Living With an Undiagnosed Illness

My Medical Conditions
Excruciating Pain
Sphincter of Oddi
Found during a Hida Scan. Sphincter of oddi is situated in the upper intestine, or duodenum, at the site where the pancreatic and bile ducts enter. Normally, this sphincter functions as a one-way valve to allow bile and pancreatic secretions to enter the bowel, while preventing the contents of the bowel from backing up into these ducts.

When the sphincter malfunctions, it becomes overly tight and does not allow adequate drainage of the pancreatic and bile ducts. The result is a pressure build-up in the ducts, leading to recurrent episodes of pancreatitis or biliary pain mimicking gallstone disease.

Irritable Bowel Syndrome
Bad Stomach
Most people have Irritable Bowel Syndrome !
Endometriosis
Endometriosis Symptoms
2 Surgeries so far on my Endometriosis. Last surgery showed Endo has completely gone. Gyno said my Pelvis was crystal clear.
Costochondritis
Very Painful
Costochondritis is a form of inflammation of the cartilage where ribs attach to the breastbone. Pain caused by Costochondritis may mimic that of a heart attack or other heart condition.
Adenomyosis
Benign Condition
Adenomyosis is the growth of uterine tissue from one particular layer of the uterus (the endometrial glands) into the wrong layer (the muscle layer, called the myometrium). It is a benign condition, but it can enlarge the uterus presenting as a growth.
Splenic Flexure Syndrome
Very Painful
Splenic flexure syndrome refers to the trapping of gas at the splenic flexure causing distension and bloating.
Anal Sphincter Dysfunction
Constipation
I suffer extreme bouts of Constipation. Daily doses of Movicol and Normacol.
Neuropathic Pain
Damaged Nerves
Neuropathic pain is a complex, chronic pain state that usually is accompanied by tissue injury. With neuropathic pain, the nerve fibers themselves may be damaged, dysfunctional or injured. These damaged nerve fibers send incorrect signals to other pain centers. The impact of nerve fiber injury includes a change in nerve function both at the site of injury and areas around the injury. Symptoms may include shooting and burning pain, tingling and numbness or electrical pain.
Pelvic Floor Dysfunction
Cause of Constipation
Pelvic floor dysfunction, or obstructed defecation, results when the external anal sphincter and/or puborectalis muscles do not relax appropriately when defecation is initiated. People with pelvic floor dysfunction strain excessively in a feeble attempt to eliminate stool from the rectum.


Undiagnosed Illness
 
General Surgeon

What a lovely man

It takes some time relaying my medical history to new doctors, but he was patient, I was never rushed.

Medical History

I had my library of test results, x-ray, ct scan, infrared etc etc. He took the time to go through each one, and noticed something on my ct scan. I have no idea what I'm looking at on a ct scan, but he said I had sludge around my gall bladder, ponting to the areas on the ct scan, perhaps that is causing the pain. Gallbladder problems don't always result in pain on the right side he said, some people, not that many, can have the pain on the opposite side.

Gallbladder Operation

So I was booked in to have my gall bladder checked out. What a relief that was, yes I may sound mad, but I'm so happy I'm having another operation. The General Surgeon asked several times, why didn't the gynecologist look into why I had adhesions to begin with. Usually they only form after someone has had surgery. I honestly didn't know why he didn't look into this further. I'm not the doctor...............

Surgery

So the adhesions were also on the surgeons mind...

I was pushed up the list, gallbladder surgery booked in a weeks time. Surgery costs a fortune, (I'm not in a private fund either ) but again family chipped in and all was set to go. How exciting this was, I was so positive, this was it. IM GOING TO BE FIXED!. I was jumping for joy, I was happy, no anger, no frustration, just pure excitement. How odd for someone about to be cut open. 

Time for Gallbladder Operation

The Story Continues ....... If you would like to continue reading:

read my story

I hope you visit my Undiagnosed Illness Forum If you have any suggestion's or comments I would love to hear from you.


Don't forget to and check back often for updates

Medical Tests So Far
I've had some of these procedures more then once
Ultrasound
CT Scan
MRI
X-Ray
Colonoscopy
Gastroscopy
Sigmoidscopy
Hida Scan
Barium Meal
Laparoscopy
Ultrasound

I know alot of people can relate. I hope you all have close families because they really do make a difference.

Exhausted From Pain

It's been 3 years and 4 months, and yep still undiagnosed. I'm extremely exhausted.

Exhausted
 
Journal

This website is meant to be therapeutic.. A place for me to vent and express my feelings. Somedays I find it frustrating because it brings back memories when doctor's gave up, saying it was all in my head, nothing wrong with me, yet I pushed on with different doctor's and GUESS WHAT ? they found more medical conditions!

Pain....Pain...Pain....Pain.....

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