Welcome To The Undiagnosed Illness Forum

HomeHelpUndiagnosed Illness ForumsRegister

Welcome, Guest. Please login or register.
May 21, 2012, 07:07:33 PM
News: If this is your first visit, please read the forum rules and guidelines

Pages: [1]   Go Down
Cracked  (Read 732 times)

Sr. Member
****

Gender: Male
Posts: 319

Tired..


I decided to go to the dermatolist's office today.  i havent been there in a long time and was gonna see if she had any insight into some of the skin manifestations i've had.  the purple fingers, dark joints, dark scars, and the rash i have.  I was not prepared at all for what happened.  I go in, i had no intentions of talking about everything, i just wanted to see if she had any ideas about the skin parts.  so she walks in and goes "hello, nice to meet you, what can i do for you?"  and i go "well, i guess for starters.. i've been sick for a really long time and i think it's begun to manifest itself in the skin and i'd like your opinion on it".  but i guess the way i said it she could tell i was clearly upset about it.  I really didnt want to get into it all and totally avoided going into detail.  well she could tell and was like "there is no way a 21 year old like yourself could be so clearly obsessed with a couple of markings on the skin" and after i told her i'd been to 18 doctors and still failed to mention any real symptoms she started asking me if i "liked the attention i was gettting from the doctors" "how did i feel about it" and immediately i knew she thought i was a Munchhausen patient.  realized i had to tell the story cause i can't just say "i've been sick for a really long time" "its ruined my life" "i cant get a a diagnosis" "and have seen 18 doctors".  and only tell her about a rash.  Well reluctantly i started telling her everything. and as soon as i did it was like openning the flood gates.  i freakin cracked.  as i was talkin aobut every thing i got so unbelievably upset.  i've never been that upset, not even last time when i cracked in front of a doctor.  it was to the point i couldnt barely even talk.  it was a combination of sadness over everything, and fear that she thought i was making it up.  But as i got through it her demeanor completely changed.    apparently i was so upset that i completely broke out in hives, i didnt even notice.  it was uncontrollable.  it was hard for me to calm down.   but anyway, by the end, once she understood why i was really there was completely supportive and gave me all kinds of advice for what to do when i go to the research hospital.  and while unfortunately had no clues to anything, and apparently my rash is just a stretch mark :(.  what an odd place for a stretch mark.  i havent even gained that much weight. how does that happen!?.  didnt really have any ideas to anything, but. it was quite the visit.  lesson learned.  if you're going to a doctor to find clues to some crazy illness and they are unfamiliar with your case, cant say things like "there is something seriously wrong with me that has ruined my life" and only show discolored fingernails and a stretchmark.  my mistake.


-------------------------

-------------------------
If you have to ask, you are not ready to know -
   

Sr. Member
****

Gender: Male
Posts: 319

Tired..


i'm sorry everyone for all these downer posts lately.  my ability to cope has just really been on the fritz lately.  just been noticing the date a lot more recently.


-------------------------

-------------------------
If you have to ask, you are not ready to know -
   

Full Member
***

Gender: Female
Posts: 232


I tried so many times yesterday to answer this but my connection is terrible lately.

Don't ever be sorry for the way you're feeling, you can't help it and you are allow to feel how ever you want.
The dermatoligists appiontment must have been hard for ya, exhausting i'd dare to presume. I know how you feel (well you know what i mean), Some days/weeks/months it's just too much, there is only so much pain and uncertainty a person can cope with i reckon. Some days all i have to do is stub my toe and it's the straw the broke the camels back, so to speak.
The stretch mark thing, i know one of my girls is prone to them, and has a few just from getting taller in places i wouldn't have thought of, that said, you can always get a second opinion on that, she could be wrong or wrong about the reason.
Also i get (i think) what you mean about being selective about what you say to doctors or people, i had the same kinda reaction with that bladder physo the other day. I knew the look she was giving me, especially when i say i'm just a mum. It's like 'a bored housewife wanting attention' kinda thing at the same time when i've tried to tell some doctors/specialists they fob you off with, 'i don't need to know all that'. It's bloody frustrating.
Anyway, back to you, sorry I'm rambling again, How's today going, any better ? It's hard to put on a happy face when nothing in your life is normal, and very few people get that i think, unless it's actually touched their lives somehow. Sometimes i wish i could reach out and touch peoples arm for a few seconds and transfer the pain over, then ask them how you are suppose to deal with it 24 hours a day.
I need to write my daily routine down, i have so much trouble remembering stuff, I've also started keeping a section where i write maybe one thing that made me happy for that day. Sounds lame i know, but sometimes it helps. Sometimes all i can think of is that i'm happy to have a roof over my head. Some days it does help, maybe it's seeing a butterfly or a bird, and because i need to go back to my book often during the day, i'll remember it again and again. 
It does sound like your having more than a bad week though, so i'll stop rabbitting on Huge Hug
Hope today is better. BTW, i think you do great, you are so young and it's not fair, but i reckon you do great, you sure are a nice person  to know  :)


-------------------------
   

Full Member
***

Gender: Female
Posts: 232


Hey Jas, in your photos section, that purple scar you have a photo of, is that what she said is a stretch mark ?


-------------------------
   

Group: Administrator
VIP Member
**********

Gender: Female
Posts: 920

I Will Be Diagnosed !


So sorry Jas 
Bloody doctors........aggressive   Aaarggh

Don't apologize for any posts, your always welcome to have venting and screaming days, we all have them mate xxx
I know its easier said then done, but vent and have a good cry (yes its good for you) then try to put this one out of mind, onto the next stage, you gave it a shot and now must pick yourself back up. Buggar this doctor...just because she has no idea and reckons your skin complaints are nothing to worry about, a more skilled professional may just help at a later stage......

Be strong
 Huge Hug


-------------------------
   
0 Members and 1 Guest are viewing this topic.
Pages: [1]   Go Up


Jump to:  

Copyright 2008 - 2012 http://www.undiagnosedillness.org All rights reserved

Medical Resources  |   |  Home Care |  Ohio Sleep Center | 

 |  Best Electronic Cigarettes |  Acai Berry |  Wheelchair Ramps | 

May 21, 2012, 07:07:33 PM
Powered by SMF 1.1.16 | SMF © 2006-2007, Simple Machines