbating or thumping feeling in my left ear as well as being able to hear my heartbeat in both ears.
Im current waiting to see a GUI specialist but i think after that my doctor is going to wave the white flag and try and make me just deal with it.
To me though that isnt an option i have a great family and a very supportive GF who has put up with a lot and i dont see the option of me not living a normal life with out a reason at least if i had a reason to it, it would make this some what easier but no knowing what and if il ever get better really gets me down
I know that i have had an extensive testing which is good becuase it can rule out most sinister things but the thing that worries me is that it wont go away.
If you havent guessed i am from the UK so if anyone here is also from the UK and knows anyone who might be able to help with this or if anyone has any ideas on what this might be i would very interested in hearing your thoughts.
Thanks for listning
-------------------------
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
August 05, 2009, 09:57:37 PM
|
Newbie
Posts: 5
|
thanks you to for the replies
Im sad to hear it has been a bad couple of months for everyone i hope everyone on here can one day be a happy normal person
I know exactly how it feels having good days and bad days sometimes all of this can really get yah down.
My girlfriend and parents have been so supportive its unreal. It makes me sad knowing how much this is effecting there lives as well as my own. I couldnt say it has been a strain on our relationship but we are fighting through it the best we can. Here in england we get a free health service (NHS) and we can also see private doctors and specalists. Most of the doctors i have seen have been free so luckily we havent had a huge bill which would make this situation twice as hard. Even though i think the private route is what we will have to take once my doctor has decided there isnt anything he can do.
My clicking is also in my left ear it so strange and i know it has something to do with how im feeling as i never had it before same with the clicking and popping in my nose. The two ents i have seen havent been able to give me an answer infact one of them i may as well not even bothered seeing him
I had a huge battle at 1st with most people ( bar my parents and GF) about it all being anxiety and depression but i know that isnt the reason for me being ill i was never anxious about nothing i was such a confident guy and if i was ever ill before i would never even bat an eye lid i would still go out and go to work but this has really hit me for 6 and there wasnt one thing in my life i could be depressed about.
The spaced out/brain fog is my worst symptom that is the on that stops me being me and thats what i hate i just want to be the old me soo much and i wont give up im to stubborn ;-)
My lymes doctor wasnt to bad he charged me half price when i went to see him cus i was a student and didnt have to much money the only thing i payed out for was the blood tests and then that was that.
My other symptoms are the tingling or numbness around my nose and forehead. I dont know what else could be causing that as from what i have learnt the nerves to yourface and head are in your brain but the 2 mris i have had have come back clean bar this empty sella which can be caused by Increased intercranial pressure in the head but the only reall way to find out that is by a lumbar puncture and my nero and drs dont think i need one
The only thing i can think of is sinus issue with the ear popping and nose popping and obviously the spaced out feeling that could be all to do with that but again i dont have anyone who or any real proof of this only a theory. ( This would all fit in with the drug i did through the nose)
The twitching/ jerks and spasms have been ruled out as anything sinsiter by my nerou.
IMy stomach problems i have no idea about and hopefully the GUI will take everything into consideration and help me figure this out.
Im not to concerend about what the diagnosis is i just want to know even knowing whats wrong would ease the pain im going through
I hate how much this is upsetting everyone around me and i just want this all to go away. Sometimes i do feel im making everyones lives a lot more difficult and sometimes people would be better off if i didnt complain and just put up with it but i cant i dont want to live like this forever .
Thanks for welcoming me to this board i will try and help everyone out as much as i can as being through this for a year as deffantly taught me some lessons as well as a bit of medical knowledge through all the reaserch i have done
-------------------------
|
|
|
|
|
|
|
|
|
|
|
|
August 06, 2009, 08:27:43 PM
|
Group: Administrator
VIP Member
Gender: 
Posts: 921
I Will Be Diagnosed !
|
Chris can I ask ... Did you tell the Doctor about the cocaine use ? when this all first started ? It may or may not be related but perhaps looking at what first started everything might be a good idea ? Adverse Reactions to Cocaine * Adrenaline-like effects such as tachycardia, mydriasis, sweating, tremor, flushing, reduced appetite, headaches * Nausea and vomiting * Chest pain, black sputum, wheeziness, shortness of breath, respiratory arrest * Hypertension, palpitations, tachyarrhythmias, myocarditis, * Convulsions * Anxiety, paranoia, hallucinations (visual, auditory, tactile). Acute psychotic reactions, panic reactions, violence * Cocaine may induce heightened sexual interest Tick off which symptoms match. It might just be a stepping stone to working out what you can do from here  Please keep us updated  I hope you can find a good Doctor who will continue in the search for answers Sammy
-------------------------
|
|
|
|
|
|
|
|
|
|
|
|
August 06, 2009, 10:57:17 PM
|
Newbie
Posts: 5
|
Thanks again sammy for your reply.
I certanily have told the doctors but they dont seem to be to concerned about it as it was a once off. According to my GP as long as it was prolonged use it shouldnt cause no long lasting effects.
I do disagree as you dont know what was put in with the drug and i think everything in my life was fine until that night.
Bar the nausea on that list nothing else really matches with how im feeling now
I did probely have a few more of those symptoms during the night or the following day such as sweating, headaches, nausea, palpitations but thats about it
When i 1st told the doctor about the cocaine and then the panic attack i had on the wednesday he just told me it was anxiety cus of what i had done. I knew that wasnt the case and that i had the panic attack because of how spaced out i was feeling. I had a long battle with my doctor trying to convince him it wasnt anxiety and after my symptoms never went whilst anxiety meds and 2 phycatrists saying i wasnt suffering from anxiety he started to believe me. I was only the anxious cus of how i was feeling and i was scared at the time it could be something serious. After all the tests i had done im a lot more relieved and i find my symptoms more annoying and a nuscence as i do scary.
My GUI appointment has now been confirmed for October 2nd which is quite a wait away so i think i might start looking for a private GP to get involved in this as well.
I would just like to state about the drug that i did that iam greatly ashamed of what i have done and drugs isnt the kind of thing i do on a normal basis it was more that fact of the alchol i was drinking and my curiosity but it isnt the type of person i am.
I would love a time machine to go back and change what i did it would be interesting to see if i would be like this if i didnt do the drug unfortunatly for now thats not something i can answer
-------------------------
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
November 09, 2009, 07:41:41 PM
|
Newbie
Posts: 5
|
Hi,
Just thought id give everyone an update.
I saw the GUI doctor who orderd some blood tests and an ultrasound of my stomach. All of the blood tests came back normal and so was my ultrasound so he no longer wants to see me even though my stomach problems are as bad as ever.
None of my symptoms have got better nor worse. The tingling and brain fog feeling is still there and bothersome as well as the nausea.
I found a very nice private doctor who i have been seeing. He he has listened but again he is stumped he doesnt know what else to suggest.
The only thing going for me at the moment is i have scheduled an appointment with my nero once again and thats for the end of decemeber otherwise im square out of ideas on the docotor front.
I have been doing some of my own research and there are a handfull of things i have found that seem posible but im not sure really how reliable they are
the things i have found to be simular are canindia or leaky gut but they dont seem to be accepted by the medical community but im going to ask the private doctor about them as he doesnt look at me like im crazy.
I did also find a site where some people who had done cocaine also had some of symtoms i got but they cant find any explanation either. I dont know if it is possible to get tests to see if your brain is "working" correctly
And finally the other thing iv found that could explain some of the symptoms is ICP ( increased cranial pressure) on my MRI it did show a partial empty sella which can be caused by this or it can be an incidental finding. i have spoke to GP and he has done some test to check my piturity gland is working properly which it is but the only way to check my ICP is from a spinal tap and he doesnt think its nessacary risk to put me through for something he doesnt think it is. Yet as this is the only slightest thing i have found thats wrong with me i cant get it out of my head.
If i dont get anywhere with either of this im going to give in and go the whole anxiety depression route with maybe some acupuncture thrown in as well as i dont have any ideas and iv got to give everything a go
I hope everyone on here is doing well and doing everything they can
If anyone knows of anything else i can look into or has any other ideas please let me know
-------------------------
|
|
|
|
|
|
|
|
|
|
|
|
November 16, 2009, 03:41:20 PM
|
Jr. Member
Posts: 40
|
Hello Chris  Welcome to the Forum. Sounds bad that you kept kind of hanging on on cocaine, I also smoked Marihuana sometimes but not in high doses and not often. I have psychologic symptoms too, but I had them before the Marihuana.... Are you sure that the coce wasn`t stretched with something toxic? Did the docs prescribe you some meds? Good health trancy
-------------------------
|
|
|
|
|
|
|
|
|
|
| 0 Members and 1 Guest are viewing this topic.
|