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May 18, 2012, 04:01:59 PM
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Psssst.... I'm not dead yet!  (Read 834 times)

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Dance  Dance  Dance  Dance  Dance  Dance  Dance  Dance  Dance  Dance Dance  Dance  Dance  Dance  Dance  Dance  Dance  Dance 

Hey there everyone. I'm sorry I haven't been around much lately. I've been nuts with doctor appointments, and fighting with my employer, and OMG!
 :angry
Ok, so I finally got a confirmed diagnosis from a Rheumatologist that yes, I indeed have FMS. however, we are still unsure what is really behind the chronic pelvic pain deal. I have a pre-op visit in the morning and then a week from Wednesday, which would be the 18th, I go in for my laproscopy. Not sure what, if anything, they'll find there. I'm prepared for nothing to be found, and also equally prepared for them to find evil things and have to end up doing a total hysterectomy on me. I'll find out in 8 days, I reckon.
 :angelic011
I've been to see the Psychaitrist 2x now, and yep, I have severe recurring depression. Big bloody surprise there! So, Now I'm on Prozac. Also had to discuss with him if they do the hysterectomy if it's a problem. Well, no. In fact, while you're in there, if you do leave me with my goods intact, would you mind doing a tubal ligation for me? Yes, I  know I'm only 26. No, I don't want  kids, not now, not ever. Yes, I've been asking for sterilization for 10 years now. In fact, would you like written statements from people who've known me over the last decade, or their phone numbers? *rolls eyes* Anyhow, got the go ahead there. Yay!
 :eusa_clap
Today I went to a 4 hour class on FMS and how to deal. *wince* I thought I was supposed to be learning some new things... but noooooooooo, I ended up bloody lecturing! I knew more than the damned teacher did, and supposedly, she's had FMS for 6 years. OMG, really?!?!? WTF is wrong with people that they don't jump in and do as much research as possible about the things that are wrong?! I mean honestly!!!!
 Violent Violent Violent Aaarggh Violent Violent Violent
They've switched my pain meds again, now I am on controled release Morphine (MS Contin) 30mg every 12 hours, Probably going to be bumping that up again, as it helps... but not enough.
 Very Scared
I've had increasingly more days when I just want to crawl in a hole and die... Which, naturally, is affecting work. After 4 weeks of arguments with my boss, I FINALLY got the go ahead to work from home as needed. Which, honestly, is probably at least once a week. 95% of what I do is internet based, primarily e-mail in fact. So, it frustrated and disgusted me that it was such a battle. At one point my boss's boss suggested I might consider transferring to another department... He brought it up again last week before I got the OK on the WFM, and I stared him straight in the eyes and said
"So, is this something you'll force me to do if I don't go voluntarily?" He never did answer my question, just became terribly uncomfortable and hemmed and hawed a  bit before changing the subject. Let me just say, woe unto the company if they try that shit. This is not vanity - I AM the #1 producer in my department, I consistantly do double the work of anyone else on my team.
 Shocked
Also, I applied for and was granted a handicap parking placard, yay! And so far, no strange looks, although that might be partly due to the fact I never go anywhere anymore that I don't carry and use my cane.
 Smile
I think that about covers it.... I'll update you guys later after the laproscopy. 


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I Will Be Diagnosed !


It's so good to hear from you Scarlett  Dance Dance
Wow how busy have you been !
Despite all of this are the pain medications making it just a fraction better ? even just for now until the surgery..
I thought you went in on the 11th but must make a note for the 18th

How's your new relationship going ?  Wink

 Huge Hug  Huge Hug
I'm praying this Laproscopy helps, not long now
Be strong




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Sr. Member
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Gender: Female
Posts: 339

When all else fails, play dead!


I agree Scarlett, good that you're not dead, great that you're still up and moving, and brilliant that you can still find time and effort to drop in here to keep us updated.  Huge Hug Huge Hug Huge Hug
YIKES girly! How could you have wanted a hysterectomy at 16? Hell, when I was that age, I didn't know what I'd want in 10mins, never mind the rest of my life! But then, if it would've improved my life, I probably wouldn't have said no.

Morphine's a big thing...I can't say I know much about it, but isn't it more of a 'knock you out' thing, then a pain killer?


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Group: Administrator
VIP Member
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Gender: Female
Posts: 919

I Will Be Diagnosed !


Some people make the desicion very early on and stick with it throughout their whole life about not wanting children. Some want and some don't. I respect Scarlett for sticking to her feelings and voicing them despite the reactions of some  Thumbs
No disrepect to you at all New just making a comment sweety  Smile


Questions for those in the know  Wink
Is Morphine the stuff they give most patients after an operation for pain relief ? like after gallbladder, lapascropy etc  Question  Question


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Sr. Member
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Gender: Male
Posts: 319

Tired..


I'm really glad you've found some answers scarlett!  Smile

but dont stop searching until you find the reason for the pelvic pain too! I hope the surgery you have can fix it, and if it cant atleast tell you what the hell is wrong!

on a side note, Morphine is the greatest drug EVER.  atleast it was for me  Big Grin the great thing about it is that it's similiar in shape to epinephrine (body chemical that makes you feel good and happy after working out, sex, etc..) so it tends to give people a little euphoria! i loved it. hah. 

it definately doesnt "knock you out".  but it does make everything just.. drift away...  Big Grin *cue white doves, rainbows and candy falling from the sky


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If you have to ask, you are not ready to know -
   

Sr. Member
****

Gender: Male
Posts: 319

Tired..


btw scarlett, i think i might have an idea for your pelvic pain.

have you ever been checked for epilepsy?  I know what you're thinking, isnt that for seizures?  well yes and no.  if it manifests itself in the part of the brain that controls the pelvis, then the only part the will seize is the pelvis, not the whole body.  gradually though it can begin to include other parts of the body, typically they wont seize, but the misfirrings in the brain can begin to give pain signals throughout the body. 

if you have not seen a neurologist, i would see one.


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If you have to ask, you are not ready to know -
   

Jr. Member
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Gender: Female
Posts: 67


Hmmm Jason-son, I have not but certainly will do so now, thanks for the heads up :)

I didn't want a Hysterectomy when I was 16, just sterilization. To be honest, due to the bizarre growth and ruptured right ovary, I'm amazed they didn't but, que sara sara.

Let me mention that I'm a natural redhead. There have been a bunch of studies showing that redheaded females (no men oddly enough) seem to have a higher resistance/tolerance to medications. I can take 6 of the 10mg vicodin and it doesn't knock me out. No kidding! The mporphine takes a bit of the edge off but sure doesn't kill the pain completely. I want one more adjustment to is because my pauin is still like a 7 or an 8 and just evil. I think one more double will bring it down to a 3 or a 4 where I can deal with  it day to day. I don't expect the pain to be *poof* gone due to meds, but I'd like to function. I know if I take enough meds to kill the pain, I will be bed bound lol.

I miss you guys and will try to be more active again as I can. Love you all, and I say prayers for you all!


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