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 January 17, 2009, 10:58:50 AM
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Sr. Member
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Posts: 339
When all else fails, play dead!
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Mishka is a retired service dog, he'd kill himself to make me happy, but it's not good for him. He's minus the stability, and any extra weight on him comes under the category of cruelty. I now understand why nobody'd accredit him. He's still a qualified Therapy dog, which comes under the category of service dog with the council.
Kaos is being trained as a service dog. He's good for bracing in public toilets when I have to stand to swing my butt from the wheelchair to the toilet seat, and I'm trying to train him to hit elevator buttons. He's very enthusiastic, but is thrown off by the lift right now.
Jason son - Please explain, what's Rett Syndrome?
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January 18, 2009, 01:39:14 AM
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Sr. Member
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Posts: 319
Tired..
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rett syndrome is a genetic development disorder, from my research on it most children will present with symptoms within 2 years.. i guess if you were 7 when symptoms started maybe its not it, but i think it still is worth looking in to.
anyway this is from wiki, symptoms of rett's are...
Development and symptoms
The infant with Rett syndrome often avoids detection until 6-18 months due to a relatively normal appearance and some developmental progress. However closer scrutiny reveals disturbance of the normal spontaneous limb and body movements that are thought to be regulated in the brain stem. The brief period of developmental progress is followed by stagnation and regression of previously acquired skills. During regression some features are similar to those of autism. It is, hence, easy to mistakenly diagnose Rett syndrome for autism.
Symptoms of Rett syndrome that are also present in cerebral palsy (regression of the type seen in Rett syndrome would be unusual in cerebral palsy; this confusion should rarely be made):
* possible short stature, and/or might be unusually proportioned because of difficulty walking or malnutrition due to difficulty swallowing.
* hypotonia
* delayed or absent ability to walk
* gait/movement difficulties
* ataxia
* microcephaly in some - abnormally small head, poor head growth
* some forms of spasticity
* chorea - spasmodic movements of hand or facial muscles
* dystonia
* bruxism - grinding of teeth
Symptoms of Rett syndrome that are similar to autism:
* screaming fits
* panic attack
* inconsolable crying
* avoidance of eye contact
* lack of social/emotional reciprocity
* general lack of interest
* markedly impaired use of nonverbal behaviors to regulate social interaction
* loss of speech
* Balance and coordination problems, including losing the ability to walk in many cases
Symptoms may stabilize for many decades, particularly for interaction and cognitive function such as making choices. Anti-social behavior may change to highly social behavior. Motor functions may slow as rigidity and dystonia appear. Seizures may be problematic, with a wide range of severity. Scoliosis occurs in most and requires corrective surgery in about 10%. Those who remain ambulatory tend to have less progression of scoliosis.
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If you have to ask, you are not ready to know -
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January 20, 2009, 04:56:36 AM
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Sr. Member
Gender:
Posts: 339
When all else fails, play dead!
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How did you come up with vitamin e deficiency causing most of it? Taking 3000iu daily would've killed a horse, and over 10 years, wouldn't you have expected something to improve, even slightly? I took 1000iu at 7am, 1000iu at around 12:30 and the last dose at 6-7pm. Since it started, I degenerated from using a walking frame to having to use an electric wheelchair at school. I opposed this decision, as with all decisions before I felt my mother was having meetings with the principal behind my back. The electric wheelchair broke me, after that I gave up wasting my energy on fighting the control freaks.
The revolting tasting vitamin e was taken for so long because I believed the doctors claim that 'It will help you, be patient'.
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January 20, 2009, 11:15:08 AM
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Sr. Member
Gender:
Posts: 319
Tired..
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Well, because a deficiency in Vitamin E can cause most of your symptoms. look:
Vitamin E deficiency in humans results in ataxia (poor muscle coordination with shaky movements), decreased sensation to vibration, lack of reflexes, and paralysis of eye muscles. One particularly severe symptom of vitamin E deficiency is the inability to walk.
I realize you took vitamin e supplements for a long time, but here's the thing, if you have an absorption disease it wont matter how much you take, you could take an entire bottle, but if you're body isn't absorbing it, it wont make any difference. I believe this is the case here.
So here's my idea for you, you need to ask your doctor for INTRAVENOUS vitamin E, NOT ORAL. this will bypass the GI tract and any absorption problems you have.
"malabsorption syndromes can be treated with weekly injections of 100 mg alpha-tocopherol that may continue for six months"
please do this. i guarantee you'll feel much better.
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If you have to ask, you are not ready to know -
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