Update on My Saga

[Samantha]

Just wanted to give a brief update ...

I will update my website:
http://www.undiagnosedillness.org within the next week about the appointment with the NEW PROFESSOR

I'm now booked in to see a neurosurgeon in September...
Long wait again..........    :'(

[Jason-son]

what'd they say?!

[Samantha]

Few issues with my neck but nothing of major concern  >:(
Seeing an Osteopath next week for the neck, basically wear and tear from age though which is something I'll have to live with.

[Jason-son]

Sam, i'm trying to find it, what exactly is the rundown on the progression of your symptoms?

because i think I might have an idea.

[Jason-son]

an i dont mean medical symptoms.. what do YOU feel

[Samantha]

Sorry Jason I don't quiet get what your saying ??
I posted updates on the forum about the professors, osteopath etc so sorry if I'm missing something here ??
And yes I did just wake from afternoon nap  ;D

an i dont mean medical symptoms.. what do YOU feel

[Jason-son]

i mean, not what doctors have told you.. IBS, endometriosis, lesions, things like that.  (medical symptoms).

but how exactly do you feel? tired? pain? where is the pain? whats it feel like. how'd it start? how has it progressed?

these questions are scattered through your posts, so how do you feel? :)

[J a s o n Snr]

I know there's more to this site than the message board, Samantha has some explanations in another area.  My accessibility features squeeze the lettering on that page though, so that the words all overlap each other and are unreadable unless I reduce the type size, which I don't want to do.

[Samantha]

Sorry about that Jason, I have set the website up so it's easy to read through internet explorer and firefox.
What browser do you use? perhaps there is something I can do to adjust the text.

I know there's more to this site than the message board, Samantha has some explanations in another area.  My accessibility features squeeze the lettering on that page though, so that the words all overlap each other and are unreadable unless I reduce the type size, which I don't want to do.

[Samantha]

Hi Jay  :)
I have extreme pain through the rib cage, 90% is left sided. The lump is also painful (I posted in pictures)
What's your idea I would love to hear ??

Samantha

Sam, i'm trying to find it, what exactly is the rundown on the progression of your symptoms?

because i think I might have an idea.

[Jason-son]

well, i was reading your story.. not all of it though.. it was really long and i got tired.. hah :P but you said originally you felt like you were pregnant.  you were having pains, and that it was much worse after your ultrasound. 

well, there is a possiblity that you were, but that you had an ectopic pregnancy.  if you dont know what this is, it is when an egg accidently gets fertilized in a place other than the uterus.  it can happen in the fallopian tubes, the ovaries, sometimes they can migrate out and into the abdomen, under the ribcage, behind the kidneys, whatever it can happen.  well, when getting an ultrasound if they are not looking for an ectopic, they probably will not see it, and since you had a transvaginal ultrasound, there is also a possiblity that the US device could have poked and killed the fetus.  which could explain why it got so much worse afterwards.  IF you were pregnant, and it died, since it was ectopic it would not be able to pass through.  it would remain in your system and could potentially poison your body with dying cells.  this could also explain allergy type symptoms from the poisoning, if you no longer feel "pregnancy" type symptoms (because it died) and the sole fact that there is a lump, pain in an isolated area, and even fluid in your sac of douglas.  but this is just an idea, and if it was true, they should be able to see some sort of mass in your abdomen if you had a ct or mri of the area. 

if you have had scans of your abdomen, (NOT ULTRASOUND) i'm not sure if you have.. and no masses were seen.. then.. uhm... i'll get back to ya..  :P

[Jason-son]

also, since ectopic pregnancies are in locations not designed for it, they will often "leech" blood from arteries and veins near by.  so during the time when it first started if you ever had tingling, fatigue, or other "lack of blood" type symptoms,this could also explain those.

[Samantha]

You know what when I first began to experience pain and my stomach starting to grow I was 100% sure I was pregnant. But then after so many negatives and still having periods I thought nahhhh can't be, but this was always on my mind and constantly an issue for me (perhaps the baby was hiding, or some wacky thing was going on as to why it was not showing up on ultrasounds etc) Plus the fact everyyone kept saying pregnancy is not this painful...
It took me a long time to get over this and I wasn't "wishing for a baby" either. (we put that off because we enjoy our lifestyle too much, at the time anyway !)Despite no children (hence I really didn't know what it feels like to be pregnant) I just felt yep I must be, leaking breast milk, stomach growth...
Anyway I've had too many surgeries for it to NOT be found in there  :
But your theory does make sense to me in alot of ways  :)
Im assuming the inflammation through the rib cage is what's causing the abnormal lump and severe pain, and perhaps to some extent my odd shape and distended stomach is caused from inflammation .... I will plod along as you do when faced with undiagnosed symptoms   :'(

[Samantha]

Sorry I know it is boring and very very long

well, i was reading your story.. not all of it though.. it was really long and i got tired.. hah :P but you said originally you felt like you were pregnant.  you were having pains, and that it was much worse after your ultrasound. 

[J a s o n Snr]

Sorry about that Jason, I have set the website up so it's easy to read through internet explorer and firefox.
What browser do you use? perhaps there is something I can do to adjust the text.

I use IE but with accessibility features, everything looks radically different.   I have no idea why some sites have overlapping words and some don't.  Your accounts have overlapping words but this message board doesn't.

Good explanation, Jasonsonson.