My 3-Year Struggle

My 3-Year Struggle (Read 9987 times)

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Jason-son

March 10, 2009, 04:37:52 AM

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Tired..

well, not an MRI, but still could be useful. Sella turcica is the "saddle" like portion of the brain skull where the pituitary is located. its not the putitary but the bone formation around the pituitary. i wasnt aware xrays could be used, but it makes sense that abnormal findings in the bone could mean problems with the tissue. plus it's way cheaper ;)

keep your chin up!

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If you have to ask, you are not ready to know -

Jenny

March 13, 2009, 01:44:09 AM

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So, I had the pelvic ultrasound done today.. they said everything seemed normal Cry

but I wasn't expecting anything anyways. I had an ultrasound done before. All I can do now is rule out possible illnesses so I can narrow it down to a few.. Next step for me is the pituitary x-ray, 24 hour urine, salivary cortisol and blood test. Wish me luck! :angelic011

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Cathie

March 13, 2009, 03:29:49 AM

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Same with me, Just rule everything out. Do you have the dates of the other tests yet?

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Jenny

March 13, 2009, 01:45:22 PM

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No, these tests don't require appointments, I can get these tests done at any old clinic.

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Cathie

March 14, 2009, 08:01:43 AM

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Well thats handy

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Samantha

March 14, 2009, 10:57:11 AM

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I Will Be Diagnosed !

I know it's good news.. but bummer about the ultrasound not showing anything.. Violent

Keep us posted on your next tests, and I hope your feeling ok

Sammy
Huge Hug

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Jenny

March 18, 2009, 01:22:38 AM

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So yesterday I went to get my battery of tests done. I asked the lady who took the x-ray of my sella turcica if this procedeure is used for finding pituitary adenomas (tumors). She said its not really meant for that purpose, more for finding thick bone growths on my skull.. I wonder why my GP got me to do this test? Confused

I'll ask again for an MRI next time I see him.

Also, the salivary cortisol test wasn't available at the clinic I went to, so I have to get it as this other hospital.

I got my huge orange jug for the 24 hour urine cortisol test. Planning on starting when I hit my low.

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Jenny

March 22, 2009, 12:52:00 AM

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I have a new theory! Pelvic Floor Dysfunction.

It explains the bowel problems and my problems with urination. Maybe something is compressing on the urethra, making my flow weak. Maybe the same thing is compressing on my rectum, which explains the weird mass that blocks my rectum whenever I strain. I think that thing is my small intestine. Explains why after exercise (especially jogging), my inability to pee or poo gets alot worse. The intestines might be sliding lower and lower into my pelvic area compressing on my lower pelvic organs.

I don't know for sure, but I think I should go to a gastro doctor and maybe rule it out or rule it in? (If that makes any sense..)

PS. I didn't do my urine test or my cortisol test yet, so Cushing's disease isn't ruled out yet.

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Samantha

March 22, 2009, 03:34:30 AM

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I Will Be Diagnosed !

Might be worth while getting tested for Pelvic Floor Dysfunction, just make sure you find someone who specializes in it.

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Jenny

March 25, 2009, 12:50:05 AM

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Thanks Sam, luckily I found a clinic in my city that specializes in disorders of the pelvic region.

Just got a call from the doc today, telling me im being booked for a CT scan of my brain. I was so sure that they finally found something.. the doc said he found nothing wrong with the xray of my skull, so he's just taking a step ahead and getting a CT done on me. I really don't think its my brain, but I guess it wont hurt to go on with the CT.

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Jenny

March 30, 2009, 03:55:51 AM

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Sorry guys..but I'm going through a rough time.. I'm feeling down these days..like really depressed. I feel trapped in my own body and I absolutely and utterly HATE my life. I feel so angry at everyone and everything. I hate how this happened to me, and I how I'm not living the life I was meant to live. I would give ANYTHING to find what's wrong. I'm tired of these stupid f***** doctors who can't do their f***** jobs. I don't want to live like this forever. This is NO way to live!! Violent

I thought that maybe as time passes, I'll learn to accept what I have, but it's the opposite. I'm getting more and more desperate and frustrated. I'm young and have the whole world ahead of me..but this unknown THING is always in the way. I'm losing my friends, my looks, my energy, my self-confidence and my patience. THIS IS NOT FAIR!!! !&@&*@!*&@^
This is a nightmare and I may wake up..
I just want to stay in my house and never go out..
Sorry guys, but I don't think I'll ever get used to living like this.

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Jason-son

March 30, 2009, 05:01:05 AM

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Tired..

I'm pretty sure how you're feeling is a recurring theme for all of us Jen. you dont ever have to be sorry or even hold back.. i honestly dont think there is any getting "used" to all of this. just merely being able to cope.

I feel like the worst part of all of this is the timing of all of it. which i relate to with you. right when i got to college at what was supposed to be the beginning and best part of the rest of my life.. it's so upsetting to think about everything that's happened instead.

I want you to feel free to vent all you want, but try your best not to withdraw from everyone. I know first hand lots of people will..... drift away.. but some wont, and dont lose sight of them okay?

someday everything will get better, and our lives will return.. we have to believe that..

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If you have to ask, you are not ready to know -

Jason-son

March 30, 2009, 05:02:52 AM

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Tired..

you're not alone

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If you have to ask, you are not ready to know -

Samantha

March 30, 2009, 07:07:09 PM

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I Will Be Diagnosed !

I'm so sorry Jen
Huge Hug

We all have these moments aggressive

but have to allow ourselves to get mad, vent, scream, yell and scream some more, but we must pick ourselves back up again and push on for answers. It will take just one Doctor/Specialist to pick this up but when and where is anyone's guess.......

I wish I had something more beneficial to say, I do know what you're going through and some days are worse than others.
I know it's not possible for everyone, but.......if you can eliminate the things/people/places in your life that cause stress and depression. Try and surround yourself with positives, positive people, places, things etc. Give yourself some pampering and if that's what you fell like doing they staying inside the house is ok

Big hugs sweetie I know you can push through this and better days are ahead

Huge Hug

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Cathie

April 01, 2009, 09:38:50 AM

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Hope this week is being a better one for you. Sam and Jas said it well.

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