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Undiagnosed Illness Forum  > Recently Diagnosed > Recently Diagnosed > Topic: Fibromyalgia
February 07, 2012, 08:17:04 AM
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Fibromyalgia  (Read 3627 times)
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Offline  Keilia
June 01, 2009, 05:11:47 PM

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Told You It Was Not All In My Head!
Docs say the pain is fibromyalgia. Everything else is still undiagnosed. I also now have fluid in my lungs. Getting a knee xray soon. Doc has already ordered it.


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~Keilia~
   
Offline  ohtobehealthy
June 01, 2009, 05:39:45 PM

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Well that is good that you possibly have some answers. What would bother me is the fact that fibro is misdiagnosis for alot of other things. However I would go ahead and try the methods for treating fibro and if those work good for you then you know that is most likely what is going on. I hope you find some relief soon and let us know what they say about the x rays.  Huge Hug


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**Kristin**

First Struck with Anorexia on and off for about 6 years beginning in 1993. 1995 Diagnosed with GERD, IBS, Anxiety. 2006 Diagnosed with CFS, 2009 Diagnosed with Sleep Apnea and Circadian Rhythm Disorder and Hypoglycemia. 2011 Diagnosed with Vitamin D Deficiency and Hyponatremia. But... why?! I think I am one step closer to that answer ON my own. Your are your own advocate for your health! No one can tell you how you can or can't feel!
   
Offline  Samantha
June 01, 2009, 09:40:53 PM

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I haven't tried it long term (only 1 month prior to falling pregnant) but Spirulina is apparently very good for Fibromyalgia Keilia. I will take again after baby is born but thought I'd mention. An article I read recently and feedback from patients who tried said it really helped...


Another supplement I know but we have to try something hey Smile


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Offline  Keilia
June 15, 2009, 10:49:18 PM

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Told You It Was Not All In My Head!
Well the gabapentin didnt work. Doc thinks it might be whats causing my muscle jerking. We shall see. She took me off Gabapentin today and put me on Savella - a brand new drug, so Im kind of scared about that. But its supposed to be wonderful for Fibro. If it doesnt work, Sammy, Ill ask her about the Spirulina.


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~Keilia~
   
Offline  Samantha
June 16, 2009, 08:55:33 PM

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Spirulina's a natural product, you should be able to buy online or in health food shops  Smile


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Offline  Cathie
June 27, 2009, 11:00:24 AM

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Quote from: Keilia on June 01, 2009, 05:11:47 PM
I also now have fluid in my lungs. 

As in pleurisy? or something else?  Painful or annoying? sounds painful.


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Offline  Keilia
June 30, 2009, 09:14:01 PM

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Gender: Female
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Told You It Was Not All In My Head!
Its a VERY small plueral effusion. Nothing to worry about, the doc says. No one can even hear it in my lungs, they only found it cause of an x ray. Not painful at all. Thank goodness, cause I have anough other painful things to worry about.


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~Keilia~
   
Offline  Cathie
July 01, 2009, 09:11:10 AM

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I sure am glad that doesn't hurt as well.  You certainly have enough other stuff going on you poor thing.


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Offline  Keilia
July 01, 2009, 10:28:44 PM

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Told You It Was Not All In My Head!
 Huge Hug


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~Keilia~
   
Offline  Samantha
July 02, 2009, 09:29:02 PM

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So you've got a little excess fluid in the lungs ...could this be from smoking maybe  Confused  Question
I'm glad it doesn't cause any pain, that's a bonus

 Huge Hug
Sammy


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Offline  Keilia
July 03, 2009, 12:56:56 AM

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Gender: Female
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Told You It Was Not All In My Head!
Yep could be from smoking I think? I have no clue. Ill probably have it rechecked in 6 months to make sure its not growing. I still want a full body xray and ct. Just waiting til I can get around, this mouth surgery has been awful!


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~Keilia~
   
Offline  Samantha
July 04, 2009, 01:48:09 AM

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I reckon you'd be feeling better dreadful, teeth aches and the dentist are the pitts  Sad It'll be all over and done with soon.

 Huge Hug
Sammy


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Offline  Keilia
July 06, 2009, 10:53:14 PM

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Gender: Female
Posts: 455

Told You It Was Not All In My Head!
My teeth are finally getting better. The Savella the doc gave me for fibro tho makes me vomit - a LOT. So I am still not out of bed on a regular basis! ARGH!  Huge Hug to everyone


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~Keilia~
   
Offline  Samantha
July 07, 2009, 02:27:40 AM

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I Will Be Diagnosed !
Good news  Dance
Stay in bed and do as your told  Hits on Head


Sammy  Huge Hug


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Offline  Keilia
July 07, 2009, 09:05:45 AM

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Told You It Was Not All In My Head!
Savella is EVIL. Cry


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~Keilia~
   
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