Living With an Undiagnosed Illness

My Medical Conditions
Excruciating Pain
Sphincter of Oddi
Found during a Hida Scan. Sphincter of oddi is situated in the upper intestine, or duodenum, at the site where the pancreatic and bile ducts enter. Normally, this sphincter functions as a one-way valve to allow bile and pancreatic secretions to enter the bowel, while preventing the contents of the bowel from backing up into these ducts.

When the sphincter malfunctions, it becomes overly tight and does not allow adequate drainage of the pancreatic and bile ducts. The result is a pressure build-up in the ducts, leading to recurrent episodes of pancreatitis or biliary pain mimicking gallstone disease.

Irritable Bowel Syndrome
Bad Stomach
Most people have Irritable Bowel Syndrome !
Endometriosis
Endometriosis Symptoms
2 Surgeries so far on my Endometriosis. Last surgery showed Endo has completely gone. Gyno said my Pelvis was crystal clear.
Costochondritis
Very Painful
Costochondritis is a form of inflammation of the cartilage where ribs attach to the breastbone. Pain caused by Costochondritis may mimic that of a heart attack or other heart condition.
Adenomyosis
Benign Condition
Adenomyosis is the growth of uterine tissue from one particular layer of the uterus (the endometrial glands) into the wrong layer (the muscle layer, called the myometrium). It is a benign condition, but it can enlarge the uterus presenting as a growth.
Splenic Flexure Syndrome
Very Painful
Splenic flexure syndrome refers to the trapping of gas at the splenic flexure causing distension and bloating.
Anal Sphincter Dysfunction
Constipation
I suffer extreme bouts of Constipation. Daily doses of Movicol and Normacol.
Neuropathic Pain
Damaged Nerves
Neuropathic pain is a complex, chronic pain state that usually is accompanied by tissue injury. With neuropathic pain, the nerve fibers themselves may be damaged, dysfunctional or injured. These damaged nerve fibers send incorrect signals to other pain centers. The impact of nerve fiber injury includes a change in nerve function both at the site of injury and areas around the injury. Symptoms may include shooting and burning pain, tingling and numbness or electrical pain.
Pelvic Floor Dysfunction
Cause of Constipation
Pelvic floor dysfunction, or obstructed defecation, results when the external anal sphincter and/or puborectalis muscles do not relax appropriately when defecation is initiated. People with pelvic floor dysfunction strain excessively in a feeble attempt to eliminate stool from the rectum.


Undiagnosed Illness
 
Gynecologist

Check up after surgery

Told I need to be patient, my body needed more time to heal. I agreed I was a little impatient, but after all I'd been through I was entitled to be. I allowed 4 more weeks then returned to work only to go home early most days. I'm sure my co-workers thought I was a big sook and to get over it (with the exception of my Boss, always ok with me) besides my own family she could always pick when I wasn't feeling so good, and some days demanded I go home early.

Gynecologist Results

Four weeks had passed. Complain complain complain.He was terrific though, and referred me to another Gastroenterologist (in the same medical centre as him).

More Waiting

It's hard to recall exactly, roughly 2 months waiting period to see this specialist. In the meanwhile back to my original Doctor to have a chat about the the findings during my operation.  

She didn't say much at all really, rather shocked, I get the feeling not much was said because she knew this should have been picked up.

Undiagnosed Illness
After all the tests I had over the years I only ever received a brief report on this operation, no pictures like I received from every other operations/test. All other laparoscopies I have full reports and copies of the images taken. At the time I was in "get diagnosed mood" I wasn't worried about bits of paper.

Life

Life wasn't so good, loving caring family but I could no longer do the activities I did previously. Horse riding was the major one for me, a long held passion that I miss so much. I took holidays from work, and spent many days just sleeping. My body needed it.

The Story Continues ....... If you would like to continue reading:

read my story

I hope you visit my Undiagnosed Illness Forum If you have any suggestion's or comments I would love to hear from you.


Don't forget to and check back often for updates

Medical Tests So Far
I've had some of these procedures more then once
Ultrasound
CT Scan
MRI
X-Ray
Colonoscopy
Gastroscopy
Sigmoidscopy
Hida Scan
Barium Meal
Laparoscopy
Ultrasound

I know alot of people can relate. I hope you all have close families because they really do make a difference.

Exhausted From Pain

It's been 3 years and 4 months, and yep still undiagnosed. I'm extremely exhausted.

Exhausted
 
Journal

This website is meant to be therapeutic.. A place for me to vent and express my feelings. Somedays I find it frustrating because it brings back memories when doctor's gave up, saying it was all in my head, nothing wrong with me, yet I pushed on with different doctor's and GUESS WHAT ? they found more medical conditions!

Pain....Pain...Pain....Pain.....

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