I didn't know where to put this... but here is an Update so far.
two weeks ago I was also diagnosed with severe sleep apnea. My right eye kept getting red and inflammed so I went to an opthalmologist whom I was not super impressed by. He told me I have "dry eyes" and every thing else looks ok. He wanted me to especially use an eye drop because the CPAP machine for my sleep apnea could cause dry eyes appearently everything else in the eyes looks fine, he dialated the eyes and took pictures or them etc. They look fine...
despite the wierd bug looking spots I keep seeing and the constant wave like headacheless migraine stuff.. only thing about the headacheless migraine theory is they say that the "waves" typically last 20 minutes.. well my waves last all day every single day. So I dont know... whatever...
I then went to a top nuerologist in seattle she is at the Swedish hospital, this would be my second nuerologist to be exact. I took my MRI films and my medical history. She had brought up mysenthia.. I think thats how you spell it but then again she said there was nothing absolute in me and my symptoms that was "jumping out at her" or that "aha! moment" damn! oh well.. I am used to that by now. What sucks is I wasted alot of time and gas to get there for her to say this to me. Thats the story of my life though. What she was sure of is that it was not any sign of MS or ALS or parkinsons. She told me that she thinks my symptoms and etc that I am not going to "die from any of it anytime soon"
that was kind of annoying. I know I probably won't die from this.. but what about improving my quality of life? Don't doctors care about that anymore!? hmmph!
One thing she was concerned about was my glucose levels and sleep apnea. She asked me "So... why do you have blood glucose and sleep apnea?" when I said I did not know... she said "that is odd because you do not fit
the typical type for either of those. Most people with issues like that are obese.
and you clearly are not. So I am wondering if this is something with you endocrine
system." She was also concerned about the pituatary gland in the brain, problems there
often cause sleep disorders in correlation with insulin etc. Something like that. Although
she said the MR films looked normal as far as size of the gland.
I went then the next day to my GP, he sent me a referral for an endocrinologist but
those guys are busy. The soonest appt. I could get was October 15th!!! oh well I set up the
appt. In the meantime my GP has me going in on monday morning to draw blood for a battery
of endocrine tests, cortisol,inuslin, ACTH, the basic metatoblic panels, testosterone levels, etc..
there was like 5 other things on that list for the lab but I dont remember at this moment.
So thats where I am right now. I hope and pray that SOMETHING is found in that blood test.
If nothing is found with the endocrinologist I THEN go back to that neuro in Seattle to
do an EMG and an EEG for three days in which I would reside in the hospital for the duration
of that test.
Still have the colonoscopy on July 21st and then going to look into the endo option more
after I am done with all of this. Most likely will discuss this further with a gyno whom
is well taught in this area. Most likely though not till the end of this year. I spend all
my free time as it is in doctors/specialist offices, I have so many procedures and or
surgeries this year. That I am near a medical "burn out" If nothing is found after all this
I may need to take a medical break. Then possibly think about spending a week in MN at
the mayoclinic.