Undiagnosed Illness - My First Gastroenterologist Appointment

Medical History

Irritable Bowel Syndrome

IBS
Irritable bowel syndrome IBS is a syndrome, meaning a group of symptoms. The most common symptoms of IBS are abdominal pain or discomfort often reported as cramping, bloating, gas, diarrhea, and or constipation. IBS affects the colon, or large bowel, which is the part of the digestive tract that stores stool. IBS is not a disease. It's a functional disorder, meaning that the bowel doesn't work or function correctly.

Endometriosis

Endometriosis Symptoms Endometriosis is a common medical condition characterized by growth beyond or outside the uterus of tissue resembling endometrium, the tissue that normally lines the uterus. In endometriosis, the endometrium (from endo, inside, and metra, womb ) is found to be growing outside the uterus, most commonly in the pelvis.

Costochondritis

Also called Tietze's Syndrome
Costochondritis is a form of inflammation of the cartilage where ribs attach to the breastbone.

Pain caused by Costochondritis may mimic that of a heart attack or other heart condition.

Adenomyosis

Endometriosis of the Uterus
Adenomyosis is the growth of uterine tissue from one particular layer of the uterus (the endometrial glands) into the wrong layer (the muscle layer, called the myometrium). It is a benign condition, but it can enlarge the uterus presenting as a growth.

Neuropathic Pain

Neuralgia
Neuropathic pain is a complex, chronic pain state that usually is accompanied by tissue injury. With neuropathic pain, the nerve fibers themselves may be damaged, dysfunctional or injured. These damaged nerve fibers send incorrect signals to other pain centers. The impact of nerve fiber injury includes a change in nerve function both at the site of injury and areas around the injury. Symptoms may include shooting and burning pain, tingling and numbness or electrical pain.

Sphincter of Oddi Dysfunction

(SOD)
Sphincter of oddi is situated in the upper intestine, or duodenum, at the site where the pancreatic and bile ducts enter. Normally, this sphincter functions as a one-way valve to allow bile and pancreatic secretions to enter the bowel, while preventing the contents of the bowel from backing up into these ducts. Sphincter of oddi

When the sphincter malfunctions, it becomes overly tight and does not allow adequate drainage of the pancreatic and bile ducts. The result is a pressure build-up in the ducts, leading to recurrent episodes of pancreatitis or biliary pain mimicking gallstone disease.

Splenic Flexure Syndrome

Muscle Spasms of the Colon
Splenic flexure syndrome refers to the trapping of gas at the splenic flexure causing distension and bloating. Pain can be felt up under the left ribs. When the pain is really bad, it can enter the left armpit.

Anal Sphincter Dysfunction
Significant Cause of Constipation

Anal Sphincter Dysfunction can result from nerve damage as well as from lacerations of the sphincter. Tears are an important risk factor for long-term anal sphincter dysfunction.

Pelvic Floor Dysfunction
Predominantly Affecting Females

Pelvic floor dysfunction, or obstructed defecation, results when the external anal sphincter and/or puborectalis muscles do not relax appropriately when defecation is initiated. People with pelvic floor dysfunction strain excessively in a feeble attempt to eliminate stool from the rectum.

Mystery Diagnosis

Living With an Undiagnosed Illness

First Gastroenterologist Appointment

My first visit to a gastroenterologist was a complete waste of time. I really don't know how some specialists obtain their medical certificates..................yes I'm annoyed.

The gastroenterologist gave me a brief psychical examination.

Gastroenterologist Questions I inquired about a colonoscopy just to be sure, but he said it would be a waste of time, more blood tests to rule out allergies, (gluten, dairy etc etc), many tests, but they all came back normal. The one thing I always remember about this exam is the gastroenterologist asking if I had any marks on my legs, which I did develop around the same time my illness did, odd brown patches on both my calves, in almost the exact same positions, but I never asked him why he wanted to know about them, and to this day have never found an answer.

Undiagnosed Illness Continues

He advised me (agred with the Doctor who had referred me), that Anti depressants were a great idea. Pointing out they were not prescribing for Depression, sometimes they can help people who have pain and trouble sleeping. So I tried them, having so much pain, I was prepared to try almost anything doctors recommended.

First Prescription My first prescription was Endep. I have since tried other forms of anti depressants all having bad side effects. At the time I thought Endep was awful. I stopped taking them within roughly two weeks. The doped out feeling was awful, wanting to sleep all the time was awful, I felt sick, and received no pain relief (I didn't allow enough time) but side effects were too much to handle. The Endep was nothing compared to other medications I was prescribed (more on that later).

Different drugs affect people differently, and Endep, didn't agree with me.

The Story Continues ....... If you would like to continue reading: Hospital Emergency Visits

Medical Procedures

Colonic Transit Study

CT Scan /Abdominal / Pelvis

MRI / Chest / Spine

X-Ray Lungs

Colonoscopy

Gastroscopy

Sigmoidscopy

Bone Scan

Hida Scan

Barium Meal

Laparoscopy x 3

Abdominal Ultrasound

Pelvic Ultrasound

Abdominal Wall Ultrasound

Infrared Imaging

Cholecystectomy

Intravenous Pyelogram (IVP)

This website is therapeutic.. A place for me to vent and express my feelings. When problems bother you in real life your always advised to talk about it but with an undiagnosed illness your often told just live with it and carry on with your life. Easier said then done.

Undiagnosed Forum

Thank you to all members of the forum for your continued support, encouragement and guidance.

Mystery Diagnosis

Just over 5 years now and Im still undiagnosed. I'm extremely exhausted.