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May 18, 2012, 03:54:43 PM
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Cathie's Story  (Read 3777 times)

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Ok, I tend to ramble, so please forgive me for that.
Basically my story mimics yours Samantha.
 Before my gut pain started I also had/have arthritis - rheumatoid and osteo, severe muscle spasms, bad back, nerve damage in my back and all that kinda stuff.
My left side pain started in the blink of an eye, on a Friday arvo. One minute I was fine, next minute I thought my muscles where about to go into a massive spasm, went inside to put a heat bag on and it hurt like crazy, never done that before. During the course of the weekend it got worse, Wednesday - My regular dr was away but his locum was good, his first thought was diverticulitis.
Told me to eat All-bran and take as much Metamucil as I could get down, nothing else but water for the rest of the week. Ended up in the Emergency room by that weekend, they agreed with locum said to keep doing what I was doing. Gave me morphine. (side note - have often been given morphine for my spasms at the hospital and it works a treat, and although this time it lessened the pain it was not the magic cure I was used to, thought this was strange). For the next 3 weeks I was in total agony, could barely move, sat outside most days rocking and crying. Ended up at the emergency room several times over those weeks. Given ultrasounds, blood tests etc. Then the pain started to ease slightly, I remember being excited about crawling to the toilet by myself. I lost a lot of weight in those 3 weeks. It took 3 months then till I could shuffle/walk around hunched over, So that's how it started and then it really does follow your story Samantha - except for the Endometriosis and my 'lump' is a lot smaller.
 I had my gallbladder in October last year - which went a bit haywire and I spent 19 days in hospital and have a great scar. Right side pain didn't stop after this and didn't expect it to. I'm on the waiting list  at the moment for a brain MRI, due to increase of tremors, drooling and sometimes now when I have spasms they seem to stick.  One other difference between us is my GP/s are great and do try to help me, so I am very lucky there. 
What else annoys me about being me is : Headaches and head pains, my right eye is always sore and bloodshot, palpatations, I have a 50/50 chance of waking up with a puffy face which lasts about an hour and feels horrid. Puffy feet. Vein pain, pain in my bones,Chest pain - both sides (not heart), Can't handle heat at all - even in the shower, confusion, really forgetful now, early menopause (though that's a blessing), constantly changing kidney function results..oh I could go on for days, so I'll leave it there.
Also gotta mention I'm 39, have a fantastic understanding Fella of 22 years and  2 girls 15 & 20. Thanks for listening


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When all else fails, play dead!


Hello and welcome Cathie!
How long have you had to put up with this? I can't imagine how annoying and painful it must be, but we're here to support you.


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G'day and Thanks for the welcome.  Smile
Most of the more painful stuff started Dec 05 - so 3 years.
The other stuff like the muscle spasms about 13 years, arthritis diagnosed first about 25 years, Disc Degeneration first diagnosed about 18 years ago.


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Tired..


Hey Cathie, welcome to the forum! :)

hope we can help you find an answer, if nothing else atleast get you to keep trying. 

when you get a chance, i would like you to go through all of your medical records and post any and all irregularities you might have, going back as far as you can.  not just the past 3 years, but when everything started.  its important for you to know that it can all be related.  it is in your benefit to have your file memorized, and make sure your doctors are aware of what you find.  if you do not have the records go get them.

when you get time, please also post all symptoms you experience along with a progression of how it happened (going back 20 years).  if you could please do it in list form that would be great

hope we can help :) and welcome to the 3 year club!!!


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If you have to ask, you are not ready to know -
   

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I Will Be Diagnosed !



 welcome Cathy
Another Aussie  Smile
I'm so sorry to hear you too suffer from an undiagnosed illness. It's the hardest thing to deal with.. There is not much support out there for people like us but our little community helps, sharing with people who TRULY understand.

 
Your husband is a gem for supporting you  Thumbs you're one of the lucky one's to have family support
xxxxx
Sammy
 Huge Hug


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Thanks for the Welcome Samantha and Thanks for your site.
 It really is good know there are others out there.
Even though my hubby is a Saint and puts up with so much, i know he doesn't wanna hear me talk about it all the time, so it will be great to have some place to do that. So happy i found you lot, you seem like a great bunch :)


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Thanks Jason-son, G'day to you too.
I've been reading as much as i can since i've found the site, and was amazed at how much you all know about yourselves. I've never bothered really to write anything down, but it makes a lot of sense, so i will try and do that and have started. My GP's are really good, often giving me special treatment, so i'll try and remember to ask them for a list as well. I'm actually going tomorrow, but for unrelated stuff.


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When all else fails, play dead!


Unrelated stuff? You can't say anything's unrelated when you you don't know what's causing the arthritis and stuff.

Look at my story - I seem to have been diagnosed AGES ago, the doctors just applied their answer in the wrong way.


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Tired..


new is right, thinking things are unrelated is no longer an option! when you hit the 1 year mark it is time to start putting everything into consideration.  even something as simple as a cold could be sign.  perhaps your body isnt fighting off infections like it should.  from now on, everything you experience, anything out of the ordinary no matter how small, should be written down, brought up with the doctor, and posted here!

time to bring this fight into your own hands :)


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If you have to ask, you are not ready to know -
   

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You are both right and I've started trying to get stuff in order.
I'm going tomorrow to get a couple of moles frozen, that's what i meant by unrelated.
Thanks for caring, It's nice knowing people are on my side :)


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oh.. lol... well moles are different.  unless they are new???


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When you get organized Cathie let me know and I'll post a category (viewable only to members) if you want to share all your tests/reports etc.
Would be good to know what you've had done so we can all put our heads together see if we have some ideas for you  Smile

 Huge Hug
Sammy



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LOL, no the moles aren't new.

Sam - I will do that, though it won't be as precise and complete as others, I just had a quick sqiz then, i'll have a good read tonight and over the weekend. All my stuff is together but i've never bothered to write down blood tests and stuff. Though i did for the last 2 for some reason.


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Hope everything is going ok for you Cathie  Question Any new developments  Question

 Huge Hug
Sammy




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G'day Sam, No not much happening.
 I know i've been a bit slack. My FIL has been really sick and my immune system thought it would be a perfect time to do that plummeting thing that it does, since the last couple of weeks have been unusually busy.
 I should be able to get back into the groove after tomorrow though and start posting more.  Thanks for thinking of me.  Huge Hug


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