Having a bad day

Having a bad day (Read 1616 times)

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Keilia

April 30, 2009, 09:37:54 PM

Formerly Undiagnosed
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Posts: 455

Told You It Was Not All In My Head!

Two days ago I was diagnosed with Lupus. This after being sick since 2006. Then, the next day, it seems there was a lab error and I do NOT have lupus.

The past 3-4 days my fever has been getting worse, but I have no infection or virus. My stomach has started hurting, and my hair is beginning to fall out. My fatigue today is so bad, all I have done is take a shower and I am exhausted. I can barely get out of my chair.

I just want to cry. I have no idea what to do. My tummy hurts =(

Keilia

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~Keilia~

Jenny

May 01, 2009, 03:07:21 AM

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I'm so sorry to hear that Keilia.. Huge Hug

I think a misdiagnosed illness is worse than an illness without a diagnosis (and it's hard to find anything worse than that!)

I don't want to scare you, but with this swine flu going around, you should definately get yourself checked out by a doctor.

Colds and flus have to run their course and there's nothing really we can do until it passes. So try to keep yourself hydrated and get plenty of rest. Please do me a favour and update me with how your doing as the week progresses. Keep your chin up hun!

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New28

May 01, 2009, 12:04:38 PM

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When all else fails, play dead!

Oh Keilia... Huge Hug

Life's not fair...get yourself checked out, please.

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Keilia

May 01, 2009, 06:02:28 PM

Formerly Undiagnosed
Sr. Member

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Posts: 455

Told You It Was Not All In My Head!

Already called my doc, and there is no swine flu in me...Thanks, though =)

Today is already starting off bad. My fever is at 102. Sadly, since last October this is not unusual. I have stopped cleaning, and my husband is having to do it. I feel so bad, cause I stay at home on disability and he works 40+ hours a week. I should be able to do this. But I am so tired. Its like swimming through mud.

It wouldnt be so bad if I didnt have the stupid fever. I can make myself do stuff even when tired, but even my eyeballs feel like they are on fire, as well as my joints. I know my husband is understanding, but I just dont feel like I am doing my part....

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~Keilia~

Samantha

May 03, 2009, 02:22:15 AM

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I Will Be Diagnosed !

Just a brief thought....have you tried Alternative Treatments ? maybe a herbalist, iridologist etc, perhaps just to help you get by until you've been diagnosed correctly...

I hope this week picks up and you're feeling better
Huge Hug

Sammy

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Keilia

May 03, 2009, 03:34:10 AM

Formerly Undiagnosed
Sr. Member

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Posts: 455

Told You It Was Not All In My Head!

Yep, my Aunt is very much into alternative meds. I cant do a lot of it because of my mental illness meds. Nothing so far has worked.

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~Keilia~

Samantha

May 03, 2009, 09:38:40 PM

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I Will Be Diagnosed !

That's a shame because some do help. BUT they can be rather expensive, it's the only reason I don't take anything these days ...I just don't have the money now I'm unable to work....

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Keilia

May 04, 2009, 12:19:22 AM

Formerly Undiagnosed
Sr. Member

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Posts: 455

Told You It Was Not All In My Head!

Yeah I can sympathize there. I am, thankfully, on disability for my depression/anxiety/hallucinations. I wish that were all that is wrong with me =(

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~Keilia~

ohtobehealthy

May 04, 2009, 04:25:10 PM

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Posts: 263

having anxiety and depression is a tough diagnosis to get around when you have an undiagnosed illness. Many doctors simply won't listen to you because of your "psychiatric issues" be careful there... my entire file for most doctors have this noted in them so its then "definately in my head" so its really really tough to get a doctor to listen. Its been a real struggle for me and possibly why I have gone so long undiagnosed. Alot of them don't realize that anxiety/depression is a symptom of alot of things out there. Instead they say the anxiety/depression is what is causing all the illness. I do understand that it wreaks alot of havoc on our bodies.. especailly stomachs and such but I doubt my anxiety is causing me all my symptoms.
Anyways.. just wanted to add that there.. good luck to you. Make sure you have a good doctor/specialist.

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**Kristin**

First Struck with Anorexia on and off for about 6 years beginning in 1993. 1995 Diagnosed with GERD, IBS, Anxiety. 2006 Diagnosed with CFS, 2009 Diagnosed with Sleep Apnea and Circadian Rhythm Disorder and Hypoglycemia. 2011 Diagnosed with Vitamin D Deficiency and Hyponatremia. But... why?! I think I am one step closer to that answer ON my own. Your are your own advocate for your health! No one can tell you how you can or can't feel!

Keilia

May 04, 2009, 11:21:12 PM

Formerly Undiagnosed
Sr. Member

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Posts: 455

Told You It Was Not All In My Head!

Yep, I have gone several years with docs telling me its all in my head. I am gearing up for hearing that, but I know for a fact it is not.

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~Keilia~

Keilia

May 05, 2009, 09:07:36 PM

Formerly Undiagnosed
Sr. Member

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Posts: 455

Told You It Was Not All In My Head!

I need to whine today.

My joint pain is absolutely killing me, and my fever is a bit higher today. I called my doc and left a message, the vicodin is not helping at all. Neither is ibuprofen.

/whine!
:sick018 Aaarggh

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~Keilia~

Samantha

May 05, 2009, 09:37:55 PM

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I Will Be Diagnosed !

Yell and scream all you like

it's good to get it off your chest. Keep at the Doctor, ring every 30 minutes if need be until you get an answer. I hope you feel better soon
Huge Hug

Sammy

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Keilia

May 06, 2009, 01:28:26 AM

Formerly Undiagnosed
Sr. Member

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Posts: 455

Told You It Was Not All In My Head!

She prescribed an anti inflammatory, similiar to something like Celebrexa or Celexa or something. *sigh*

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~Keilia~

Keilia

May 06, 2009, 01:33:13 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

My tummy hurts *WHINE SCREAM YELL COMPLAIN ETC*

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~Keilia~

ohtobehealthy

May 06, 2009, 02:37:21 AM

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Posts: 263

does your stomach hurt in a specific area?? is it a stabbing pain? or just continious? what were you taking for the joint pain?

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