Keilia's new symptoms

Keilia's new symptoms (Read 22229 times)

Topic Options

Keilia

September 04, 2009, 10:44:22 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

I ended up back in the ER last night again. They gave me several bags of fluids and some dilaudid while I was there - so there was temp relief. But I am back in agony now. I am going days without sleep and then sleeping for 15-24 hours at a time. This is not good.

I know I shouldnt expect help - but I keep expecting it. I do need to learn not to. Im just so sik of hurting all the time, and I could even take hurting if it were not this bad. NO, I am NOT suicidal, but I have in the past 24 hours thought, "At least when I die it wont hurt like this". I dont want to think that way. Cry

-------------------------

-------------------------

~Keilia~

Keilia

September 04, 2009, 03:57:06 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

Every time I sit up, I lose circulation in my head, hands, and feet. This cant be good. Cry

-------------------------

-------------------------

~Keilia~

Samantha

September 04, 2009, 07:07:18 PM

Group: Administrator
VIP Member

Gender:

Posts: 920

I Will Be Diagnosed !

You poor thing Sad

I'm so sorry no one is listening (Doctors aggressive

) can you not go to another Doctor elsewhere Keilia ? out of town or something ?
Sorry I don't have any ideas Confused

Sammy

-------------------------

Keilia

September 05, 2009, 04:35:55 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

Im about to go to another hospital. The one here in Kirkland apparently thinks Im a junkie cause I <gasp> wanted IV fluids for my dehydration. Good lord, they are stupid. Confused

-------------------------

-------------------------

~Keilia~

Keilia

September 05, 2009, 04:36:34 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

BTW, I have an appt Oct 12 with a doc who is board certified in both internal meds and rheumetology.

-------------------------

-------------------------

~Keilia~

SuperLine

September 05, 2009, 07:11:08 AM

Newbie

Posts: 9

Keilia: Look up POTS syndrome. This should explain the circulation problem on rising. POTS is really just an adrenal insufficiency issue which basically means your adrenals are not secreting adequate hormones to deal with your situation. Generally they get 'burned out' due to stressors. The stressors can be multiple physical (sickness, overwork etc), emotional etc. However if you present POTS as a theory to most mainstream physicians they are going to look at you like you are out of it, for several reasons. The adrenals can be built back up. I have extensive experience concerning the adrenals based upon my own situation. I did not look all of your story but has anyone run any tests for pathogens? (such as rogue bacteria, viruses, mycoplasma infections? Are you having any IBS or gastrointestinal issues?)

-------------------------

SuperLine

September 05, 2009, 07:14:00 AM

Newbie

Posts: 9

I should add that autoimmune diseases are caused by pathogenic organisms.

-------------------------

Keilia

September 05, 2009, 08:26:25 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

No, I have never been tested for any of that. I have Gastritis and GERD which also caused aspiration pneumonia.

-------------------------

-------------------------

~Keilia~

SuperLine

September 06, 2009, 06:53:28 AM

Newbie

Posts: 9

Did some of these problems arise when the gastritis or gerd started?

-------------------------

Keilia

September 06, 2009, 09:15:33 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

The GERD - dunno when it started. Supposedly thats what caused my pneumonia, but I never feel any heartburn. The gastritis has been around approx 3 weeks.

-------------------------

-------------------------

~Keilia~

Keilia

September 10, 2009, 02:32:43 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

After ER visit last night (New Hospital). - Severely inflammed colon and gall bladder, and swollen liver. Gall bladder is also partially contracted - not sure what that means. White blood cells and platelets very high, but no infection that they can find, so its LIKELY chronic inflammation. Also now sweating VERY bad almost all the time - even when its cold - and I have no fever. ANA test is positive, indicating auto-immune. Am I maybe close to a diagnosis? Dance

-------------------------

-------------------------

~Keilia~

Samantha

September 11, 2009, 10:06:28 PM

Group: Administrator
VIP Member

Gender:

Posts: 920

I Will Be Diagnosed !

Hoping this might give the Doctors more clues Confused

Even though your in agony I hope the tests keep coming back abnormal, will help with the investigations

Keep us posted Keilia, I'll be praying for ya

Huge Hug

Sammy

-------------------------

Keilia

September 14, 2009, 06:14:36 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

ARGH! To the ER AGAIN with severe pain - and its ANOTHER ruptured ovarian cyst. Thats 2 in the last 1 1/2 months. Anyone ever have them that frequently before? Confused

-------------------------

-------------------------

~Keilia~

New28

September 14, 2009, 08:47:02 AM

Sr. Member

Gender:

Posts: 339

When all else fails, play dead!

Same ovary?

-------------------------

Keilia

September 14, 2009, 09:50:03 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

No but there is another one growing on my right one again so its only a matter of time.

-------------------------

-------------------------

~Keilia~

0 Members and 1 Guest are viewing this topic.

Welcome To The Undiagnosed Illness Forum