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February 08, 2012, 06:00:48 AM
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Keilia's new symptoms  (Read 19541 times)

Formerly Undiagnosed
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Told You It Was Not All In My Head!


Itching =/

Ive had i for awhile, but its getting worse. It is mainly my hands, but also my feet and head. Its so bad on my hands that they are completely red and covered in scratched and sores from all the scratching =(


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~Keilia~
   

Formerly Undiagnosed
Sr. Member
****

Gender: Female
Posts: 455

Told You It Was Not All In My Head!


Well, after my doc appt yesterday, I have new symptoms that the doctor had to point out to me. I feel like an idiot because I usually KNOW when something is wrong.

I am bleeding under my skin in my arms, face, chest, and feet. Some on my stomach too.

I have a SEVERE curvature of my spine.

My kidney function is NOT good at all. I assumed it was liver issues that are causing the itching, but its kidney she says. But my liver and gallbladder are both still swollen a lot.


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~Keilia~
   

Formerly Undiagnosed
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Gender: Female
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Told You It Was Not All In My Head!


Oh yeah - and she says I may have some kind of spondylitis. Good times! We should know soon, I just had my second round of bloodwork done and they SHOULD have a diagnosis with it.  Huge Hug


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~Keilia~
   

Formerly Undiagnosed
Sr. Member
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Gender: Female
Posts: 455

Told You It Was Not All In My Head!


*grumbles*

Well, first they said it was a new case of pneumonia. Then they said maybe not, maybe it was pneumonia which is now swelling in my lungs. Now they are not sure. They have me on both antibiotics and steriods, and im just getting worse.

 Cry


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~Keilia~
   

Formerly Undiagnosed
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Gender: Female
Posts: 455

Told You It Was Not All In My Head!


And now they are sending me to the hospital for a possible admit. We shall se THIS goes. This hospital sucks ><


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~Keilia~
   

Formerly Undiagnosed
Sr. Member
****

Gender: Female
Posts: 455

Told You It Was Not All In My Head!


Well...just had 3 days of so many tests - bloodwork (16 vials!) 2 ct scans, 3 hours of pulmonary fun ction tests - I am worn out. But maybe it will get some answers! My gastroenterologist says its time for my gallbladder to go, that that is why I am vomiting so much.....


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~Keilia~
   

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I Will Be Diagnosed !


Thanks for the update Keilia  Big Grin
At least you're getting some tests done now, fingers crossed they show the problem  Smile Have they booked you in for the gallbladder op yet  Question
 Huge Hug
Sammy


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Formerly Undiagnosed
Sr. Member
****

Gender: Female
Posts: 455

Told You It Was Not All In My Head!


Not yet, they want the bloodwork back first...<crossing fingers it happens soon>


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~Keilia~
   

Sr. Member
****

Gender: Female
Posts: 339

When all else fails, play dead!


 Confused Confused Confused
And you're the one who hasn't been to medical school..THEY'RE the experts, and they can't find an answer?
Now do you 'get' why I started looking into my AVED myself?


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Jr. Member
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Posts: 40


Hello Keilia

How are you at the moment?

I have read about your bloodwork and liver and kidney problems and I hope that it will get better again.

Are you recently diagnosed?

Wish you good luck and health!  Huge Hug


Yours trancy


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Formerly Undiagnosed
Sr. Member
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Gender: Female
Posts: 455

Told You It Was Not All In My Head!


Well, so far I have been diagnosed with Adult Onset Still's Disease and Ankylosing Spondylitis. Still more symptoms that do not fit. My gallbladder is going to have to come out doc says, but I do not know when yet.


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~Keilia~
   

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I Will Be Diagnosed !


So you finally have a diagnosis  Question one that your happy with  Question
Hope your ok Keilia

 Huge Hug
Sammy


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Formerly Undiagnosed
Sr. Member
****

Gender: Female
Posts: 455

Told You It Was Not All In My Head!


Its not a complete diagnosis. But they do know its autoimmune, and that AOSD and AS explain the majority of my symptoms. I am not real happy, but who is when they know they are going to be sickk for life? But I am satisfied that they know what they are doing, are correct in diagnosis so far, and will figure out the rest. But Im too scared to celebrate the diagnosis yet. Not sure why. Cant really believe I am diagnosed?


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~Keilia~
   

Formerly Undiagnosed
Sr. Member
****

Gender: Female
Posts: 455

Told You It Was Not All In My Head!


New symptom!

Can no longer feel heat or cold in my extremities.


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~Keilia~
   
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