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 June 20, 2009, 08:23:34 PM
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Jr. Member
Posts: 18
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 Thanks for all the support and encouragement. God has been most merciful to me and granted me patience way beyond anything I'm capable of. The motor doc basically told me nothing other than that he was going to work through my PCP. He said he would call him. He hadn't as of my last visit two weeks ago. I see him this coming week and hope he has news for me. I know that this motor doc was in agreement with alternative medicine and since I have such a problem with medication, I'm happy he feels that way. My PCP is a DO and does both at one appointment. I am renting a knee walker as I can't take the pain in my foot any more and don't want to be house bound in the summer. The crutches were causing problems with my chest wall. They have discovered a small mass on my chest wall that needs to be biopsied this week. I hope I can manage the knee walker - old clutzie here could easily end up up-side-down! I tried Canadian crutches but couldn't maintain my balance. LOL. I am in pool therapy and I love the warm, warm water. My foot, ankle, and leg don't enjoy some of the simple exercises - like walking frontwards, backwards, and side-to-side. The rest of me has a good time! My other doc is waiting on records to arrive from previous docs. I saw his PA and brought her my records so she had something to look at. She said the doctor loves a challenge. Fantastic. I have a three week wait to see them. Hopefully the records will have made it by then. We haven't had much sun or warm weather but everything is blooming extensively and green is everywhere. I have never seen my roses bloom in such numbers. I have daisys galore and almost as many lilies. Love the colors. May all of us find peace, patience, and joy everyday as we wait on dx. Keep those prayers coming. I'll be sending up prayers for all who so desire. FeatherMe
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June 26, 2009, 06:47:15 PM
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Group: Administrator
VIP Member
Gender: 
Posts: 921
I Will Be Diagnosed !
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I've not experienced biofeedback but was going to try this a long long time ago for muscles in my bowel, but after several more Specialists and more testing we all confirmed despite one specialist saying it was my bowel that it isn't infact my bowel, the problem is something else, which in turn puts my bowel under a lot of pressure ... Anyway long story again (when is it not long for us to explain  So while I haven't tried the biofeedback I've heard alot and read alot about it. I did speak with the clinic and had a round of testing (pre testing to see if I would fit into the program) It re-trains the mind to get bodily functions working again, I guess you can say it's almost like learning to ride a bike, although we never forget sometimes certains signals don't work after a period of time, we either get slack with a particular body part or the signals go haywire and stop functioning, so we need to re-train our brain to get that function working again. Might be worth a shot  if you don't like it then stop and keep trying with other Doctors/Specialists in the mean while. I wish you could find an understanding Doctor it can make so much difference  Be strong I know you'll get through this, don't let this Doctor get to you, it's not him living in constant pain and suffering  Sammy
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June 26, 2009, 10:43:29 PM
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Jr. Member
Posts: 18
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I have a bad habit of reacting emotionally before thinking things through and end up putting myself through stuff I don't need to. I am doing some better - at least it doesn't take as long as it use to to recognize it and now I have a better way of getting out of it. I feel God telling me, "It's only a man's opinion. It isn't truth. You know the Truth." I feel God's way of healing and retraining the emotions is the way for me to go. I take three steps forward and two backward. I am slowly making headway. My spiritual life has become the most important part of my life. I know there is no possible way I can make my body do what it does on my own so when he says it isn't neurological I know he's wrong. His basis for his dx was he's never seen anything like it before! Therefore in his thinking, it must be the patient doing it from some mental condition. What arrogance and ignorance! I just hope my new doctor who is excited about a challenge doesn't get overly influenced by reading these reports that seem to come to some where near the same conclusion for the same reasons. Thanks for your interest and encouragement. 
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August 11, 2009, 12:50:48 AM
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Jr. Member
Posts: 18
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 Still fighting but now I have lawyers with me. I learned that not only did the doctor put in hardware that was too large, he also fused my toes at the wrong angle. There is no possible way for me to put my foot flat. It has created a sore point on my one toe. The pain is bad. I was told that the doctors should have found the source of my foot drop before operating. I don't know if the foot can be fixed or not. I saw a marvelous pain management doctor today. He made me feel so comfortable. He realizes he can't do anything for my foot as it is a mechanical problem but he is interested in going after my back pain and foot drop. For years I have had abnormal MRIs of the spine but no one has paid any attention to them and I continue to have back pain but what is worse is the weakness in my legs has increased a great deal. Does anyone have "dents" in the muscles in their calves or thighs? Does anyone have or know anyone who has paroxsymal kinesthetic dystonia? I would really like to talk with someone about this. I have been dx with prediabetes and told to exercise. Swimming is the best form for me as I don't have to be on my feet! Thank goodness we are finally having summer and I just have to walk out my back door. Colder weather will cost me! Thanks for listening and any answers you can give me.
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