I searched the internet over the years and
most of
the time people writing about their mystery diagnosis only wrote once or twice, so it was
rather frustrating not knowing what happened. Did they finally receive a
diagnosis?.
I've gone from being diagnosed with one condition, then another specialist un-diagnosing it.
My general surgeon asking why my Gynecologist didn't follow up with the adhesions found during my first Laparoscopy,
explaining they usually only form after surgeries, not common for someone who had never been operated on.
Endometriosis was discovered during my first Laparoscopy, 12 months later, more tests performed,
including a Sigmoidscopy and my new Gynecologist states I most likely have Endometriosis in the bowel.
So a joint operation was organised with the Gynecologist and a General Surgeon for bowel re-section and to check the state
of Endometriosis.
I wake
from surgery with nothing touched, my pelvis and bowel are crystal clear no sign of Endometriosis at all.
A very expensive and unnecessary surgery
I've been referred to one specialist after another. Diagnosed with Costochondritis,
Splenic Flexure Syndrome, Pelvic Floor Dysfunction,
Irritable Bowel Syndrome, Neuropathic Pain and more recently Fibromyalgia.
I understand and have researched what Costochondritis,
Splenic Flexure Syndrome, Pelvic Floor Dysfunction, Irritable Bowel Syndrome, Endometriosis and Fibromyalgia involve,
the pain, the symptoms and treatments. I truly believe and physically feel there is something else going on with my health.
I keep developing more health problems, which I've posted on the forum.
I've been misdiagnosed I'm positive of that. Most are diagnosed to shut me up in the hope I will go away and stop
harassing the medical profession.
I never recovery, symptoms remain the same despite trying recommended treatments and medications for each condition,
which include lifestyle changes, diet, exercise etc.
My current Doctor is very supportive, I'm extremely lucky I've finally found one who hasn't kicked me out the door !.
He listens and is happy to hear my theories
after research efforts online each month.
This is where my pain stems from. The picture shows the lump just below my left rib
If you've seen anything like this or have any ideas what could be causing it please contact me, email address
is at the bottom of the page.
You can read updates on the forum. I try to post often, it's a form of therapy for me.!
Dealing with an undiagnosed medical condition is often difficult.
Connecting with others who are going through the same thing can make a world of difference.
Another Picture of My Left Sided Lump. This lump starts right below the breast
I've recently discovered some interesting literature that I can relate to, my symptoms and the
fact a few small Lipomas were discovered during an Ultrasound about 1 year ago which the Medical profession said nothing to worry about.
Some rare forms of lipoma can be found around nerves neuro-lipoma and may also be associated with blood vessels angiomyolipoma.
Also Dercum's Disease in which painful fatty growths that do not resolve with weight loss, it's a rare disease characterized
by multiple painful lipomas that arise in adult life.
It's been some time now since I've had any form of testing, so it may be time to go back and investigate again with my new theories in hand.
