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February 08, 2012, 04:52:48 PM
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Pituitary Gland Tumor  (Read 4827 times)

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Hello....although I am not a undiagnosed person (my mother is), I have read Samantha's? story and felt I need to register and sign-up, and possibly help her........???

I'm from Nashville, TN. "HOWDY YA'LL"!!!

For the past year my mother has been experiencing pain under her right breast, swelling, and pain. She had has numberous procedures performed, blood test, MRI's, cat scans, x-rays, etc: name it, and she has had it! Right now she is on 100mgs. of Lyrica which is helping, and helps her get thru the day for the most part in a bearable state...

Anyways.......from everything I have read, and seen on the net and TV, while attempting to help my Mom find her diagnosis I came across a TV program on the health channel on Undiagnosed Cases......

The lady on the program had suffered for 14 years with pain and weight gain. She was walking with a cane.
She is now 37 years old, and is a attorney on the East coast here in the States.

She had gone to several different kinds of doctors, endo, gastro, neuro, name it and she had been there, all test would come back normal and they would try and tell her to adjust her caloric intake, and she would lose the weight, and the pain she was experiencing was just a secondary due to her weight gain.

At age 23, the lady started experiencing painful menstral cycles, and slow weight gain.
All of her weight gain thru-out the entire 14 years had been around her mid-section, upper back and lower face.
Slowly she no longer had menstrual cycles, and she thought she was pregnant, went to doctor and doc said no.
Anyways, this went on for 14 years, trying to find the cause of her problem, she then went to a doctor in New Jersey??? (I think) he ran a battery of tests, and ordered up a MRI with dye of her Pituitary Gland.

 Lord and behold, she had a tumor, she was operated on, and as the program showed her 3 months later, she was pain free, and about 50 pounds lighter. She was so happy to have her life back.  She looked GREAT!!

With all this being said, I am not a doctor.  I just read Samantha's story on-line about a week or so ago, and felt compelled to register here at her site and possibly "shed" some light on her ailment.
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My Moms swelling is right under her right breast, lower right rib area, and spands around under her right arm, and sometimes works it way toward her back. It seems to get worse during the late afternoon hours. She at that point, if hurting and swelling is bad, just lays on the sofa, with her ice pak, and tries to numb away the pain for a little relief. I got her some ACTIV-ON roll on pain reliever, she rolls it on her ribs, and she says it actually helps.
4 Specialist has told her "4" different things about what is wrong with her. NO 2 doctors have agreed with what is wrong with her.

I told my Mom about this lady I had seen on the Health Channel. Mom has not experienced any weight gain, but, she said she did want to run it by her doctor.

My sister 2 weeks ago, had a MRI done on her, and found she had a tumor on her Pituitary Gland.  She is awaiting the doctor to call and set her surgery up.

There are several different types of tumors and each one has its own unique signature of symptoms.

I hope this rant may help someone with their diagnosis or pain management!!

Regards,
Jack  




 


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Welcome Jack Huge Hug

Thanks for signing up and sharing your story, I hope it helps someone out there suffering from an undiagnosed illness. Unfortunately I've already had an MRI of the brain (not with dye though) and my pituitary was normal. I guess I could ask for another with dye but don't like my chances  Sad

I'm so so happy to hear your mum finally has a diagnoses, I can just imagine how she is feeling right now after such a long time undiagnosed. I wish her and your sister the very best for the new year, this is wonderful years.  Dance Dance

Sammy
xxx



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Hey Samantha.................. Big Grin

 My Mom still hasn't actually had a diagnosis........4 doctors gave her 4 different diagnosis.
But the Lyrica she is taking does help the symptoms. But she still doesn't know what truly is causing her inflammation and pain. No ONE doctor has actually said this IS what IS wrong with you. They say they "think" this is what is causing your pain..... Aaarggh

 My sister had to have "2" MRI's the first (without dye) showed "nothing" abnormal with her pituitary gland, the second they injected the dye into her IV, and there it was a very small tumor pressing on her optic nerve. Doc said it was a benign slow growing tumor.

 The Show I was talking about on the Health channel with the 37 year old lady, had several MRI's.  But "this" particular doctor she finally met up with couldn't believe  after looking thru her records, that were as thick as a phone book, that no one had given her a MRI with dye after all these years.  He did, and found her diagnosis, and remedy!!

Glad to be here......bless you all, and what you all are enduring!!!  I sometimes think I am more PISSED at my Moms doctors than she is......... Violent

 Take care........... :coolsmiley


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Your mum is so very lucky to have such a caring understanding son. She's the mum and has to apprear strong and tough, but I bet she is on ocassions feeling pretty awful and having you help would be a god send
 Huge Hug

I've started watching some of this series too, and while I think we'd all love to have more tests  (MRI with dye, another CT scan or something) it's very hard to convince doctors to approve because they simply don't believe anything is wrong with us....



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Update:

 Finally a doctor with some knowledge, went in and injected dye into my Moms pancreas, which in turn sent her into a full blown attack...pain, stomach swelling, pain, nausea, pain.

 Anyways, not knowing the technical lingo to use I will proceed the best I can what the surgeon did.

After running this particular test (dye in pancreas) they ran a micro camera up into her pancreas where he found sludge build up, and a a valve not opening and closing properly, and a narrowing in one part of her pancreas.

He cleaned out the sludge, repaired the valve (flap?) and put a stint in to where the pancreas was narrowed.

She was in hell for about 2 days following the procedure with a severe attack of pain, but the doctor had warned her in advance that this test/procedure would send her into a full fledged attack. which it did.

He told her it would take weeks, possibly a few months before everything healed and everything got back to normal, which it now has.

But...her rib pain still comes and goes.  He now thinks her rib the bottom rib was at one time cracked and healed "crooked", although the x-ray shows it to be alright.  Instead of healing flat and normal it has slightly turned  itself slightly on its side, which in turn pushes against her nerve sensors, and causes inflammation and pain.  She is now set for him to go in and and hopefully straighten the actual rib.


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 Dance Dance

anyways......she is now no longer in around the clock pain, with the pancreas procedure done.

We;re awaiting for him to set the date for him to go in and repair the rib in question.

What is kinda funny/ironic is the fact I had found "both" of these possibilies of her illness 2 years ago, and 4 of her doctors poo-poo'd them away, saying it couldn't be her ribs, that the x-ray showed her ribs were FINE!!

And the narrowing passage of her pancreas too.....the specialist she had seen down here in Nashville, ran all these test EXCEPT for the one I had suggested (dye in pancreas)...and the test he ran showed everything NORMAL, so he told US that there was NO need to run the dye in the pancreas test!!!!

Just wanted to say hey and give every one a update and NOT to give up......there are doctors out there that are not total idiots.

Merry Christmas Everyone!!


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Thanks for the update Jack   Smile

It's hard to find good Doctors these days but I knew someone would find one.  Wink I hope your mum is feeling a little better now, I can just imagine the pain she was in with the dye test  Cry very lucky to have you by her side  Smile

Merry Christmas To You Too
 Huge Hug
Sammy


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