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Undiagnosed Illness Forum  > General  > Good Day or Bad Day > Topic: Another Bad Day - Pain!
February 07, 2012, 08:08:56 AM
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Another Bad Day - Pain!  (Read 1337 times)
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Offline  Keilia
May 19, 2009, 11:15:56 PM

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Told You It Was Not All In My Head!
I can barely walk today. So I am stuck at my computer. Cant do the laundry I promised my hubby I would do. Made my bed, thats about it. My son, who is 9, had to make me a peanut butter and jelly sandwich. Every joint hurts. Even my hips hurt now, and they didnt before. Called my doc. She says she needs the reports from the docs I saw last week before she can change my meds. None of them have even contacted her, and all three knew to do it. I am pissed. All  I want is some friggin pain relief. Why is this too much to ask?


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~Keilia~
   
Offline  Samantha
May 20, 2009, 03:11:01 AM

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I Will Be Diagnosed !
Keilia I'm so sorry sweety  Huge Hug

I wish there was something I could do to ease your pain Sad these bad days really take there toll don't they, I know exactly how you feel.

Be strong I know you can get through this and find some answers

 Huge Hug
Sammy


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Offline  Keilia
May 20, 2009, 03:12:24 AM

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Told You It Was Not All In My Head!
 Huge Hug Thank you Sam.

I feel bad for being whiney, but then again, I have reason to whine, I guess. Just ARGH!  Confused


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~Keilia~
   
Offline  Samantha
May 20, 2009, 03:22:38 AM

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I Will Be Diagnosed !
You can be as whiney as you like  Big Grin we all understand . I have many whiney days too

 Huge Hug
Sammy


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Offline  Keilia
May 20, 2009, 10:24:29 PM

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Gender: Female
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Told You It Was Not All In My Head!
Now I am even more pissed. The rheumeologist, infectious disease AND neurologist all say they dont know whats wrong,. The Rheumetologist says "Maybe its Fibro, maybe its all in her head".

<INSERT MASSIVE AMOUNT OF EXPLETIVES HERE>


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~Keilia~
   
Offline  Keilia
May 20, 2009, 10:31:19 PM

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Gender: Female
Posts: 455

Told You It Was Not All In My Head!
Im calling Dr Bolte tomorrow. I am so angry right now I have no idea how to even express it.  :angry :angry :angry :angry :angry Violent Violent Violent Violent Violent Aaarggh Aaarggh Aaarggh Aaarggh Aaarggh


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~Keilia~
   
Offline  Keilia
May 20, 2009, 10:33:38 PM

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Posts: 455

Told You It Was Not All In My Head!
Oh. And they are prescribing me Vicoprofen. Gee, thanks. Ive already told them over and over Hydrocodone soesnt o crap for this pain. Neither do NSAIDS. And that prescription is a combo of both. Why cant they just friggin listen to me?


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~Keilia~
   
Offline  Samantha
May 21, 2009, 02:27:42 AM

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I Will Be Diagnosed !
I just posted in another category about Fibromyalgia ...so maybe find someone who can test you for that  Smile

Bloody Doctors........ Cry see they have no idea or want to believe because it's not them suffering  aggressive I'm so sorry Keilia

 Huge Hug


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Offline  Keilia
May 21, 2009, 02:37:11 AM

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Gender: Female
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Told You It Was Not All In My Head!
I feel so....dismissed. Like because I have clinical depression I am not worth their time. I know what depression does, and trust me - it doesn't give you fevers. I looked up Fibro, and SOME of it sounds like it could be, but not the majority? I dunno. Everything I see says they cant test for fibro? I dont have pain in the right "Hot spots". I dunno. Im just angry =(


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~Keilia~
   
Offline  ohtobehealthy
May 21, 2009, 05:56:01 AM

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I posted in your other topic about your doctors.. since I am totally in the same boat as you with having anxiety/depression and being dismissed etc...

but... Not to offend anyone that has  been diagnosed with fibro or CFS.. I was diagnosed from my qauck of a doctor with CFS last year.  I DO believe that these are real illness' HOWEVER way too many doctors are giving diagnosis' for these illnesses that end up being misdiagnosis' because they honestly think its in the patients head, since depression comes along with these illnesses.
It makes me cringe when I hear others given this diagnosis.. because to me personally and from what I have experienced in this is that these are recently common diagnosis' for people that get test after test done and they come back normal. So I feel personally I was given this diagnosis so I would basically shut up and drop it. MANY many people are misdiagnosed with Fibro and CFS. That being said.. if there is a test for Fibro though i would do it just to say I did and be on the safe side. Might as well get it out of the way. Sorry for my lil rant that went on repeating itself too much lol   Smile  basically bottom line: doctors are often too willing to give these diagnosis when they don't want to put in anymore work because they think your crazy. IMO  Big Grin


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**Kristin**

First Struck with Anorexia on and off for about 6 years beginning in 1993. 1995 Diagnosed with GERD, IBS, Anxiety. 2006 Diagnosed with CFS, 2009 Diagnosed with Sleep Apnea and Circadian Rhythm Disorder and Hypoglycemia. 2011 Diagnosed with Vitamin D Deficiency and Hyponatremia. But... why?! I think I am one step closer to that answer ON my own. Your are your own advocate for your health! No one can tell you how you can or can't feel!
   
Offline  Keilia
May 21, 2009, 06:54:55 AM

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Gender: Female
Posts: 455

Told You It Was Not All In My Head!
Unfortunatly there is no sure fire test for Fibro. Once docs exclude what they think it might be, they use Fibro as a catch all. And I feel bad for people who do have fibro, because it takes away from them.


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~Keilia~
   
Offline  Samantha
May 21, 2009, 08:14:59 PM

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I Will Be Diagnosed !
I'm not sure how others feel when diagnosed with Fibromyalgia but in my case this is not the cause of my undiagnosed pain, and this has been highlighted from the Doctors, I have other non Fibromyalgia symptoms going on. We all agreed (which is rare with us undiagnosed patients  Smile) that once my undiagnosed issues are sorted we believe the Fibromyalgia won't be an issue, and I agree 100%.

The symptoms for Fibromyalgia are not what I have been complaining about for all these years, infact not one of them fits my lumpy area pain, it was just a bonus condition (aren't I lucky  Wink)



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Offline  Samantha
May 21, 2009, 08:24:33 PM

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I Will Be Diagnosed !
Just wanted to add.........

In some of us undiagnosed patients CFS is caused by being extremely exhausted from the pain and suffering. I think alot would agree with me here, so not the REAL CFS as such


And for the Fibromyalgia, we compensate by adjusting/lessening the pressure on certain areas (where our pain stems from) so we start noticing pain elsewhere because that area has started taking on more of the weight of our bodies.....hence we get aches and pains


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Offline  Keilia
May 22, 2009, 02:27:25 AM

Formerly Undiagnosed
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Gender: Female
Posts: 455

Told You It Was Not All In My Head!
Imagine that - the vicoprofen I told my doc would not work - doesnt work. Golly, gee, whiz... Cry


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~Keilia~
   
Offline  Keilia
May 23, 2009, 12:04:28 AM

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Gender: Female
Posts: 455

Told You It Was Not All In My Head!
And now, also, the pain has spread pretty much through my whole body. No point in going to the ER. But I wonder - why has no one x-ray'd my bones? I will be calling my doc on Tuesday (Monday is holiday here) to find out.

I have been seeing a lot about Fibro as a cause of undiagnosed joint pain. But each and every time, it states that Fibro has points that are painful when you touch them. And mine is not that way. So still ??? about that.  I am wondering now, if something is wrong with my back, since I have shrunk an inch in the last 6 months. That has to mean SOMETHING.

Sorry am blathering, I just have a need to talk.

K


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~Keilia~
   
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