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Undiagnosed Illness Forum  > Appointment/Tests/Calendar Events > Calendar Events > Topic: Shand's Research Hospital
May 21, 2012, 07:14:21 PM
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Shand's Research Hospital  (Read 2549 times)
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Offline  Jason-son
March 31, 2009, 12:39:30 AM

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Tired..
I got into a research hospital upstate.  It's about 2 hours away, so.. gonna be a roadtrip! woo


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Offline  Cathie
April 01, 2009, 10:06:32 AM

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So how long are you there for and what happens do you know ?


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Offline  Samantha
April 01, 2009, 07:30:21 PM

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I Will Be Diagnosed !
Yeah I have the same questions as Cathie  Smile do you sleep over or travel every day ?


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Offline  Jason-son
April 01, 2009, 08:33:09 PM

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Tired..
i havent recieved the info packet from them yet so not to sure what to expect, i'll keep yall updated though


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Offline  Cathie
April 01, 2009, 10:15:08 PM

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Still -  pretty exciting  Smile


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Offline  Cathie
April 23, 2009, 11:05:40 PM

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Has the info pack come yet?


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Offline  Jason-son
April 24, 2009, 01:41:23 AM

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Tired..
no, lol.. i called them and unfortunately they didnt know it was an apartment so no clue where it ended up.  they sent out another one, should be here soon


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Offline  Cathie
April 24, 2009, 08:59:45 AM

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Good to know they didn't just cross you off their list for not answering or something.


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Offline  Jenny
April 29, 2009, 04:51:55 PM

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So are you all ready and packed for the roadtrip tomorow?


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Offline  Samantha
April 29, 2009, 09:29:28 PM

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I Will Be Diagnosed !
Good luck at the research hospital tomorrow Jas  Big Grin


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Offline  Jason-son
April 30, 2009, 03:11:02 AM

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Tired..
thanks :)

hopefully it will go well.  i guess it's going to be a full hour long appt! this seems promising.  mom and I gotta leave at 630 tomorrow to get there on time.  how ridiculous is that!? i hate getting up that early.

anyway i'll let you all know what happens


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Offline  Jenny
April 30, 2009, 03:30:35 AM

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I have to wake up early too for my calculus final :(
Good luck!  Smile


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Offline  Jason-son
April 30, 2009, 04:57:48 AM

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Tired..
good luck on your finals! i finished mine yesterday


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Offline  Samantha
April 30, 2009, 08:35:47 PM

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I Will Be Diagnosed !
Good luck Jenny  Big Grin


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Offline  Jason-son
May 01, 2009, 02:17:36 AM

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Tired..
So got back from my appt this afternoon.  I could certainly tell why this guy was the "top dog".  I think my 40 min appointment went on for almost 2 hours.  He went through all my medical records, pictures i had, symptom list, my whole story.  everything.  Anyway, he was a hematologist, and i was really sent to be evaluated for the porphyria (yeah my doctors still think that was it).  and as suspected it isnt.  He couldnt think of any blood disorders that could cause anything of mine. 

Ive been advised to see a neurologist and a nephrologist.  maybe go back and see an endocrine too.

also, interesting thing he noted from my lab work is I definately had mono. I did not know that.  I think that explains the super lethargy i had in the very beginning.

maybe mono triggered something?


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If you have to ask, you are not ready to know -
   
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