Living With an Undiagnosed Illness

My Medical Conditions
Excruciating Pain
Sphincter of Oddi
Found during a Hida Scan. Sphincter of oddi is situated in the upper intestine, or duodenum, at the site where the pancreatic and bile ducts enter. Normally, this sphincter functions as a one-way valve to allow bile and pancreatic secretions to enter the bowel, while preventing the contents of the bowel from backing up into these ducts.

When the sphincter malfunctions, it becomes overly tight and does not allow adequate drainage of the pancreatic and bile ducts. The result is a pressure build-up in the ducts, leading to recurrent episodes of pancreatitis or biliary pain mimicking gallstone disease.

Irritable Bowel Syndrome
Bad Stomach
Most people have Irritable Bowel Syndrome !
Endometriosis
Endometriosis Symptoms
2 Surgeries so far on my Endometriosis. Last surgery showed Endo has completely gone. Gyno said my Pelvis was crystal clear.
Costochondritis
Very Painful
Costochondritis is a form of inflammation of the cartilage where ribs attach to the breastbone. Pain caused by Costochondritis may mimic that of a heart attack or other heart condition.
Adenomyosis
Benign Condition
Adenomyosis is the growth of uterine tissue from one particular layer of the uterus (the endometrial glands) into the wrong layer (the muscle layer, called the myometrium). It is a benign condition, but it can enlarge the uterus presenting as a growth.
Splenic Flexure Syndrome
Very Painful
Splenic flexure syndrome refers to the trapping of gas at the splenic flexure causing distension and bloating.
Anal Sphincter Dysfunction
Constipation
I suffer extreme bouts of Constipation. Daily doses of Movicol and Normacol.
Neuropathic Pain
Damaged Nerves
Neuropathic pain is a complex, chronic pain state that usually is accompanied by tissue injury. With neuropathic pain, the nerve fibers themselves may be damaged, dysfunctional or injured. These damaged nerve fibers send incorrect signals to other pain centers. The impact of nerve fiber injury includes a change in nerve function both at the site of injury and areas around the injury. Symptoms may include shooting and burning pain, tingling and numbness or electrical pain.
Pelvic Floor Dysfunction
Cause of Constipation
Pelvic floor dysfunction, or obstructed defecation, results when the external anal sphincter and/or puborectalis muscles do not relax appropriately when defecation is initiated. People with pelvic floor dysfunction strain excessively in a feeble attempt to eliminate stool from the rectum.


Undiagnosed Illness
 
Herbalist

New line of treatment

The Herbalist is such a lovely man, I'm impressed straight away with the compassion he shows. I had an Iridology check, inflammation and congestion, and lymph problems showed up. I was prescribed some herbs, and a few treatments of bowen therapy which I thoroughly enjoyed. The herbs helped to some degree, but after all the doctors/specialist I had seen funds were extremely low and I couldn't afford to continue with the treatment.

Pain and Suffering

Pain, frustration, annoyed, not sleeping, not living life, work suffering. More months had passed, family and my fiancée were such great support.

It was roughly 3am, the pain just under my left rib felt like it was going to explode, I remember getting out of bed and pacing the lounge room floor for some time, the pain killers I had did nothing, I had a shower hoping the warmth would help, I think my body went into shock, the pain was unbearable, I was white as a ghost so my fiancée took me to emergency once again.

Emergency

I'd relayed the whole story to the Doctor on duty, he couldn't work it out, perhaps my ovaries again, but you wouldn't think the pain would be so high up. I demanded he refer me to a General Surgeon, I wanted to be cut open and explored, I didn't care, just cut me open and take a better look inside. I was given some medication from emergency, I don't recall what it was but when I got home I slept most the day, so it was very effective. The General Surgeon took some time to get into. Time frame roughly 2 months, there was nothing I could do in the meanwhile but put up with the pain, most days the pain was 7 out of 10 on occasion it hit way above the 10 barrier, but what else could I do, Another doctor?

Infrared Imaging
Mum noticed a sign on the local chiropractic centre Infrared Imaging, which read "are you having trouble getting a diagnosis?. After doing some research on infrared imaging I decided what the heck. The results showed such bad inflammatory patterns they asked if I had my appendix checked, which I already had taken out many months ago, this area showed lots of inflammation. The area under my left rib was the worse, extremely inflamed. I couldn't find a doctor/specialist who was that interested in them, they read the report and images but that was as far as it went.

So although the infrared image people were convinced something underlining was going on, having this done was a waste of money (nothing against infrared) was very interesting, and I experienced pain in the areas which showed inflammation, but no good if you have no one to follow up with the results.

Time for General Surgeon Appointment

The Story Continues ....... If you would like to continue reading:

read my story

I hope you visit my Undiagnosed Illness Forum If you have any suggestion's or comments I would love to hear from you.


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Medical Tests So Far
I've had some of these procedures more then once
Ultrasound
CT Scan
MRI
X-Ray
Colonoscopy
Gastroscopy
Sigmoidscopy
Hida Scan
Barium Meal
Laparoscopy
Ultrasound

I know alot of people can relate. I hope you all have close families because they really do make a difference.

Exhausted From Pain

It's been 3 years and 4 months, and yep still undiagnosed. I'm extremely exhausted.

Exhausted
 
Journal

This website is meant to be therapeutic.. A place for me to vent and express my feelings. Somedays I find it frustrating because it brings back memories when doctor's gave up, saying it was all in my head, nothing wrong with me, yet I pushed on with different doctor's and GUESS WHAT ? they found more medical conditions!

Pain....Pain...Pain....Pain.....

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