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 May 21, 2009, 07:19:28 AM
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Formerly Undiagnosed
Sr. Member
Gender: 
Posts: 455
Told You It Was Not All In My Head!
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Fibromyalgia
Widespread pain and tender points I have pain, but no tender points
The pain associated with fibromyalgia is described as a constant dull ache, typically arising from muscles. To be considered widespread, the pain must occur on both sides of your body and above and below your waist. Mine is joint pain. I have some muscle aches, but they are few and far between
Fibromyalgia is characterized by additional pain when firm pressure is applied to specific areas of your body, called tender points. Tender point locations include:I do not have this. I have joint pain
Back of the head - nope
Between shoulder blades - nope
Top of shoulders - nope
Front sides of neck - nope
Upper chest - nope
Outer elbows - nope
Upper hips - joint only
Sides of hips - nope
Inner knees - nope
Fatigue and sleep disturbances - yes
People with fibromyalgia often awaken tired, even though they seem to get plenty of sleep. Experts believe that these people rarely reach the deep restorative stage of sleep. Sleep disorders that have been linked to fibromyalgia include restless legs syndrome (yes) and sleep apnea.(no)
This has Fibro tender points - I do not have this. All of my pain is contained in my joints, with an occasional muscle ache.
So if all of the above info is correct, fibro would not be the diagnosis to go with. I have printed all of this out to show my doc.
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~Keilia~
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May 22, 2009, 03:17:46 AM
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Formerly Undiagnosed
Sr. Member
Gender:
Posts: 455
Told You It Was Not All In My Head!
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Oh my...Apparently there is such a thing as negative ANA Lupus...
Viewer Question:
I have had 90% of the symptoms that go along with lupus. Please let me know when someone is ANA negative, but still has lupus. My ANA tests were 1:40 and 1:60. I've been tested for a few antibodies, and so far nothing shows positive. How can someone have lupus and be negative ANA?
Signed,BC
Doctor's Response:
When a person satisfies the criteria for systemic lupus erythematosus (lupus), but has a negative ANA, the condition is referred to as ANA-negative systemic lupus erythematosus. ANAs are negative in approximately 5% of patients with lupus. In these patients, frequently there are other antibody markers of lupus present, such as cardiolipin antibody, anti-smith antibody, DNA antibodies, and SS-A and SS-B antibodies.
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~Keilia~
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September 17, 2009, 10:58:20 AM
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Formerly Undiagnosed
Sr. Member
Gender:
Posts: 455
Told You It Was Not All In My Head!
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Well, it seems my symptom list needs to be updated....so here we are!
Symptoms
Low grade fever and abnormally low body temperatures
Dizziness
Pins and needles – fingers, feet, toes
Impaired thinking/confusion – 2006-present
Impaired memory – progressively worse, 2006 – present
Sensitivity to heat and cold, especially water
Joint pain – late April 2009. Progressively getting worse.
Wrists, knees, ankles, have progressed to finger joints
Tremors – 2006-2007, began again April 2009
Clumsiness/falling down – 2006-2007, began again April 2009
Headaches – every night Jan 2009 – present
Difficulty swallowing – Jan 2008 – present – several times a day
Chest Pain – feeling of heavy weight on chest with pain and trouble breathing (Aspiration Pneumonia July 31, 2009 – August 11, 2009) Now have pleurisy
Fatigue – Severe 2006-2007, progressively worse April 2009- Present
Quick Weight Gain – 2008 (160 lbs to 256 lbs)
Quick Weight Loss – 256 lbs to 214 lbs in the last 3 weeks (Aug-Sept 2009)
Feet falling asleep frequently – May 3, 2009 – Present
Lips going numb frequently – May 2, 2009 – present
Nausia
Migraine headaches March 2009 - present
Tachycardia – August 27, 2009 – Present
Telangiectasia on my nose, cheecks, and chest
Raynaud's Phenomenon
Severe Stomach pain August 19-present
Severe stomach pain when eating August 12-present
Fat in liver Aug 27, 2009 –present
Profuse sweating, esp. on head and neck, August 2009-present (even when its cold)
LARGE amount of hair loss Sept 2009-present
Pale stools - were yellow now are almost white
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~Keilia~
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October 02, 2009, 05:43:26 AM
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Formerly Undiagnosed
Sr. Member
Gender:
Posts: 455
Told You It Was Not All In My Head!
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Going to the doc today at 2:30 Pacific Time to see if I am going to have surgery for the boils. The antibiotics are useless, the special cleansers are useless. I get sharp stabbing pains in them. And this is REALLY GROSS - so stop reading if you dont want to hear it - but my husband says the affected skin smells like it is rotting - and I have to agree. I am completely grossed out. The surgery would be to remove the affected skin, sweat and hair glands, and the underlying fat. Then graft new skin on. The surgeon said it is a very disfiguring surgery, but after all this time, pain, and the huge gross out factor, and the chance for me acquiring necrotizing fascitiis (flesh eating bacteria) is actually quite high - plus developing cancer is a possible complication of letting a case this severe persist - I want the surgery. The benfits WAY outway the risk in my opinion. I can no longer lift my arms up hardly at all. (swelling and pain), they drain constantly with no improvement, and I cannot even take of my shirt without wanting to gag, so my intimate life has definately been affected. I am scared to be put under, and do NOT look forward to the post op pain and hospital stay, but it would be better than this.
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~Keilia~
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