Undiagnosed Illness - New Doctor

My Medical Conditions

Excruciating Pain
Sphincter of Oddi
Found during a Hida Scan. Sphincter of oddi is situated in the upper intestine, or duodenum, at the site where the pancreatic and bile ducts enter. Normally, this sphincter functions as a one-way valve to allow bile and pancreatic secretions to enter the bowel, while preventing the contents of the bowel from backing up into these ducts.

When the sphincter malfunctions, it becomes overly tight and does not allow adequate drainage of the pancreatic and bile ducts. The result is a pressure build-up in the ducts, leading to recurrent episodes of pancreatitis or biliary pain mimicking gallstone disease.

Irritable Bowel Syndrome
Bad Stomach
Most people have Irritable Bowel Syndrome !

Endometriosis
Endometriosis Symptoms
2 Surgeries so far on my Endometriosis. Last surgery showed Endo has completely gone. Gyno said my Pelvis was crystal clear.

Costochondritis
Very Painful
Costochondritis is a form of inflammation of the cartilage where ribs attach to the breastbone. Pain caused by Costochondritis may mimic that of a heart attack or other heart condition.

Adenomyosis
Benign Condition
Adenomyosis is the growth of uterine tissue from one particular layer of the uterus (the endometrial glands) into the wrong layer (the muscle layer, called the myometrium). It is a benign condition, but it can enlarge the uterus presenting as a growth.

Splenic Flexure Syndrome
Very Painful
Splenic flexure syndrome refers to the trapping of gas at the splenic flexure causing distension and bloating.

Anal Sphincter Dysfunction
Constipation
I suffer extreme bouts of Constipation. Daily doses of Movicol and Normacol.

Neuropathic Pain
Damaged Nerves
Neuropathic pain is a complex, chronic pain state that usually is accompanied by tissue injury. With neuropathic pain, the nerve fibers themselves may be damaged, dysfunctional or injured. These damaged nerve fibers send incorrect signals to other pain centers. The impact of nerve fiber injury includes a change in nerve function both at the site of injury and areas around the injury. Symptoms may include shooting and burning pain, tingling and numbness or electrical pain.

Pelvic Floor Dysfunction
Cause of Constipation
Pelvic floor dysfunction, or obstructed defecation, results when the external anal sphincter and/or puborectalis muscles do not relax appropriately when defecation is initiated. People with pelvic floor dysfunction strain excessively in a feeble attempt to eliminate stool from the rectum.

Undiagnosed Illness

New Doctor

The search for a diagnosis continues

I made an appointment with the new Doctor my general surgeon recommended.

Doctor

I took my library of images and test results from every other doctor/specialist I had previously seen, and he went through the whole lot. My MRI scan didn't show anything of concern, mild disc problem, that apparently if most people have an MRI would have this, it's just wear and tear on the body, shall post the report later on through my saga.

My Description of Pain.

My pain was all left sided at this stage. Up high near my rib cage, and at the side of the rib cage and extremely tender to touch.

My stomach was very distended, and just below the left hand rib cage you can see a lump that measures roughly 10 cm x 10 cm . Inside this lump I can feel small hard pea shaped lumps which are also extremely tender. This area oozes a watery substance (no where else on my body does this) only where the pain and tenderness is.

It feels like something is trying to push itself out of my body, like a kick in the left rib, which is excruciatingly painful, it feels like it's hitting a nerve, similar to when you eat cold ice cream and you have a sensitive tooth. I also have spasms in this area where the lump is which can radiate through the back, again only left sided pain. It's constant pressure and and feels bruised, like I have been run over by a bus. It pitches me, and makes bubbling, gurgling sounds, the pain is the worse pain I have ever experienced.

More Specialist

Even though the pain is high up the new Doctor recommends we go back to the beginning, where did the pain originally start. It started in my pelvic area, so he recommends we start back there and find another Gynecologist as there could be something missed, perhaps endometriosis higher up, or more cysts (perhaps larger ones) developed. So on this Doctors recommendation I make another appointment with a Gynecologist who usually practices in Sydney but has appointments locally twice a month.

I wasn't that happy about this decision as the pain was higher up, but the new Doctor said lets start from scratch and work our way up. I had nothing to lose.

Time for another Gynecologist

The Story Continues ....... If you would like to continue reading:

read my story

I hope you visit my Undiagnosed Illness Forum If you have any suggestion's or comments I would love to hear from you.

Don't forget to and check back often for updates

Medical Tests So Far

I've had some of these procedures more then once

Ultrasound

CT Scan

MRI

X-Ray

Colonoscopy

Gastroscopy

Sigmoidscopy

Hida Scan

Barium Meal

Laparoscopy

Ultrasound

I know alot of people can relate. I hope you all have close families because they really do make a difference.

Exhausted From Pain

It's been 3 years and 4 months, and yep still undiagnosed. I'm extremely exhausted.

Exhausted

Journal

This website is meant to be therapeutic.. A place for me to vent and express my feelings. Somedays I find it frustrating because it brings back memories when doctor's gave up, saying it was all in my head, nothing wrong with me, yet I pushed on with different doctor's and GUESS WHAT ? they found more medical conditions!

Pain....Pain...Pain....Pain.....