Keilia's Story

Keilia's Story (Read 6599 times)

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Keilia

October 04, 2009, 07:49:55 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

I did bitch. But maybe not strong enough, I dunno. I'm giving him the three weeks (He's in Africa doing medical work there for three weeks) and then I'm insisting on the surgery - and either he will do it, or I will find someone who will. Right now - and every night - I have ice packs and warm compresses to help with the pain. Fun times! But this too shall pass. I will get help soon, and diagnosed soon. I will!

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~Keilia~

Samantha

October 04, 2009, 09:27:10 PM

Group: Administrator
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Posts: 921

I Will Be Diagnosed !

I know you will too

Your right though, if your prepared for the surgery then that is your decision, no one elses

Huge Hug

Sammy

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trancy221

October 20, 2009, 08:26:42 AM

Jr. Member

Posts: 40

Hello Keilia

How are you at the moment? Huge Hug

Have you ever been tested for Lyme`s Disease,Hep C,Epstein`s Barr or some other chronic infectious diseases?
Fever can be (but must not) be indicative for something. Confused

Good luck,
trancy

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Keilia

October 20, 2009, 08:44:53 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

I have been tested for ALL hepatitis, and they are neg. I have been tested for Lyme's before and that was neg, but I am thinking of having that repeated. Isnt Epstein Barr the virus that causes mono?

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~Keilia~

trancy221

October 20, 2009, 11:23:29 AM

Jr. Member

Posts: 40

Hello Keilia

I don`t know so many about the mono thing...

Do you have problems with that also?

Nice greets

trancy Dance

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Samantha

October 20, 2009, 05:05:59 PM

Group: Administrator
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Posts: 921

I Will Be Diagnosed !

Keilia I know it won't diagnosis you but might help the inflammation a little.... look very closely at your diet, alot of foods cause inflammation. I've mucked around with my diet over the years and although not a cure it has perhaps helped ease the pain caused from inflammation about 5%, doesn't sound much but tiny bits of relief help

Huge Hug

Sammy

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Keilia

October 20, 2009, 07:00:39 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

I had mono when I was 15. Once you get the virus that causes mono, you have that virus in your body for the rest of your life.

Sammy -

My cousin actually just sent me an anti-inflammatory food pyramid - so I am shopping,m cooking and eating from that. It will likely take some time to work, but my cousin, who had UCTD (which is most likely what I have) swears by it.

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~Keilia~

Samantha

October 20, 2009, 07:34:28 PM

Group: Administrator
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Posts: 921

I Will Be Diagnosed !

Keilia I'd love the list of "anti-inflammatory food pyramid" too if you could pm some info Question

I've elimnated Nightshade foods (too much acid which causes inflammation) but I know there are so many other foods...One I was surprised at was Tobacco Very Scared

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Keilia

October 21, 2009, 06:55:41 AM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

What are Nightshade foods?

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~Keilia~

Samantha

October 21, 2009, 05:37:10 PM

Group: Administrator
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Posts: 921

I Will Be Diagnosed !

I made a post about these ages ago :
http://www.undiagnosedillness.org/index.php?topic=113.0
last post

Google it to find more info

Quote from: Keilia on October 21, 2009, 06:55:41 AM

What are Nightshade foods?

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Keilia

October 22, 2009, 12:51:12 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

Anti-inflammatory food pyramid website: http://www.drweil.com/drw/u/PAG00361/anti-inflammatory-food-pyramid.html

Huge Hug

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~Keilia~

Samantha

January 16, 2010, 05:00:22 PM

Group: Administrator
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Posts: 921

I Will Be Diagnosed !

Keilia how's everything going Question

any closer to a diagnosis yet Question

Praying 2010 is a better year for all of us
Huge Hug

Sammy

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Keilia

January 19, 2010, 01:34:58 PM

Formerly Undiagnosed
Sr. Member

Gender:

Posts: 455

Told You It Was Not All In My Head!

Last doc vist, she says "Its definately autoimmune, probably Adult Onset Still's Disease and Ankylosing Sondylitis". But we shall see. I now have my THIRD round of pneumonia since August.

/cry

My HS is flaring worse than I have EVER seen it. Its why I havent been here much lately, Ive been too sick =(

But 2010 will be better, I know it!

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~Keilia~

Samantha

January 22, 2010, 04:13:43 PM

Group: Administrator
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Posts: 921

I Will Be Diagnosed !

Yep 2010 will be better I feel positive Big Grin

I hope this new specialist can help you out and you're feeling better soon

Huge Hug

Sammy

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mello

August 10, 2010, 11:49:31 PM

Newbie

Gender:

Posts: 7

on a quest for health

Hello Keilia, I'm not sure if you've done this already but your symptoms sound neurological. If you've had brain scans done i would recommend getting a second and even 3rd opinion on it, or go for more brain scans. My mum has the same symptom of the very painful pins and needles and they said it was something called small fibre neuropathy. For this thay presribed a low dose of an antideppressant. It was effective for a while but has stopped working.

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just because doctors give up on you does not mean you should give up on yourself!!

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